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Generic TCZ---is it available in the UK?
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
Grammy80
in
PMRGCAuk
2 months ago
Prostate cancer
My prostate condition started around eight years ago when I had urinary track infection which also led to prostatitis. Ever since then, my PSA jumped from 2 to 7.8 during the last 5 years. I had two biopsies… first one, four years ago, they detected no positive cancer cells in my prostate. However
My prostate condition started around eight years ago when I had urinary track infection which also led to prostatitis. Ever since then, my PSA jumped from 2 to 7.8 during the last 5 years. I had two biopsies… first one, four years ago, they detected no positive cancer cells in my prostate. However
Yuncoinc7148
in
Fight Prostate Cancer
6 months ago
Sipuleucel-T (Provenge®) Will it work for PC?
Will this immunotherapy vaccine treatment work for PC?
Will this immunotherapy vaccine treatment work for PC?
Stevegr
in
Advanced Prostate Cancer
2 months ago
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Liver Biopsy report, can anyone interpret?
Hello all, got my cirrhosis dx in march from a biopsy, however I have the full report, is there anything else of note from it other than I have cirrhosis from fat in the liver? The biopsy followed a high fibroscan read of 30.7kPa. Thank you Specimen: Liver, very high fibroscan reading ?cirrhosis
Hello all, got my cirrhosis dx in march from a biopsy, however I have the full report, is there anything else of note from it other than I have cirrhosis from fat in the liver? The biopsy followed a high fibroscan read of 30.7kPa. Thank you Specimen: Liver, very high fibroscan reading ?cirrhosis
aranshaw
in
British Liver Trust
6 months ago
Liver issues
Hi everyone, i have history of alcohol abuse from past 6 years and i left alcohol from 1 year. I had done liver elastography and mean ARFI comes 1.07m/sec and afetr 3 days i had done fibbroscan whih shows median stiffnes 9 kpa.After that i left alcohol and complete absebteeism from 1 year. Few months
Hi everyone, i have history of alcohol abuse from past 6 years and i left alcohol from 1 year. I had done liver elastography and mean ARFI comes 1.07m/sec and afetr 3 days i had done fibbroscan whih shows median stiffnes 9 kpa.After that i left alcohol and complete absebteeism from 1 year. Few months
Jhon789
in
British Liver Trust
6 months ago
Still confused about PSA and Testosterone testing
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
I have been reading posts here for some time and there seems to be a split between those who only get PSA tests each time they go to their doctors and those that get both tests each time. I had a baseline testosterone test before Lupron and before radiation. I am now doing my 6 month follow up and
Mgtd
in
Advanced Prostate Cancer
6 months ago
Thyroid ultrasound
HiHad pain in side of neck and behind ears. Gp sent me for thyroid ultrasound as have underactive thyroid and hashimotos. Ultrasound was 2 minutes long and even the assistant tech said that was quick. Has anybody else had a thyroid scan that quick? Felt like he started scan then just stopped. Wierd
HiHad pain in side of neck and behind ears. Gp sent me for thyroid ultrasound as have underactive thyroid and hashimotos. Ultrasound was 2 minutes long and even the assistant tech said that was quick. Has anybody else had a thyroid scan that quick? Felt like he started scan then just stopped. Wierd
Jenni55
in
Thyroid UK
2 months ago
Need Prostate Cancer Support Group. Need group that has been around for awhile,informative & nice guys..Experienced with Hypogonadal and TRT
Need Prostate Cancer Support Group... Need group that has been around for awhile..meets at night...west coast preferred but anywhere, informative and nice guys..please reply with contact info...experienced with hypogonadal & TRT if possible..a plus..thanks
Need Prostate Cancer Support Group... Need group that has been around for awhile..meets at night...west coast preferred but anywhere, informative and nice guys..please reply with contact info...experienced with hypogonadal & TRT if possible..a plus..thanks
JWS13
in
Advanced Prostate Cancer
6 months ago
Sterlings Reply
Please forgive the lateness but here it is:Four years after prostectomy my psa began to rise. I had eight weeks of radiation to the prostate bed. Psa returned to nondetectable for eleven years. Two years ago my psa began to rise at an alarming rate it was doubling monthly if not more. I started eligard
Please forgive the lateness but here it is:Four years after prostectomy my psa began to rise. I had eight weeks of radiation to the prostate bed. Psa returned to nondetectable for eleven years. Two years ago my psa began to rise at an alarming rate it was doubling monthly if not more. I started eligard
Praying2BHealthy
in
Advanced Prostate Cancer
6 months ago
Notes for upcoming GP appointment
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Apologies as this is a long read 🙃 I've got a GP appointment booked for 9th May, with a doctor I've not seen before and who is relatively new to the practice. I'm wanting to ask for a Rheumatology referral and have written the below out as a crib sheet for me to take in. I'd appreciate any thoughts
Wispymisty
in
LUPUS UK
2 months ago
Another cause of Pernicious Anaemia?
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
wedgewood
in
Pernicious Anaemia Society
2 months ago
Recompensated Liver.
HI folks.First of all Merry Christmas to you all. I was diagnosed with Decompensated Cirrhosis in 2021 and after having all my scheduled MRI Liver/ spleen scans my results have all came back no features of concern.. AFT blood monitoring results normal range. The only symptom I had was jaundice in my
HI folks.First of all Merry Christmas to you all. I was diagnosed with Decompensated Cirrhosis in 2021 and after having all my scheduled MRI Liver/ spleen scans my results have all came back no features of concern.. AFT blood monitoring results normal range. The only symptom I had was jaundice in my
Nip1
in
British Liver Trust
6 months ago
Webinar - Navigating Arthritis: The Young Adult Perspective
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
Please join our next webinar Navigating Arthritis: The Young Adult Perspective, where we will discuss what it’s like to live with arthritis at a younger age. From navigating symptoms, looking after physical and emotional health, socialising and managing relationships, to taking control of medical appointments
arthritis_action
Partner
in
Arthritis Action
2 months ago
He and liver disease
I am so scared about damage to my liver , I’m worried I have Hepatic encephalopathy. I stupidly took to many over the counter tablets over a course of a month ( paracetamol) , I ended up in ANE but blood work come back ok and wasn’t ever treated however I’m worried I left it to long to go to the hospital
I am so scared about damage to my liver , I’m worried I have Hepatic encephalopathy. I stupidly took to many over the counter tablets over a course of a month ( paracetamol) , I ended up in ANE but blood work come back ok and wasn’t ever treated however I’m worried I left it to long to go to the hospital
Chickenlady34
in
British Liver Trust
6 months ago
Importance of ADT
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
Are there any good outcomes without using ADT ( hormone therapy)? I delayed it for a couple of years with bad results. My history -- [u]
2021
[/u]: Age 78. PSA was 7.79, Gleason 4+3=7. Small lesion in prostate, with perineural invasion. Had 20 IMRT for prostate. No ADT. [u]
2022
[/u]: PSA
vintage42
in
Advanced Prostate Cancer
6 months ago
Johnny
just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help
just been diagnosed with lupus . I’m 55 and would like advice on how to control symptoms and what foods or supplements help
Johnnyfay
in
LUPUS UK
2 months ago
SC in Australia
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
Hi everyone,I've got a packet of B12 (I'm in Australia and it's the Neo brand) and I'm thinking of injecting it SC. The problem is it says 'for IM use only'. It's hydroxocobalamin chloride 1mg in 1mL and the other ingredients are sodium chloride, water and acetic acid. Does anyone know if this sort
greenscarf
in
Pernicious Anaemia Society
1 year ago
Novel Drug Made of Gold Nanocrystals Appears Safe in Multiple Sclerosis
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
Small study suggested benefits for MS patients with chronic optic neuropathy
https://www.medpagetoday.com/meetingcoverage/aan/109777?xid=nl_mpt_DHE_2024-04-22&eun=g588185d0r&utm_source=Sailthru&utm_medium=email&utm_campaign=Daily%20Headlines%20Evening%202024-04-22&utm_term=NL_Daily_DHE_dual-gmail-definition
BettysMom
in
My MSAA Community
2 months ago
Multiple Sclerosis Predicted by Autoantibody Signature
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
A specific autoantibody signature was seen in a subset of people with multiple sclerosis (MS) long before clinical symptoms appeared, blood samples showed.
https://www.medpagetoday.com/neurology/multiplesclerosis/109767?xid=nl_mpt_morningbreak2024-04-22&eun=g588185d0r&utm_source=Sailthru
BettysMom
in
My MSAA Community
2 months ago
Survey about patient care
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey : https://ipsos.uk/RAIRDAsurvey2024 The aim of the survey is to provide valuable insights into what is working well and areas of improvement in patients' care. The survey in
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
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