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Thoracic Endo - advice needed
Hi, I’m currently dealing with Thoracic Endo and could really use some advice from anyone else struggling with it. I had VATs surgery last year to treat a catamenial pneumothorax, but air still seems to be getting through holes in my diaphragm. My Thoracic surgeon has suggested having more major surgery
Hi, I’m currently dealing with Thoracic Endo and could really use some advice from anyone else struggling with it. I had VATs surgery last year to treat a catamenial pneumothorax, but air still seems to be getting through holes in my diaphragm. My Thoracic surgeon has suggested having more major surgery
Pink32
in
Endometriosis UK
3 months ago
update
Hi everyone I’m back again I still have bilateral pleural effusion that consultants are struggling to get to the bottom of but the last 2 weeks the pain started in my right breast and was horrendous at times not just on breathing I also developed this horrible cough so I finally went to pleural clinic
Hi everyone I’m back again I still have bilateral pleural effusion that consultants are struggling to get to the bottom of but the last 2 weeks the pain started in my right breast and was horrendous at times not just on breathing I also developed this horrible cough so I finally went to pleural clinic
Numptybrain
in
Lung Conditions Community Forum
6 months ago
persistent pneumothorax
I finally had my procedure last Wednesday due to uncertain recent pet /ct changes ( had r lower lobe lobectomy and r upper wedge 5 1/2 years ago) at the scar site of upper. Bronch was completed with insignificant findings but Tumor board recommended to go in for surgery. Great news following surgery
I finally had my procedure last Wednesday due to uncertain recent pet /ct changes ( had r lower lobe lobectomy and r upper wedge 5 1/2 years ago) at the scar site of upper. Bronch was completed with insignificant findings but Tumor board recommended to go in for surgery. Great news following surgery
kri312
in
The Roy Castle Lung Cancer Foundation
6 months ago
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I got my lung diagnosis after an excruciating wait, and it was a shock!
Hi there! I made a post earlier in the year about waiting for my VATS biopsy results. My experience was very unusual, but if it helps anyone else in future, I figured it would be useful posting it. Last year I was having palpitations, and was sent to A&E just as a precaution. I had a CT scan done
Hi there! I made a post earlier in the year about waiting for my VATS biopsy results. My experience was very unusual, but if it helps anyone else in future, I figured it would be useful posting it. Last year I was having palpitations, and was sent to A&E just as a precaution. I had a CT scan done
TheArm
in
Lung Conditions Community Forum
7 months ago
#AskChatGPT : list of immunotherapy drugs for prostate cancer
As of my last update in January 2022, several immunotherapy drugs have been studied or are currently being investigated for the treatment of prostate cancer. Here are some of the notable ones: Sipuleucel-T (Provenge): Sipuleucel-T is an autologous cellular immunotherapy approved for the treatment
As of my last update in January 2022, several immunotherapy drugs have been studied or are currently being investigated for the treatment of prostate cancer. Here are some of the notable ones: Sipuleucel-T (Provenge): Sipuleucel-T is an autologous cellular immunotherapy approved for the treatment
God_Loves_Me
in
Advanced Prostate Cancer
14 hours ago
Oxygen therapy
I have been referred for this and told I would get a visit at home. Just had first chest infection and inpatient stay, 3 days. Antibiotics worked super well, plus excellent ambulance crew. What is involved with oxygen at home, is it a small mobile cylinder? Do I take it everywhere. How does it work
I have been referred for this and told I would get a visit at home. Just had first chest infection and inpatient stay, 3 days. Antibiotics worked super well, plus excellent ambulance crew. What is involved with oxygen at home, is it a small mobile cylinder? Do I take it everywhere. How does it work
grahame151
in
Lung Conditions Community Forum
18 hours ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
3 days ago
Another day
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
He's the same as he was, but his results aren't as good as we hoped. His swallow isn't as strong as it should be and ENT and speech therapist tried him with cuff down on the tracheotomy and holding over the opening, but he could only breathe in but not out. So they're going to arrange to put a smaller
Castleview
in
British Heart Foundation
3 days ago
9 year old son with Emotional Outbursts
My older son who just turned 9 today has ADHD and does well at school, but can often times during the week at home can say some terrible things to my wife and I and even his 7 year old younger brother.. We started him on Guanfacine and thought it was having a good effect but as we upped his dosage we
My older son who just turned 9 today has ADHD and does well at school, but can often times during the week at home can say some terrible things to my wife and I and even his 7 year old younger brother.. We started him on Guanfacine and thought it was having a good effect but as we upped his dosage we
acfowlie
in
CHADD's ADHD Parents Together
4 days ago
Advice on some strange blood test results!
Hi all I hope you’re doing well! I’m writing on this forum to get some advice on a number of strange blood test results and symptoms I’ve been experiencing. Just for context, I’m a 26 year old cycling female with normal regular periods. Since the last year I noticed substantial weight gain (1 stone
Hi all I hope you’re doing well! I’m writing on this forum to get some advice on a number of strange blood test results and symptoms I’ve been experiencing. Just for context, I’m a 26 year old cycling female with normal regular periods. Since the last year I noticed substantial weight gain (1 stone
Hafsah2345
in
Fertility Network UK
5 days ago
combined therapy help
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
DancerLisboa
in
Thyroid UK
7 days ago
Recurrence
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
Leniko
in
My Ovacome
9 days ago
Recurrence
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
I know with over OVCA (or any cancer), everyone hopes for “one and done”, but life sometimes doesn’t work out that way. I have had a number of reoccurrences but want to share that so far I’ve been knocking them back with various treatments, whether it be chemo, radiation, targeted therapy, immunotherapy
Leniko
in
My Ovacome
9 days ago
EMBARK Trial: Combination-therapy is better.
This chart compares the risk of developing metastasis from prostate cancer, after 5 years from curative treatment, between three different arms of the EMBARK study (published in 2023): (1) Lupron monotherapy; (2) Enzalutamide monotherapy; and (3) Enzalutamide + Lupron combination therapy. The cohort
This chart compares the risk of developing metastasis from prostate cancer, after 5 years from curative treatment, between three different arms of the EMBARK study (published in 2023): (1) Lupron monotherapy; (2) Enzalutamide monotherapy; and (3) Enzalutamide + Lupron combination therapy. The cohort
janebob99
in
Prostate Cancer Network
11 days ago
Nice to be here
I have just been diagnosed with severe chronic pancreatitis. I am really scared, even though I've had bad symptoms for some time. I'm on enzyme therapy and recently had to increase the dose. Would like to talk to people that have had experience with this. Thank you and I look forward to meeting you
I have just been diagnosed with severe chronic pancreatitis. I am really scared, even though I've had bad symptoms for some time. I'm on enzyme therapy and recently had to increase the dose. Would like to talk to people that have had experience with this. Thank you and I look forward to meeting you
Corinne777
in
Couch to 5K
12 days ago
Speech production technology
Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to consider it since we cannot understand my husband any more. Thanks
Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to consider it since we cannot understand my husband any more. Thanks
TourEiffel
in
PSP Association
12 days ago
NDT vs T4 T3 combination therapy
Hello everyone. Please share your experience NDT vs combination therapy. Currently I am on combo but still have symptoms (I have no thyroid). I am doing better on combo than on T4 only. I want to try NDT and see if it will make me feel better. Since both of them mainly contain T4 T3 may I expect significant
Hello everyone. Please share your experience NDT vs combination therapy. Currently I am on combo but still have symptoms (I have no thyroid). I am doing better on combo than on T4 only. I want to try NDT and see if it will make me feel better. Since both of them mainly contain T4 T3 may I expect significant
helloworl
in
Thyroid UK
14 days ago
Bayer and AskBio report data from Parkinson’s disease therapy trial
The bilateral infusions of AB-1005 were well tolerated, without any SAEs linked to the gene therapy or contrast agent. AskBio Parkinson’s and MSA Scientific chair Krystof Bankiewicz said: “These early findings are encouraging and show AB-1005 to be well tolerated in this study in patients with mild
The bilateral infusions of AB-1005 were well tolerated, without any SAEs linked to the gene therapy or contrast agent. AskBio Parkinson’s and MSA Scientific chair Krystof Bankiewicz said: “These early findings are encouraging and show AB-1005 to be well tolerated in this study in patients with mild
Farooqji
in
Cure Parkinson's
15 days ago
CRISPR 13 (what? you thought I abandoned CRISPR?): very promising proof of concept - Targeting HOXB13 in mPCa by CRISPR/Cas13d- nanoparticle
And people thought it was undruggable....they have already filed for a patent 😲 Researchers developed nanoparticles that can deliver a special type of gene therapy directly to cancer cells in the liver. This system uses a CRISPR technology, not to edit DNA, but to block the RNA of the HOXB13 protein
And people thought it was undruggable....they have already filed for a patent 😲 Researchers developed nanoparticles that can deliver a special type of gene therapy directly to cancer cells in the liver. This system uses a CRISPR technology, not to edit DNA, but to block the RNA of the HOXB13 protein
Maxone73
in
Advanced Prostate Cancer
16 days ago
constipation
years of laxative abuse leaves me with slow bowel going shortly for biofeedback as have no anal function, have to evacuate myself now I’m passing some stool with interference but so bloated and in pain, am I impacted? Starting laxido today, and a stimulant, swore never to laxative use again but scared
years of laxative abuse leaves me with slow bowel going shortly for biofeedback as have no anal function, have to evacuate myself now I’m passing some stool with interference but so bloated and in pain, am I impacted? Starting laxido today, and a stimulant, swore never to laxative use again but scared
Dudders123
in
IBS Network
16 days ago
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