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WHAT NOW? FOUR ACES TO BEAT PARKINSON'S...
There is enough space on a sheet of paper to summarise the revolution that is taking place in the world of Parkinson's, even if the information does not reach 99% of sufferers and their families. A revolution on paper, but not yet in real life. What some brave and compassionate neurologists advise
There is enough space on a sheet of paper to summarise the revolution that is taking place in the world of Parkinson's, even if the information does not reach 99% of sufferers and their families. A revolution on paper, but not yet in real life. What some brave and compassionate neurologists advise
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Perfect eyesight only flashing in left eye
I was given a diagnosis first of all of PCNM then PCV I was given PDT treatment on Tuesday who straight away affected my middle vision eyesight of left eye, seen again on Friday and given an Anti Vegf injection I still have the middle vision blur etc My question is will my perfect eyesight return 😔
I was given a diagnosis first of all of PCNM then PCV I was given PDT treatment on Tuesday who straight away affected my middle vision eyesight of left eye, seen again on Friday and given an Anti Vegf injection I still have the middle vision blur etc My question is will my perfect eyesight return 😔
Pgoss
in
Macular Society
3 years ago
Medication query
I was diagnosed with fibromyalgia approx 8 months ago after a lengthy process of elimination. To date I've had 1 appointment with a rheumatologist who asked me a few questions, manipulated my knee joints and then confirmed I don't have rheumatoid arthritis at the moment although my rheumatoid factor
I was diagnosed with fibromyalgia approx 8 months ago after a lengthy process of elimination. To date I've had 1 appointment with a rheumatologist who asked me a few questions, manipulated my knee joints and then confirmed I don't have rheumatoid arthritis at the moment although my rheumatoid factor
Lizangellus
in
Fibromyalgia Action UK
3 years ago
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Low Parathyroid hormone
Hi guys Just a little question to throw out there: I tested positive to intrinsic factor antibody 3 months ago now doing cyano shots monthly and has helped heaps with neuro symptoms. I recently was tested and came back with low parathyroid hormone 8 range 10-65 and need to go back to dr for consult
Hi guys Just a little question to throw out there: I tested positive to intrinsic factor antibody 3 months ago now doing cyano shots monthly and has helped heaps with neuro symptoms. I recently was tested and came back with low parathyroid hormone 8 range 10-65 and need to go back to dr for consult
Bloominflower
in
Pernicious Anaemia Society
3 years ago
4 amazing videos that change the way we look at Parkinson's.
"The real voyage of discovery consists, not in seeking new landscapes, but in having new eyes." Marcel Proust Over the last 40 years, four courageous and compassionate neurologists have investigated the use of various substances to achieve a "miraculous" improvement in patients with many years of
"The real voyage of discovery consists, not in seeking new landscapes, but in having new eyes." Marcel Proust Over the last 40 years, four courageous and compassionate neurologists have investigated the use of various substances to achieve a "miraculous" improvement in patients with many years of
parkinsonshereandnow
in
Cure Parkinson's
3 years ago
Should You Get the COVID-19 Vaccine If You Have a History of Allergic Reactions to Infused or Injectable Medications?
Picture: Covid-19 BMJ Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication.
Biologic Infusions
Nearly as soon as the mRNA COVID-19 vaccines from Pfizer and Moderna were
Picture: Covid-19 BMJ Here’s what you need to know about the current guidance and potential risks of getting a COVID-19 vaccine if you’ve had allergic reactions to infused or injectable medication.
Biologic Infusions
Nearly as soon as the mRNA COVID-19 vaccines from Pfizer and Moderna were
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
Intrinsic Factor Ant Test
Hi again I've been chasing up the result of an IFA test taken in early December. The GP has replied to say she has now chased this with the lab herself and this was the reply . "The lab said the intrinsic factor could not be tested as the B12 level was too high which interferes with the test. The
Hi again I've been chasing up the result of an IFA test taken in early December. The GP has replied to say she has now chased this with the lab herself and this was the reply . "The lab said the intrinsic factor could not be tested as the B12 level was too high which interferes with the test. The
mbb323
in
Pernicious Anaemia Society
3 years ago
Blood Test Results
Hi all 👋 My Endocrinologist team has started an initiative of putting our care Records online so we can view test results. I was seen last January but not seen again till July because of lockdown. I’ve done several Medichecks blood tests and my Endo has seen these. At the July appointment, he took
Hi all 👋 My Endocrinologist team has started an initiative of putting our care Records online so we can view test results. I was seen last January but not seen again till July because of lockdown. I’ve done several Medichecks blood tests and my Endo has seen these. At the July appointment, he took
Aslangal
in
Thyroid UK
3 years ago
Why is this? Sleep related.
Since starting my three loading doses in September my biggest problem has been insomnia and it has been a real struggle. I'm now waiting for the three monthly maintenance dose at the end of January and in sheer desperation I started taking oral B 12 supplements ten days ago. To my astonishment my
Since starting my three loading doses in September my biggest problem has been insomnia and it has been a real struggle. I'm now waiting for the three monthly maintenance dose at the end of January and in sheer desperation I started taking oral B 12 supplements ten days ago. To my astonishment my
firee
in
Pernicious Anaemia Society
3 years ago
Managing endo pain
Hi ☺️ Just wondering if anyone has found a miracle cure for managing endometriosis pain whilst on period 🙏 I get weekly acupuncture, use castor oil packs, take my pain killers days before period is due but nothing seems to be helping manage the pain 😥. Contraception isn't an option at the moment,
Hi ☺️ Just wondering if anyone has found a miracle cure for managing endometriosis pain whilst on period 🙏 I get weekly acupuncture, use castor oil packs, take my pain killers days before period is due but nothing seems to be helping manage the pain 😥. Contraception isn't an option at the moment,
Dolly51
in
Endometriosis UK
3 years ago
Treatment for dry, peeling lips
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
What do you use for Sjogrens dry, peeling lips? I have had lupus for 30 years, and a variety of dry eye and salivary gland issues, that have at times been severe. Been treated for both. Also have dry sinus, and sleep apnea. Even if I use items to prevent mouth breathing during sleeps, lips still
roxanne67
in
The Australian Sjögren's Syndrome Association
3 years ago
B12 deficiency light
Hi all. I have had pernicious anaemia for many years and like many people here, I have struggled with the frequency of injections. To begin with 12 weeks seemed OK, but over the years this was failing to last. My GP put it down to 10 weeks which helped but I was still struggling towards the end so I
Hi all. I have had pernicious anaemia for many years and like many people here, I have struggled with the frequency of injections. To begin with 12 weeks seemed OK, but over the years this was failing to last. My GP put it down to 10 weeks which helped but I was still struggling towards the end so I
Beanydog
in
Pernicious Anaemia Society
3 years ago
Intrinsic factor test
Hey guys, I am getting the intrinsic factor test tomorrow which my doctor highlighted as an unreliable test but managed to convince him to let me have it regardless ! Anyway, I have taken a single b12 supplement yesterday evening. This is probably a dumb question, but will this impact the test? Thank
Hey guys, I am getting the intrinsic factor test tomorrow which my doctor highlighted as an unreliable test but managed to convince him to let me have it regardless ! Anyway, I have taken a single b12 supplement yesterday evening. This is probably a dumb question, but will this impact the test? Thank
Job387
in
Pernicious Anaemia Society
3 years ago
Help convincing doctor to trial b12 injections
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Muddywinter1
in
Pernicious Anaemia Society
3 years ago
Advice please
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body can’t make the b12 I need then I usually get asked why’s that or how does that work and I really struggle to answer,I’m not completely thick I just don’t feel
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body can’t make the b12 I need then I usually get asked why’s that or how does that work and I really struggle to answer,I’m not completely thick I just don’t feel
Hidden
in
Pernicious Anaemia Society
3 years ago
B12 levels pa
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If I’m not absorbing from foods which isn’t to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If I’m not absorbing from foods which isn’t to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
Milley2
in
Pernicious Anaemia Society
3 years ago
Just wondering if this process sounds familiar?
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
BJC1980
in
NRAS
3 years ago
How long before symptoms return
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
wendyhoney
in
Pernicious Anaemia Society
3 years ago
B12 supplements with intrinsic factor
Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gp’s to find
Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gp’s to find
Samsungtracy
in
Pernicious Anaemia Society
3 years ago
IF test
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
BluebellPettle
in
Pernicious Anaemia Society
3 years ago
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