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Antihemophilic factor
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‘Normal’ B12 level but antibodies can it be P.A.?
I am struggling at the moment with chest tightness, shortness of breath and have been to the GP and A&E and understandably investigations have taken us down respiratory/cardiac route. They seem to be OK I have had two ECG and blood tests results of the second lot are in process. I have Hashimotos hypothyroid
I am struggling at the moment with chest tightness, shortness of breath and have been to the GP and A&E and understandably investigations have taken us down respiratory/cardiac route. They seem to be OK I have had two ECG and blood tests results of the second lot are in process. I have Hashimotos hypothyroid
Sususulio
in
Pernicious Anaemia Society
6 years ago
Testing Intrinsic Factor and others
Can you test for intrinsic factor while on supplementation? I also have had redux and burning for several years and wonder if the PA test will also be accurate? I have several autoimmune issues...RA, gluten intolerant, hashimotos thyroid diagnosed on pathological report, but antibody test now was fine
Can you test for intrinsic factor while on supplementation? I also have had redux and burning for several years and wonder if the PA test will also be accurate? I have several autoimmune issues...RA, gluten intolerant, hashimotos thyroid diagnosed on pathological report, but antibody test now was fine
Shashapoo
in
Pernicious Anaemia Society
6 years ago
A little advice re: blood test if possible?
Hi all, I've popped over here from the PAS forum as I've recently had my Thyroid Function Test results back. A little background info, it was discovered that I didn't have the intrinsic factor when I was about 10 years old so had PA. Nothing was ever mentioned about it after that. I have always been
Hi all, I've popped over here from the PAS forum as I've recently had my Thyroid Function Test results back. A little background info, it was discovered that I didn't have the intrinsic factor when I was about 10 years old so had PA. Nothing was ever mentioned about it after that. I have always been
wendybee
in
Thyroid UK
6 years ago
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8 years of anemia despite PA diagnosis and consistent treatment
This will be quite long as my history with anemia has been ongoing and frustrating for years (as well as confounding to my doctors). I was diagnosed with PA 8 years ago with "marginally low" B12 (US 212 with range 200-900), positive intrinsic factor blocking antibody test, and macrocytic anemia. I was
This will be quite long as my history with anemia has been ongoing and frustrating for years (as well as confounding to my doctors). I was diagnosed with PA 8 years ago with "marginally low" B12 (US 212 with range 200-900), positive intrinsic factor blocking antibody test, and macrocytic anemia. I was
Bandit224
in
Pernicious Anaemia Society
6 years ago
Newly diagnosed, but long time sufferer
Dear all ... I hope you can all help to shed some light on the following. I recently had a raft of blood tests after many, many years of avoiding them ( chronic needle phobe, I'm afraid ). Blood tests revealed that both my haemoglobin and B12 levels were low. My B12 was at the bottom of the scale at
Dear all ... I hope you can all help to shed some light on the following. I recently had a raft of blood tests after many, many years of avoiding them ( chronic needle phobe, I'm afraid ). Blood tests revealed that both my haemoglobin and B12 levels were low. My B12 was at the bottom of the scale at
ITM69
in
Pernicious Anaemia Society
6 years ago
Non specific gastritis, I’m not really sure what that means! 😏
Hi everyone, I had a positive Intrinsic factor test 3 yrs ago along with a low b12 serum level, I was then diagnosed with PA (after many years of various symptoms) I had b12 loading doses then monthly injections ever since which eventually helped some of my symptoms. Recently I’ve had oesophageal and
Hi everyone, I had a positive Intrinsic factor test 3 yrs ago along with a low b12 serum level, I was then diagnosed with PA (after many years of various symptoms) I had b12 loading doses then monthly injections ever since which eventually helped some of my symptoms. Recently I’ve had oesophageal and
Sleepyfromwales
in
Pernicious Anaemia Society
6 years ago
Positive for parietal cell antibodies
Hi everyone, I'm 30 years old and have been seeking a reason for feeling incredibly ill with a whole range of symptoms for over a decade. After using Blue Horizon I found a few years ago that I had hashimotos and so commenced a long battle to get treatment. I am now on Levothyroxine but feeling no better
Hi everyone, I'm 30 years old and have been seeking a reason for feeling incredibly ill with a whole range of symptoms for over a decade. After using Blue Horizon I found a few years ago that I had hashimotos and so commenced a long battle to get treatment. I am now on Levothyroxine but feeling no better
Sick-and-Tired
in
Pernicious Anaemia Society
6 years ago
Is pernicious anaemia likely?
Hi everyone, I'm 20 and I've been experiencing intense B12 deficiency symptoms since December, and have been housebound or bedbound due to muscle weakness and fatigue and inappropriate sinus tachycardia. I suffered extreme weight loss, and have a symptom list as long as my arm, all of which correlate
Hi everyone, I'm 20 and I've been experiencing intense B12 deficiency symptoms since December, and have been housebound or bedbound due to muscle weakness and fatigue and inappropriate sinus tachycardia. I suffered extreme weight loss, and have a symptom list as long as my arm, all of which correlate
rebecca98
in
Pernicious Anaemia Society
6 years ago
Anti VEGF help
Hi there, I wonder if anyone else has had lasting side affects after anti VEGF? During the first injections, I had a feeling of pressure in my right eye but no pain. In my left eye it hurt quite a bit. I was left with blood in the eye for around 5 days, as well as a headache for about a week. The second
Hi there, I wonder if anyone else has had lasting side affects after anti VEGF? During the first injections, I had a feeling of pressure in my right eye but no pain. In my left eye it hurt quite a bit. I was left with blood in the eye for around 5 days, as well as a headache for about a week. The second
bellapod77
in
Macular Society
6 years ago
Advise on MMA,INSTINCT FAGTOR blood test while I am on b12 1000 mcg sulibgual
Hello Members, I need a advise on blood tests. Finally my Gp agreed to do the following tests but I am on b12 methylcobalmin 1000 mcg subligual & 400 folic, is it best to stop b12 & give blood after a week or can I give my blood anytime ? Please advise. serum b12 serum folate Methymalonic acid intrinsic
Hello Members, I need a advise on blood tests. Finally my Gp agreed to do the following tests but I am on b12 methylcobalmin 1000 mcg subligual & 400 folic, is it best to stop b12 & give blood after a week or can I give my blood anytime ? Please advise. serum b12 serum folate Methymalonic acid intrinsic
Cooljay
in
Pernicious Anaemia Society
6 years ago
Unsure if this could be a thyroid issue and I should see an endocrinologist..?
hi all! I'm new here and wanted to get opinions on my test results. I originally was diagnosed with pernicious anemia after experiencing severe fatigue, shortness of breathe, weight gain, along with some other more minor symptoms. I experienced these symptoms for a year until they grew in severity to
hi all! I'm new here and wanted to get opinions on my test results. I originally was diagnosed with pernicious anemia after experiencing severe fatigue, shortness of breathe, weight gain, along with some other more minor symptoms. I experienced these symptoms for a year until they grew in severity to
hummingbird88
in
Thyroid UK
6 years ago
Castor Oil Packs???
I found this excellent page detailing how to heal your thyroid naturally - most I already do as have been recommended on here and I’m feeling so much better. I’d like to ask if anyone has tried Castor Oil Packs? I’ve heard excellent reviews that they do work and can help detox the liver and help heal
I found this excellent page detailing how to heal your thyroid naturally - most I already do as have been recommended on here and I’m feeling so much better. I’d like to ask if anyone has tried Castor Oil Packs? I’ve heard excellent reviews that they do work and can help detox the liver and help heal
MissFG
in
Thyroid UK
6 years ago
Getting my child diagnosed and treated without doctor
What tests do I need to do for my teenager to rule out pa and can I go ahead and treat her myself as per guidelines . This is my second post today I’m so fed up with incompetent doctors . She has all the symptoms I have and as I am treated with injections I need to know what I can get done as surgery
What tests do I need to do for my teenager to rule out pa and can I go ahead and treat her myself as per guidelines . This is my second post today I’m so fed up with incompetent doctors . She has all the symptoms I have and as I am treated with injections I need to know what I can get done as surgery
Andypandy30
in
Pernicious Anaemia Society
6 years ago
Help with understanding test results?
Hi everyone. In the last 18 months I have had many strange (and as yet undiagnosed) symptoms. Too many to list on here and not bore you all to death but my main worries are leg pains (intermittent claudication), leg weakness/pain, tingling hands/feet, fast heart rate when walking, left sided chest pain
Hi everyone. In the last 18 months I have had many strange (and as yet undiagnosed) symptoms. Too many to list on here and not bore you all to death but my main worries are leg pains (intermittent claudication), leg weakness/pain, tingling hands/feet, fast heart rate when walking, left sided chest pain
pj16
in
Pernicious Anaemia Society
6 years ago
Really upset and frustrated following a hematologist appointment--any ideas?
Hi all, I've posted on here several times after testing positive for the intrinsic factor antibody a month or so ago. Until then, I had had a year of general fatigue, then 3-4 months of increasingly bad fatigue, cracked corners of my mouth, shortness of breath, inability to exercise, forgetfulness/difficulty
Hi all, I've posted on here several times after testing positive for the intrinsic factor antibody a month or so ago. Until then, I had had a year of general fatigue, then 3-4 months of increasingly bad fatigue, cracked corners of my mouth, shortness of breath, inability to exercise, forgetfulness/difficulty
hummingbird88
in
Pernicious Anaemia Society
6 years ago
Cirrhosis makes me sleep all day & night -- any remedies?
Hi! I'm new here. I have had NASH for many years and it has now turned into cirrhosis. I have numerous varices, and had a near-fatal episode of bleeding from my varices a few years ago. The varices have responded well to banding, but I am now astonishingly tired. Sleeping 18 to 22 hours a day is not
Hi! I'm new here. I have had NASH for many years and it has now turned into cirrhosis. I have numerous varices, and had a near-fatal episode of bleeding from my varices a few years ago. The varices have responded well to banding, but I am now astonishingly tired. Sleeping 18 to 22 hours a day is not
RosaRugosa
in
Liver4Life
6 years ago
B12 oral spray
Hi all, could I please have some advice regarding the b12 subligal spray! I have started using this daily and having 4 weekly injection. I have pernicious anaemia which I tested positive for intrinsic factor. So my question is! Is the siblings spray effective? My b12 level atm is 415 at 4 weekly injections
Hi all, could I please have some advice regarding the b12 subligal spray! I have started using this daily and having 4 weekly injection. I have pernicious anaemia which I tested positive for intrinsic factor. So my question is! Is the siblings spray effective? My b12 level atm is 415 at 4 weekly injections
Amynic
in
Pernicious Anaemia Society
6 years ago
Advice Needed Please
Hi There I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic
Hi There I was diagnosed with PA back in March when I went to the Drs with dramatic hair loss and generally not feeling well. Dr done some blood tests and this came back with B12 102 (ng/l) and serum folate 10.4 (ug/l) with testing positive for gastric parietal antibodies but negative for intrinsic
joleen19832
in
Pernicious Anaemia Society
6 years ago
B12 management
With recent bloods of B12 showing 211 (200-) I have just seen gp and was told it was normal and did not require treatment. I had pdf with guidance and argued the point. Was told it had gone up from 133 (180-) 2 years ago and would take time. Advised supplements from Holland & Barrett. I advised I did
With recent bloods of B12 showing 211 (200-) I have just seen gp and was told it was normal and did not require treatment. I had pdf with guidance and argued the point. Was told it had gone up from 133 (180-) 2 years ago and would take time. Advised supplements from Holland & Barrett. I advised I did
LowB12
in
Pernicious Anaemia Society
6 years ago
Moving forward
Saw GP today & plans made: 1. Repeat bloods including intrinsic factor & parietal antibodies etc & look at renal function 2. Liver ultrasound to see if fatty liver 3. ENT referral to include thyroid scan...initially tried to pursuance me recent feeling of choking at night was related to weight, then
Saw GP today & plans made: 1. Repeat bloods including intrinsic factor & parietal antibodies etc & look at renal function 2. Liver ultrasound to see if fatty liver 3. ENT referral to include thyroid scan...initially tried to pursuance me recent feeling of choking at night was related to weight, then
LowB12
in
Thyroid UK
6 years ago
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