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Aplastic anaemia
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Iron Blood Test Results
Hi i’m wondering if anyone could advise on my iron blood test. I had a recent thyroid test which showed Ferritin at 69.1 ug/L (range 30-150). This was through Thriva. I have since tested with Medicheck and my ferritin seems to have reduced. Am just wondering if there was a way I could increase ferritin
Hi i’m wondering if anyone could advise on my iron blood test. I had a recent thyroid test which showed Ferritin at 69.1 ug/L (range 30-150). This was through Thriva. I have since tested with Medicheck and my ferritin seems to have reduced. Am just wondering if there was a way I could increase ferritin
Llobs
in
Thyroid UK
8 months ago
Some Potentially Alarming Changes to Blood
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Hi All, CLL Diagnosed less than a year ago. 13 Q del. I am/was hoping for a slow progression of this disease, but my recent blood work is worrying me. I'll meet with my doctor (CLL specialist at U of Chicago) next week, but I value the insight of those who have been dealing with this just as much if
Horsechestnut
in
CLL Support
8 months ago
Update.
Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot
Latest blood results Hb - 119, WBC - 5.9. Plts- 293. I am starting to feel a bit better of late. The steroids I am on has have improved my haemoglobin and I am reducing the dosage over 4 weeks. I am to stay on folic acid tablets for the mean time. The letter I received states that my haematologist cannot
Jacksc06
in
CLL Support
8 months ago
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Grandmother, 88 being denied B12 injections
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
This group has always been very supportive, particularly when I began my B12 deficiency ordeal. I was hoping I could get some advice on a very specific issue I am having with my maternal grandmother, who has had Pernicious Anaemia for as long as I can remember and likely where I inherited mine from.
TMur1990
in
Pernicious Anaemia Society
8 months ago
Anyone else with consistently rising neutrophils?
My neutrophils have steadily risen from 67 to 78.2% over one year while my lymphocytes have decreased from 17.2 to 12.1%. My overall WBC went from 9 to 11.4. I’m going to bring this up at my next appointment, but thought I’d see if anyone here has had similar numbers. Platelets are at 731. Hematocrit
My neutrophils have steadily risen from 67 to 78.2% over one year while my lymphocytes have decreased from 17.2 to 12.1%. My overall WBC went from 9 to 11.4. I’m going to bring this up at my next appointment, but thought I’d see if anyone here has had similar numbers. Platelets are at 731. Hematocrit
Lena70
in
MPN Voice
8 months ago
No improvement to tiredness after B12 injections
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
I have been having B12 injections since being diagnosed with pernicious anaemia 18 years ago. I never feel an improvement in energy levels and tiredness after an injection.When my dad had his injections for P.A. decades ago he would always say he could feel when his injection was due because of increased
Suesue246
in
Pernicious Anaemia Society
8 months ago
B12 very high with normal blood results?.
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
hey, hoping someone with some b12 knowledge can give me some advice for when I see my doctor. Last year I was having some b12 injections paid privately, my last one was in early August. They actually made me feel better, but had to stop because of cost. Then in October I started getting severe deficient
Jodie782
in
Pernicious Anaemia Society
5 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
5 months ago
New ER for low hemoglobin
I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER, and last night’s ER doctor did not do all the bloodwork she wanted even though the two hospitals are in the same system. I chose to go to Yale Nee
I am preaching to the choir to tell you that the US healthcare is a mess. I still do not have answers or a transfusion. My hem/onc wanted me back in the ER, and last night’s ER doctor did not do all the bloodwork she wanted even though the two hospitals are in the same system. I chose to go to Yale Nee
Goopteal
in
CLL Support
8 months ago
My Efforts to Educate the Scientific Community
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
I have written an article about my RLS experience which I have been working to disseminate in the medical and research communities. The bulk of the article follows: The medical community is generally unaware of the benefit of a low oxalate diet for treatment of RLS. In 2015, after 5 years of closely
notnowdad
in
Restless Legs Syndrome
9 months ago
Iron Test
Hi I just wanted to check if there was a best time of the day to have a blood test for iron as there is for thyroid. Many thanks
Hi I just wanted to check if there was a best time of the day to have a blood test for iron as there is for thyroid. Many thanks
Llobs
in
Thyroid UK
9 months ago
Help with additional test results please
Further to previous posts I now have results of additional blood tests which were suggested. To recap, my thyroid function tests results were as follows: TSH 0.52 mu/L (normal range 0.27 -4.2 ) FT3 3.6 pmol/L (normal range 3.1 - 6.8) FT4 20.5 pmol/L (normal range 12 - 22) Additional test results
Further to previous posts I now have results of additional blood tests which were suggested. To recap, my thyroid function tests results were as follows: TSH 0.52 mu/L (normal range 0.27 -4.2 ) FT3 3.6 pmol/L (normal range 3.1 - 6.8) FT4 20.5 pmol/L (normal range 12 - 22) Additional test results
m0dgal1
in
Thyroid UK
9 months ago
Folate levels
Hi I recently started SI twice a day thanks to the advice of the wonderful people here I recently had surgery and this seems to have thrown my B12 levels out of wack. My twitching has been moderate the past week which I put down to the extra B12 although I hoped it would settle down.Having the odd
Hi I recently started SI twice a day thanks to the advice of the wonderful people here I recently had surgery and this seems to have thrown my B12 levels out of wack. My twitching has been moderate the past week which I put down to the extra B12 although I hoped it would settle down.Having the odd
SKYROCKET123
in
Pernicious Anaemia Society
9 months ago
Thyroid and anaemia
I have just been told I have serious anaemia and will have an iron injection on Thursday. Can you tell me if there's any connection, or contraindication with my hypothyroidism? Thank you
I have just been told I have serious anaemia and will have an iron injection on Thursday. Can you tell me if there's any connection, or contraindication with my hypothyroidism? Thank you
Lassitude1
in
Thyroid UK
9 months ago
Can anyone recommend a good haematologist or Neurologist for pernicious anaemia
Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they won't act on any recommendation from a private doctor). Many of my neurological symptoms, although much improved, never went away completely
Hi can anyone recommend a haematologist or neurologist who has a good understanding of pernicious anaemia anywhere in England? (Needs to be NHS as GP said they won't act on any recommendation from a private doctor). Many of my neurological symptoms, although much improved, never went away completely
Rett713
in
Pernicious Anaemia Society
5 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
5 months ago
Just diagnosed with autoimmune atrophic gastritis with intestinal metaplasia
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
I assume this is the root cause of my pernicious anemia? I have an appointment this week to discuss with GI, but want to go into the appointment educated. Does anyone else have this? Any treatment for this? I’m already on EOD (for last two weeks) B12 shots and multivitamins. Thanks in advance for your
ReallyWondering
in
Pernicious Anaemia Society
5 months ago
Head problems
I posted an email a few months ago about the fact I have now received my results of various tests on my head, and Pro very kindly replied. I printed it off, but no date on it unfortunately, and I couldn't find my original post. The subject was about subluxation, and there was a lady who said she had
I posted an email a few months ago about the fact I have now received my results of various tests on my head, and Pro very kindly replied. I printed it off, but no date on it unfortunately, and I couldn't find my original post. The subject was about subluxation, and there was a lady who said she had
Purplegloss
in
PMRGCAuk
9 months ago
Trials and Tribulations.
I did a trial of 1.5 mg methylcobalamin 4 times a day and that was positive. I then increased physical activity and had 3 days of a downturn and recovered. I then reduced to .75 mg with no decline. I increased physical activity for three days and had a downturn. I then added .06 mg of methylcobalamin
I did a trial of 1.5 mg methylcobalamin 4 times a day and that was positive. I then increased physical activity and had 3 days of a downturn and recovered. I then reduced to .75 mg with no decline. I increased physical activity for three days and had a downturn. I then added .06 mg of methylcobalamin
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
why s mch rising now asI am SI daily??
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
just another quick question! I'm on SI b12 daily and just received my blood test results back Can anyone explain why my MCH is rising? I know this is an indicator of low b12 but it was getting lower and is now rising even though I am on daily b12 It isn't a huge difference but I am interested in why
brenanddave
in
Pernicious Anaemia Society
9 months ago
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