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Vagifem causing flare ups?
I've had a hysterectomy and excision and am currently in surgical menopause, about a year ago started with a return of pain/symptoms. MRI earlier this year showed what seems to be the remains of my RV nodule growing about a cm deep into the rectal wall, plus another nodule elsewhere on the bowel. I've
I've had a hysterectomy and excision and am currently in surgical menopause, about a year ago started with a return of pain/symptoms. MRI earlier this year showed what seems to be the remains of my RV nodule growing about a cm deep into the rectal wall, plus another nodule elsewhere on the bowel. I've
Hidden
in
Endometriosis UK
10 months ago
Update on my father
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
I just wanted to post a quick update on my father. He has metastatic castrate resistant prostate cancer. He’s been on ADT - Eligard shots every 3 months and prednisone + zytiga everyday. It’s challenging as I work with him and see all the ins and outs of his behaviour while on those meds. He remains
jberg22
in
Advanced Prostate Cancer
10 months ago
Body in constant flare like symptoms....
Hi, I've had fibro since 2010, diagnosed 2011, I was managing quite well and managed to hold a part time job for 17 yrs. Unfortunately I lost my job due to pain, swelling and loss of function in my left leg, would have moment of no control, been back and forward for hospital and gp appt. I do have oesteoarthritis
Hi, I've had fibro since 2010, diagnosed 2011, I was managing quite well and managed to hold a part time job for 17 yrs. Unfortunately I lost my job due to pain, swelling and loss of function in my left leg, would have moment of no control, been back and forward for hospital and gp appt. I do have oesteoarthritis
Perdi05
in
Fibromyalgia Action UK
10 months ago
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Met with Radiation Oncologist
Met with radiation oncologist today. His recommendation was Cyberknife, no ADT. He did say that if I felt more comfortable with surgery that there was an "amazing" surgeon within 100 miles that he would recommend. I liked the guy, he has been doing Cyberknife for years and felt that with a co-existing
Met with radiation oncologist today. His recommendation was Cyberknife, no ADT. He did say that if I felt more comfortable with surgery that there was an "amazing" surgeon within 100 miles that he would recommend. I liked the guy, he has been doing Cyberknife for years and felt that with a co-existing
Chasbearcat999
in
Prostate Cancer Network
10 months ago
Appreciate feedback on my going forward plan & timing
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
After 3 years from robotic RP with a 5+4 Gleason score, my PSA moved from zero to .099 ng/mL. See my profile for more data.
August
– Meetings with expert Dr. Collins (Georgetown). Wants to move fast with 5 days for 5 weeks radiation with six months of ADT (Orgovyx) due to my high Gleason from
Murk
in
Prostate Cancer Network
10 months ago
Firmagon vs Lupron vs Orgovyxx
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
Is there any difference in cost/effectiveness? My urologist wanted me to start hormone therapy with Firmagon, but my radiation oncologist wanted me to go on Orgovyxx instead...any thoughts? Thank you!
SilverSeppi
in
Advanced Prostate Cancer
10 months ago
Revisiting Intermittent Therapy in Metastatic Prostate Cancer
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
The A-Dream Phase 2 trial is taking a second look at intermittent therapy for mHSPCa. In the study they hope to answer the question 1. Can intermittent therapy (a break from treatment) for high responders (PSA < .2 over 18-24 mos) on ADT+ARPi be more effective than continuous ADT (the current standard
skiingfiend
in
Advanced Prostate Cancer
10 months ago
Thyroid and HRT?
Hi everyone - sorry for the long post!! I was diagnosed as underactive over 15 years ago (autoimmune) and, as consultant originally explained, I needed to increase levothyroxin dose over the years. For the past few years I've managed reasonably well on 175mcg in winter and 150mcg in summer. I started
Hi everyone - sorry for the long post!! I was diagnosed as underactive over 15 years ago (autoimmune) and, as consultant originally explained, I needed to increase levothyroxin dose over the years. For the past few years I've managed reasonably well on 175mcg in winter and 150mcg in summer. I started
Apollo1
in
Thyroid UK
10 months ago
What study says Zytiga 2 yrs , ADT 3 yrs ?
Im off to see my MO today and am getting close to the 2 yr. mark . All is good so far . I just need to know what was the study that suggests ADT for 3yrs and Zytiga + pred. for 2 yrs . I think tall Allen mentioned it . Thanks , SemperFi , JJ
Im off to see my MO today and am getting close to the 2 yr. mark . All is good so far . I just need to know what was the study that suggests ADT for 3yrs and Zytiga + pred. for 2 yrs . I think tall Allen mentioned it . Thanks , SemperFi , JJ
reconjj
in
Advanced Prostate Cancer
10 months ago
taxotere and PSA
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
adt stopped 9/22, daralutamide mono therapy until 7/23. Three rounds of docetaxel until 7/17/23. PSA rose from 4.9 to 5.1. PSMA scan showed decline in bone Mets. Tried a bit of fasting. Just switched to cabitaxel due to seeming failure of docetaxel based on PSA rise. Wondering if PSA increase was the
CWT53
in
Advanced Prostate Cancer
10 months ago
Just for fun--Amazon product notice
I have ordered beta-glucans from Amazon 16 times. Now I get this message (it had the order number and Amazon product number--it was not spam): Dear Amazon Customer, We write to notify you of a potential safety concern with a product that you purchased on Amazon.com. YOUR ORDER ID: 114-2282517-4981047
I have ordered beta-glucans from Amazon 16 times. Now I get this message (it had the order number and Amazon product number--it was not spam): Dear Amazon Customer, We write to notify you of a potential safety concern with a product that you purchased on Amazon.com. YOUR ORDER ID: 114-2282517-4981047
cigafred
in
Fight Prostate Cancer
10 months ago
Can you reject GNRH analogues? Consequences? Please help.
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
Hi there, I'm going in for my second Endo surgery next week, 9cm endometrioma, and the MRI showed a few other lesions. My last surgery was 6 years ago, and they removed a 16m endometrioma. The surgeon called last week in response to some questions I had and made an offhand remark about having a shot
SeventeenNineteen
in
Endometriosis UK
10 months ago
SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
9 months ago
ovarian cancer symptom?
In February this year I became unwell with raised GGT, weight loss, fever terrible headaches, malaise and random abdominal pain. To rule out ovarian or liver cancer (!?) Dr arranged gastroscopy which found nothing. Four months on omeprazole and watch and wait until end of June. Weight settled, but
In February this year I became unwell with raised GGT, weight loss, fever terrible headaches, malaise and random abdominal pain. To rule out ovarian or liver cancer (!?) Dr arranged gastroscopy which found nothing. Four months on omeprazole and watch and wait until end of June. Weight settled, but
Stills
in
My Ovacome
10 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
Brad70
in
Advanced Prostate Cancer
9 months ago
Edema
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
gsun
in
Advanced Prostate Cancer
11 months ago
Novel brain penetrant capsids for Parkinson’s disease gene therapy
https://www.youtube.com/watch?v=7f-TBoq0TLo
https://www.youtube.com/watch?v=7f-TBoq0TLo
Hidden
in
Cure Parkinson's
1 year ago
Questions about ADT drugs and insurance
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
SilverSeppi
in
Advanced Prostate Cancer
11 months ago
Hashi's & Menopause/HRT - weight loss help!
Hi all, I have Hashimoto's and have been on levo 75mg with combined HRT (oestrogen patch and progesterone pill) for a few years. Had a total hysterectomy almost 2 years ago, but they left my ovaries, due to extensive endo, adenomyosis and fibroids. But I have literally been stuck in limbo since then
Hi all, I have Hashimoto's and have been on levo 75mg with combined HRT (oestrogen patch and progesterone pill) for a few years. Had a total hysterectomy almost 2 years ago, but they left my ovaries, due to extensive endo, adenomyosis and fibroids. But I have literally been stuck in limbo since then
Partiallythere
in
Thyroid UK
11 months ago
intensive group therapy as outpatient
Any care to share if it was a positive or negative experience? I start Friday. It is victual for 3 hours , 3 days a week, up to 18 in the group. Never done it before. Feeling skeptical, frightened, and want to get something out of it.
Any care to share if it was a positive or negative experience? I start Friday. It is victual for 3 hours , 3 days a week, up to 18 in the group. Never done it before. Feeling skeptical, frightened, and want to get something out of it.
Lightswitch
in
Mental Health Support
1 year ago
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