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Umbilical Endometriosis surgery
Hello! I’m a new member with long-term umbilical endometriosis. I’m going to see a surgeon tomorrow (the fourth one I’ve seen now - loooong story), but he is in the colorectal department. I’ve been reading up on some bellybutton surgeries for endo, but most of them seem to have been performed by a gynaecologist
Hello! I’m a new member with long-term umbilical endometriosis. I’m going to see a surgeon tomorrow (the fourth one I’ve seen now - loooong story), but he is in the colorectal department. I’ve been reading up on some bellybutton surgeries for endo, but most of them seem to have been performed by a gynaecologist
YellowCar22
in
Endometriosis UK
5 months ago
Success with GP - for now
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Just had an appointment with my GP and after lots of persuasion and me quoting NICE guidelines at him, he's agreed to reinstate my previous daily 100mcg Levo. 🥳This does come with the condition of reassessing in 6-8 weeks after bloods done. (I'll cross that bridge when I get there) I got the usual
Jingley
in
Thyroid UK
3 hours ago
newly diagnosed anemia
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
Hi. I’m new to HealthUnlocked and to this group. I’m also in America, so I hope it’s OK that I post here. I’ll try to put in all the info I have and follow proper posting guidelines. It’s taken me a while to be able to get this post all typed up due to tiredness and brain fog. I just had 3 month follow-up
SugarMint
in
Thyroid UK
14 hours ago
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Muscle Damage
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Hi all. I’m wondering if any of you have experienced muscle damage from self-injecting, and if so how did you know? How long did it take to heal? The last couple of months or so, it seems like I’m having an increasingly difficult time injecting my thighs. The injection itself seems to go really well
Cobalt1312
in
Pernicious Anaemia Society
22 hours ago
Help with blood test results, please.
I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given the six loading doses and injections every 12 weeks. After about two years I was able to get them changed to every 8 weeks. Although that did seem to help I am still not feeling myself. I keep track of all of my blood
I was diagnosed with B12 Deficiency with Pernicious Anemia in 2018. I was given the six loading doses and injections every 12 weeks. After about two years I was able to get them changed to every 8 weeks. Although that did seem to help I am still not feeling myself. I keep track of all of my blood
rubyone
in
Pernicious Anaemia Society
22 hours ago
Peginterferon and platelets
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
I started taking peginterferon 45 mg in November 2023 with a platelet count of 860. Since then, my bloods have been checked monthly, and my dose gradually increased. On Monday I will start 180 mg, alternating the dose weekly with 135 mg for a month, as my platelet count is now 665 and my Haematologist
Lyndjs
in
MPN Voice
22 hours ago
A long shot…
Hi, I’m usually posting to the pernicious anaemia forum but I’m also hypo. I have downloaded the list containing NHS endocrinologists and I was wandering? I’m on a journey to discover, on behalf of my GP, whom he can write to in the NHS (a consultant) who is sympathetically knowledgeable concerning B12D
Hi, I’m usually posting to the pernicious anaemia forum but I’m also hypo. I have downloaded the list containing NHS endocrinologists and I was wandering? I’m on a journey to discover, on behalf of my GP, whom he can write to in the NHS (a consultant) who is sympathetically knowledgeable concerning B12D
B12again
in
Thyroid UK
2 days ago
some advice needed please
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Hi I’m going to see Dr Klein in Cambridge as recommended by some of you guys, he has sent links to order theses products from Medisave Sharpsguard yellow 2.5ltr sharps bin professional 70% Alcohol IPA Pre- Injection Swabs x 100 BD Discardit 2 ml Concentric Tip Syringe 2 Piece x 100
Windyway
in
Pernicious Anaemia Society
2 days ago
Help please to understand blood test results a month after c vaccine
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
Hi! I have no idea what is going on with me. I have been Si daily and twice daily sometimes for 6 mths now and am taking all cofactors.My blood tests have come back today with high MCH and MCV has climbed. I had a c vaccine a mth ago and every thing flared up exhaustion neuropathy etcblurred vision
brenanddave
in
Pernicious Anaemia Society
2 days ago
Methyl or Hydro B12 injections - is it safe to switch between both each month?
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
Is it safe to switch between different types of B12 injections? For example, one month I take the hydroxocobalamin injection and the next month i take the methylcobalamin injection? I feel better with methylcobalamin , but I’m only prescribed the hydroxocobalamin but I’m thinking to take methylcobalamin
LaraPA
in
Pernicious Anaemia Society
3 days ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
3 days ago
Accessing Iron Infusion
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid 20s and it has slowly gotten worse. I am now 35 and have tried a number of different medications one being ropinirole which I have successfully
Xicara
in
Restless Legs Syndrome
4 days ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
6 days ago
anemia
I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit are going down, has anyone else had this problem? What does this mean?
I have been on watch and wait for three years, I mostly had SLL, with alot of lymph node involvement. The last couple of months my hemoglobin and hematocrit are going down, has anyone else had this problem? What does this mean?
Gino23
in
CLL Support
7 days ago
Is carvedilol making you cold?
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
I recently had my Carvedilol increased to 6.25mg twice a day. Lately, I am freezing to the bone. I turn my heating up and up and am still cold when everyone else says its like a sauna. I just wondered if anyone else has this? It could also be my recent addition of diabetes medication, Sitagliptin. Never
Erish
in
British Liver Trust
7 days ago
Just having a bad day
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
April hasn't been a good month for me and synotoms. Been on only 50mcg levo since end of September. Only JUST this week got an increase to 75 thanks to the private bloods I did due to recommendations on this site. First I caught a sinus cold at the start of Easter break, which triggered a flare up
Obsdian
in
Thyroid UK
7 days ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
7 days ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
9 days ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
9 days ago
A victory with my NHS GP! 🥳
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
I just wanted to share my joy that I've won my battle with my local surgery to get my EOD B12 injections on NHS prescription! After complaining in a persistent and factual manner about their handling of my health issues, I asked for them to provide injectable B12 over a pill that my stomach can't absorb
ClaireWF1346
in
Pernicious Anaemia Society
9 days ago
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