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Aortic valve disease
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RITUXIMAB
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
eyeBRing
in
PMRGCAuk
8 months ago
Enzalutamide (Xtandi): Start at half standard dose to extend efficacy time span?
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
Good Morning AllI was disgnosed 6 years ago with oligometastic prostate cancer Gleeson 8, PSA 22. Since January 2018 I have been on ADT, had docetaxel chemo in April 2018, radiotherapy to the prostate, seminal vessel and pelvis in November 2018 when PSA dropped to <0.1. PSMA PET CT scan in March 2019
KGU1
in
Advanced Prostate Cancer
8 months ago
Post cardioversion
1 week post cardioversion and am in NSR, and no palpitations any more. However I am still feeling exhausted and steps and hills are a real problem ........anyone else had the same experience ?
1 week post cardioversion and am in NSR, and no palpitations any more. However I am still feeling exhausted and steps and hills are a real problem ........anyone else had the same experience ?
OldTown
in
AF Association
5 months ago
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Zoloft and parkinson's
I take Zoloft (Sertraline) 100mgs daily. I have been on this medication for many years before the parkinson's diagnosis. My hand tremors are not stopping after starting 6 weeks ago C/L 25/100 (generic Sinemet) 1 pill, three times a day? My family Doc said that maybe the Zoloft is the reason for the continuity
I take Zoloft (Sertraline) 100mgs daily. I have been on this medication for many years before the parkinson's diagnosis. My hand tremors are not stopping after starting 6 weeks ago C/L 25/100 (generic Sinemet) 1 pill, three times a day? My family Doc said that maybe the Zoloft is the reason for the continuity
Patitou
in
Cure Parkinson's
8 months ago
Unsure what to do?
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
Yesterday [Friday 22nd Sept] I recieved a call from the Hospital treating my Cirrhosis to inform me they have had a request from my Heptoligy Doctor for a Biopsy due to them not being able to determine the cause of continued elevating blood results, they have had a cancellation for Monday [25th]. This
tipovtong
in
British Liver Trust
8 months ago
Next Oxfordshire Lupus Group meeting - 6th December 2pm!
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
Following a successful first meeting for the Oxfordshire Lupus Group, we are thrilled to announced our next virtual meeting, which will be the 6th December at 2pm. This is a fantastic opportunity to meet others with lupus and associated conditions, friends and family also welcome to join! If you would
michaellasmith
Administrator
in
LUPUS UK
6 months ago
No treatment offered for A F
I rang a friend last night who has had permanent AF for about 6 years. She's now 83 and lives in the Black Mountains in Wales. The only treatment she's ever had is warfarin , bisopralol and something else she couldn't remember the name of. She's never been offered cardioversion, ablation or anything
I rang a friend last night who has had permanent AF for about 6 years. She's now 83 and lives in the Black Mountains in Wales. The only treatment she's ever had is warfarin , bisopralol and something else she couldn't remember the name of. She's never been offered cardioversion, ablation or anything
Qualipop
in
AF Association
5 months ago
Blip but back on track
As some of your are aware, I’ve been a bit unwell,unfortunately I contracted Pneumonia, instead of resting I decided I knew best and continued with my plans granted more slowly but continued none the less. By Saturday I was feeling much better, then wham irregular heart beat, got home about 3 hrs later
As some of your are aware, I’ve been a bit unwell,unfortunately I contracted Pneumonia, instead of resting I decided I knew best and continued with my plans granted more slowly but continued none the less. By Saturday I was feeling much better, then wham irregular heart beat, got home about 3 hrs later
4chickens
in
AF Association
5 months ago
Updates to the EULAR guidelines on managing lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
The European Alliance of Associations for Rheumatology (EULAR) have updated their guidelines on how doctors should manage lupus. You can find out about how these guidelines are used in the UK, and how they've been updated, on our website here: https://lupusuk.org.uk/updates-to-the-eular-guidelines-on-managing-lupus
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Not good news on my heart........
Well it wasn't good news yesterday. I found out it i had arterial stenosis and my valve was blocked. So i am a lot worse than i thought, mind you i really didn't know how ill i really was. The consultant showed Bob and i my MRI scan that i had and he explained what had happened to me. He also explained
Well it wasn't good news yesterday. I found out it i had arterial stenosis and my valve was blocked. So i am a lot worse than i thought, mind you i really didn't know how ill i really was. The consultant showed Bob and i my MRI scan that i had and he explained what had happened to me. He also explained
sylvi
in
NRAS
5 months ago
In a sexual relstionship with someone who has Lupus type SLE.
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
How do i maintain a healthy sexual relationship with someone who has Lupus. At times frustrated how do i treat person. Feel like have to be careful delicate with him. I cannot be in control and neither can he. Treating him very delicately intimacy problems sometimes communication barrier. Anyone advice
Tameeka723
in
LUPUS UK
6 months ago
Into the 2nd phase?
Hello Had PAF for over 11 years...11 days ago I flipped into AF and haven't really been out of it much. Was taking PIP bisoprolol which slowed it down to an ok level...it used to fix it so I'd return to NSR. Not this time. A few calls to the Arrythmia nurses and they call me into their clinic. Sent
Hello Had PAF for over 11 years...11 days ago I flipped into AF and haven't really been out of it much. Was taking PIP bisoprolol which slowed it down to an ok level...it used to fix it so I'd return to NSR. Not this time. A few calls to the Arrythmia nurses and they call me into their clinic. Sent
Harrison1
in
AF Association
5 months ago
Update on my first EP visit & recomendation
Hi guys. Just wanted to give you an update on my first visit to EP. In short, after she carefully looked at my complete documentation (afib diagnose 2 months ago) she advised me to proceed with ablation. Her main arguments are following -I'm relatively young (40) and ablation has the best outcome in
Hi guys. Just wanted to give you an update on my first visit to EP. In short, after she carefully looked at my complete documentation (afib diagnose 2 months ago) she advised me to proceed with ablation. Her main arguments are following -I'm relatively young (40) and ablation has the best outcome in
NewOne2023
in
Atrial Fibrillation Support
5 months ago
Thoughts and Help
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hidden
in
LUPUS UK
6 months ago
Help Develop a Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Please consider being part of the COMPASS Study here: https://malecare.org/compass-study/ "Development and Validation of Sexual Quality of Life Questionnaire for Men-Who-Have-Sex-with-Men with Prostate Cancer" This study aims to develop a sexual function survey specific for men who have sex with men
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
transplant and rheumatoid arthritis
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
partner was listed then delisted as condition improved , now diagnosed with Rheumatoid Arthritis and of course off he goes a googling and finds some random site in the US that says you cannot have a transplant with autoimmune disease such as RA. Of course we hope he never needs a transplant but we need
Rshc
in
British Liver Trust
6 months ago
Abaris
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Hello everyone, I'm still on the quest for wellness. I was wondering if anyone had tried Abaris which is a TRH . Quite new on the market I think. I'm piling the weight on as I can't treat my thyroid without reacting to the meds. I was looking further upstream at TRH. I live in the UK so probably wouldn't
Sooty101
in
Thyroid UK
8 months ago
Interesting Article (please read)
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
came across this article today and would like to know your thoughts: i was swayed by flashy advertising in the late 1990s featuring medical stars like Professor Lord Winston, who convinced me that omega-3 fish oil supplements were essential for my brain and my heart. Fast forward to today, and
Padayn01
in
AF Association
5 months ago
Left atrial enlargement
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
Hello!I was wondering if anyone has experience of this. What can be done about it, is it reversible with optimal levo? For context, I have Hashi's, I'm 51 and currently experiencing another bout of terrible anxiety ( last time was 5 years ago). Tests have discovered the enlarged LA. I don't have any
MPG1972
in
Thyroid UK
1 year ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
8 months ago
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