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bone pain
I have stage 4 with spot on pelvic bone. My psa has gone down to .1 with hormone therapy. My question is why would my bone hurt worse with such a low psa Thanks Bill
I have stage 4 with spot on pelvic bone. My psa has gone down to .1 with hormone therapy. My question is why would my bone hurt worse with such a low psa Thanks Bill
bill1029384756
in
Advanced Prostate Cancer
1 year ago
Hoping for Urologist Recommendations/Referrals in the LA/OC CA area.
4 years post Proton Radiation and ADT. I’m now having a few urination issues. Current urologist seems stumped. Hoping to find a new urologist in the LA/OC CA area that might have more experience with post radiation issues and treatment. Any names would be appreciated.
4 years post Proton Radiation and ADT. I’m now having a few urination issues. Current urologist seems stumped. Hoping to find a new urologist in the LA/OC CA area that might have more experience with post radiation issues and treatment. Any names would be appreciated.
Tristag
in
Advanced Prostate Cancer
1 year ago
First Post
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
Sam2346
in
Advanced Prostate Cancer
1 year ago
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Testosterone gradually going down while PSA gradually going up (I'm not currently on any treatment)
Hello folks! I checked my blood results today (and I have an appointment next week with the oncologist to discuss them.) Basically, I had an RP in the summer of 2019 with a Gleason of 4 + 3. I had follow-up radiation and hormone therapy for 9 months. Both testosterone and PSA went to and stayed
Hello folks! I checked my blood results today (and I have an appointment next week with the oncologist to discuss them.) Basically, I had an RP in the summer of 2019 with a Gleason of 4 + 3. I had follow-up radiation and hormone therapy for 9 months. Both testosterone and PSA went to and stayed
Terry33
in
Advanced Prostate Cancer
1 year ago
PSA increase with anxiety
Dx 2012 at age 58 ,RP(2012). G(3+4). SRT (2017) to prostate bed only with No ADT. Psa continued to rise to 1.5. Psma scan showed many small LN lesions in pelvic and abdomen. Nothing showed on usual CT&Bone scans. Started ADT(monthly Firmogon ) on 11/20 Current psa is undetectable on 11/21 Stopped ADT
Dx 2012 at age 58 ,RP(2012). G(3+4). SRT (2017) to prostate bed only with No ADT. Psa continued to rise to 1.5. Psma scan showed many small LN lesions in pelvic and abdomen. Nothing showed on usual CT&Bone scans. Started ADT(monthly Firmogon ) on 11/20 Current psa is undetectable on 11/21 Stopped ADT
Ahk1
in
Advanced Prostate Cancer
1 year ago
Gut Microbiome, ADT & Doxycycline
In recent years there has been increased awareness of the importance of the gut microbiome for good health. I stopped Minocycline when I decided to give Akkermansia a try. It's been a while since my Akkermansia supply ran out. I have just begun using Doxycycline & pondering the implications. One
In recent years there has been increased awareness of the importance of the gut microbiome for good health. I stopped Minocycline when I decided to give Akkermansia a try. It's been a while since my Akkermansia supply ran out. I have just begun using Doxycycline & pondering the implications. One
pca2004
in
Fight Prostate Cancer
1 year ago
Estrogen , progesterone , Drugs that suppress immune system may protect against Parkinson’s
Drugs that suppress immune system may protect against Parkinson’s People taking corticosteroids such as prednisone were 20 percent less likely to be diagnosed with Parkinson's, while those on inosine monophosphate dehydrogenase (IMDH) inhibitors were about one-third less likely https://medicine.wustl.edu
Drugs that suppress immune system may protect against Parkinson’s People taking corticosteroids such as prednisone were 20 percent less likely to be diagnosed with Parkinson's, while those on inosine monophosphate dehydrogenase (IMDH) inhibitors were about one-third less likely https://medicine.wustl.edu
Little_apple
in
Cure Parkinson's
1 year ago
How content should I be with my current treatment 🤷
Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron, Abiraterone, and Prednisone. And I have to admit I'm enjoying riding that path quietly for a while. On the other hand I'm still confused about
Yay, I finally expanded my treatment history into a useful document! Just did the update. The dust seems to have settled into my current treatment of Lupron, Abiraterone, and Prednisone. And I have to admit I'm enjoying riding that path quietly for a while. On the other hand I'm still confused about
Lewellen
in
Advanced Prostate Cancer
1 year ago
Dutasteride (Advodart) as an Alternative to ADT in Salvage RT Setting?
I know this forum is mainly focused on post-salvage advanced stage but highly respect the knowledge and opinions of the members here. There's clear evidence in the early stages of recurrence that Dutasteride (Advodart) slows or even stops the progression based on PSA results epecially when started when
I know this forum is mainly focused on post-salvage advanced stage but highly respect the knowledge and opinions of the members here. There's clear evidence in the early stages of recurrence that Dutasteride (Advodart) slows or even stops the progression based on PSA results epecially when started when
jazj
in
Advanced Prostate Cancer
1 year ago
When ADT fails, we continue it anyway... why not Zytiga?
This question may be more theoretical than practical, but I am curious. We use ADT to lower T and get a PSA response and regression of PC (and get symptom relief). Eventually ADT "fails" and PSA rises. But ADT continues to "succeed" in keeping T low, so we stay on it, since low T continues to be important
This question may be more theoretical than practical, but I am curious. We use ADT to lower T and get a PSA response and regression of PC (and get symptom relief). Eventually ADT "fails" and PSA rises. But ADT continues to "succeed" in keeping T low, so we stay on it, since low T continues to be important
noahware
in
Advanced Prostate Cancer
1 year ago
Four years of ADT, pros/cons
Four years of Lupron + abiraterone Pros: I'm still alive and castration sensitive, spine met not growing or painful Cons: Zero libido, muscle loss, fat gain, hot flashes, blueberry-size testicles, BP increase, body hair loss... and all the other side effects that many of you are all too familiar with
Four years of Lupron + abiraterone Pros: I'm still alive and castration sensitive, spine met not growing or painful Cons: Zero libido, muscle loss, fat gain, hot flashes, blueberry-size testicles, BP increase, body hair loss... and all the other side effects that many of you are all too familiar with
Gearhead
in
Advanced Prostate Cancer
1 year ago
Lupron or Firmagon after Orgovyx
I am finishing four months of Orgovyx, but have two more months to go in my “sentence”. I can pay $6000 out of pocket for the last two months. I’ve had only minor side effects and work out regularly. I’ve lost a lot of weight and feel in pretty good shape overall. I have lost some of the fear of
I am finishing four months of Orgovyx, but have two more months to go in my “sentence”. I can pay $6000 out of pocket for the last two months. I’ve had only minor side effects and work out regularly. I’ve lost a lot of weight and feel in pretty good shape overall. I have lost some of the fear of
Mike404
in
Prostate Cancer Network
1 year ago
Modified Citrus Pectin - reply from Dr Eliaz
A member asked me to post the reply I was to get from Dr Isaac Eliaz on MCP, Modified Citrus Pectin / Pectasol and I do this. Below is my communication with dr Eliaz, generously facilitated by AnnieAppleseed, followed by excerpts from two studies. Dr. Eliaz writes that 80 % of patients with BRPC,
A member asked me to post the reply I was to get from Dr Isaac Eliaz on MCP, Modified Citrus Pectin / Pectasol and I do this. Below is my communication with dr Eliaz, generously facilitated by AnnieAppleseed, followed by excerpts from two studies. Dr. Eliaz writes that 80 % of patients with BRPC,
Purple-Bike
in
Advanced Prostate Cancer
1 year ago
PSA rising
My husband’s PSA has been rising since October. He is scheduled to see his MO at Tulane in February. Is the PSMA scan sensitive enough at this level to detect where the cancer is located? Is there another scan that would be better? I’m sure he will be put back on ADT but he would like to know where it
My husband’s PSA has been rising since October. He is scheduled to see his MO at Tulane in February. Is the PSMA scan sensitive enough at this level to detect where the cancer is located? Is there another scan that would be better? I’m sure he will be put back on ADT but he would like to know where it
Drandma
in
Advanced Prostate Cancer
1 year ago
Report of the Advanced Prostate Cancer Consensus Conference 2022
A long read, but with lots of detailed information and nuance. Management of Patients with Advanced Prostate Cancer. Part I: Intermediate-/High-risk and Locally Advanced Disease, Biochemical Relapse, and Side Effects of Hormonal Treatment: Report of the Advanced Prostate Cancer Consensus Conference
A long read, but with lots of detailed information and nuance. Management of Patients with Advanced Prostate Cancer. Part I: Intermediate-/High-risk and Locally Advanced Disease, Biochemical Relapse, and Side Effects of Hormonal Treatment: Report of the Advanced Prostate Cancer Consensus Conference
zeitgeistxx
in
Advanced Prostate Cancer
1 year ago
Can anyone comment on Stanford Medicine Health Care second opinion program?
How long did it take to get the second option, did it help guide you? My doctors are exploring cryotherapy, Brachy Therapy and surgery to remove the prostate. But ultimately, the final decision will be mine. I'm trying to understand the risk and success factors of each option. I was diagnosed 11/21
How long did it take to get the second option, did it help guide you? My doctors are exploring cryotherapy, Brachy Therapy and surgery to remove the prostate. But ultimately, the final decision will be mine. I'm trying to understand the risk and success factors of each option. I was diagnosed 11/21
Thedawg
in
Advanced Prostate Cancer
1 year ago
Vertebral Fractures [VF]
New study from the Netherlands, below [1]. One would expect bone issues with ADT, since near-zero testosterone equates to near-zero estradiol. When estradiol goes below 12 pg/mL (my limit, based on old non-PCa studies), bone loss can be rapid. But this study looked at men who were about to start ADT
New study from the Netherlands, below [1]. One would expect bone issues with ADT, since near-zero testosterone equates to near-zero estradiol. When estradiol goes below 12 pg/mL (my limit, based on old non-PCa studies), bone loss can be rapid. But this study looked at men who were about to start ADT
pca2004
in
Fight Prostate Cancer
1 year ago
I am in need of treatment advice for my Prostate cancer
Ive been in treatment at Shaw Cancer Center in Edwards, CO for metastic prostrate cancer. After a year of hormone therapy, radiation and chemo, my first PSMA scan revealed adenocarcinoma in my prostrate with seminal vesicle and perineural involvement. I have a PSA score of 0 and have had a history of
Ive been in treatment at Shaw Cancer Center in Edwards, CO for metastic prostrate cancer. After a year of hormone therapy, radiation and chemo, my first PSMA scan revealed adenocarcinoma in my prostrate with seminal vesicle and perineural involvement. I have a PSA score of 0 and have had a history of
Thedawg
in
Advanced Prostate Cancer
1 year ago
Covid-Induced Holiday
A week before Christmas, both my wife and I tested positive for Covid and it was the first time for both of us. My Primary Care wanted to put my on Paxlovid for 5 days but was concerned about interactions with my Orgovyx and Lipitor. Both should be stopped during the 5 days on Paxlovid and then for 7
A week before Christmas, both my wife and I tested positive for Covid and it was the first time for both of us. My Primary Care wanted to put my on Paxlovid for 5 days but was concerned about interactions with my Orgovyx and Lipitor. Both should be stopped during the 5 days on Paxlovid and then for 7
jcarey79
in
Advanced Prostate Cancer
1 year ago
muscle and ADT issues and questions
A question about side effects and Zoladex (goserelin) - I am into the third month of Zoladex and two previous months prior to this on Bicalutimide (casodex) following a MRI and biopsy Gleason 9 (T2cN0M0) last august after HIFU for G7 only 8 months prior didn’t stop PSA rise. Just completed 20 sessions
A question about side effects and Zoladex (goserelin) - I am into the third month of Zoladex and two previous months prior to this on Bicalutimide (casodex) following a MRI and biopsy Gleason 9 (T2cN0M0) last august after HIFU for G7 only 8 months prior didn’t stop PSA rise. Just completed 20 sessions
SimMartin
in
Prostate Cancer Network
1 year ago
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