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Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
Malar Rash
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Hi guys I was wondering what your opinion of this rash is? Does it look like a lupus rash? I’m in the MCTD and I’m on methotrexate and hydroxychloroquine. I get these rashes in a variety of different ways, always driven by sun, heat, stress or medications. Are there any other autoimmune disorders
Tonkie
in
LUPUS UK
2 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
2 months ago
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Help on blood test results
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Peppermints
in
LUPUS UK
2 months ago
Hypothyroid and loose stools.
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hellodoll
in
Thyroid UK
2 months ago
Fibroscan update
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Hello. I had a fibroscan at a BLT roadshow 6 months ago which scared me as it was 11.7kpa and cap 218. I'm a 45yo female. I was sent for an ARFI ultrasound after this by my GP, which scored me as being at the lower end of F2 fibrosis ( 1.25m/s) with mild to moderate fatty infiltration. The ultrasound
Dontworrydarling
in
British Liver Trust
6 months ago
Ambroxol update
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
I just received this from PD front line: Dear Mr..In January of this year, Cure Parkinson’s and partners announced funding for the starting up of a Phase 3 clinical trial to evaluate the disease modifying potential of a cough medicine called ambroxol in people with Parkinson’s. Preclinical data in models
CuriousMe12
in
Cure Parkinson's
6 months ago
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
2 months ago
questions after tadiotherapy?
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
Hi all What questions should I ask my radio oncologist as we finish up radiotherapy for oligo metastatic prostate cancer Which included radiation of distant metastatic lymph nodes, as well as the prostate and local pelvic lymph nodes? Also should I expect him to recommend a follow up psma pet-ct scan
pj1121
in
Advanced Prostate Cancer
6 months ago
husband with CRPC needing advice
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Dearest fellow Warriors, I am new to the forum and appreciate reading your stories and advice. June 2009, my husband was diagnosed with Prostate Cancer with a PSA of 18 and Gleason 7 - Aug 2009, Radical Prostatectomy - PSA was .03 for two months, then began steadily rising - January 2012, 35 radiations
Betsyhrd
in
Advanced Prostate Cancer
6 months ago
I just need to vent!
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Hi all, I’ve just had an appointment that I’ve waited over two years for regarding my Meralgia Paraesthetica. My thigh has been numb for over 20 years following a Cesarean section but in the last two years, it feels like it’s had acid thrown over it. The guy I spoke to said that there’s nothing they
Bramble2000
in
PMRGCAuk
6 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
2 months ago
RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
2 months ago
TSH Level
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
2 months ago
A puzzle
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
MrsMarigold
in
LUPUS UK
2 months ago
Autoimmune diseases and mental health
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
random901
in
PMRGCAuk
2 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
2 months ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
2 months ago
Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
2 months ago
help - prostate cancer with bone metastasis in bones - patient 70 years old - PERU
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
Good morning, my dad (70 years old) was diagnosed with prostate cancer (stage 4) in June last year, he had plasma surgery to remove his prostate and cut off his testicles. In March of this year, his PSA rose to 16. In June due to an injury problem, an MRI was performed on his spine in which it was seen
DiegoFerruaPE
in
Advanced Prostate Cancer
6 months ago
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