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Changes to menstruation during B12 loading therapy?
As a result he is confident with his diagnosis and has written t my GP to state he believes I have "immune-negative pernicious
anaemia
(B12 deficiency)" and that the problem is with my stomach, despite auto-immune tests being negative.
As a result he is confident with his diagnosis and has written t my GP to state he believes I have "immune-negative pernicious
anaemia
(B12 deficiency)" and that the problem is with my stomach, despite auto-immune tests being negative.
Beccy_123
in
Pernicious Anaemia Society
1 year ago
17 hour flight
I have been invited to a wedding in Louisiana later this year. My RLS is still problematic but manageable at home with Buprenorphine and Pregabalin and walking around / standing up. I am doubtful about the 17 hours flights. I can't ever remember going that long without several attacks of RLS. I've
I have been invited to a wedding in Louisiana later this year. My RLS is still problematic but manageable at home with Buprenorphine and Pregabalin and walking around / standing up. I am doubtful about the 17 hours flights. I can't ever remember going that long without several attacks of RLS. I've
Biscuitface
in
Restless Legs Syndrome
1 year ago
On iron supplements but my ferritin did not increase
I started having a lot of symptoms of iron deficiency last year after correcting my long term B12 deficiency: dry mouth, palpitations, muscle twitches. It is possible that my iron had been low for a long time and I just didn't notice because my B12 had also been low. I started taking iron supplements
I started having a lot of symptoms of iron deficiency last year after correcting my long term B12 deficiency: dry mouth, palpitations, muscle twitches. It is possible that my iron had been low for a long time and I just didn't notice because my B12 had also been low. I started taking iron supplements
WhyAmISoTired
in
Thyroid UK
1 year ago
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Severe Anemia and Imbruvica
I have been on 400mm Imbruvica for 6 years fighting CLL/SLL. I understand most patients consider them the same, I do not as I am tested every 4 months for both during Labs. So, please know this is not a debate for me, I simply have symptoms of both in post Labs with my Oncology expert. Most recently
I have been on 400mm Imbruvica for 6 years fighting CLL/SLL. I understand most patients consider them the same, I do not as I am tested every 4 months for both during Labs. So, please know this is not a debate for me, I simply have symptoms of both in post Labs with my Oncology expert. Most recently
MCarter1954
in
CLL Support
1 year ago
low ferritin 32 ,High transferrin 45%
hi I have high transferrin saturation 45% range bottom 40% Low ferritin 32 bottom of range is 30 im hypothyroid on T3 mono Pernicious
anaemia
given 1 injection a month but supply own methyl b12 injections and have about 4-5 per week I take methyl folate that result is good at 18 I have a double
hi I have high transferrin saturation 45% range bottom 40% Low ferritin 32 bottom of range is 30 im hypothyroid on T3 mono Pernicious
anaemia
given 1 injection a month but supply own methyl b12 injections and have about 4-5 per week I take methyl folate that result is good at 18 I have a double
Pascha1
in
Thyroid UK
1 year ago
TKR post op review
We were obviously there for hours where I was diagnosed with
anaemia
and postural hypertension. Six hours and no painkillers as we’d left home early and thought we’d be straight back. Since then my walks have lengthened though very slow (the dog is exasperated!)
We were obviously there for hours where I was diagnosed with
anaemia
and postural hypertension. Six hours and no painkillers as we’d left home early and thought we’d be straight back. Since then my walks have lengthened though very slow (the dog is exasperated!)
BonnieMagic
in
Arthritis Action
1 year ago
Finally got some blood test results . Need explaining please.
I've finally got a copy of some blood test results after 2 years. I had blood test because of waking up saturated on a night. Serum tsh level(xaELV) 7.5 mu/L above range Serum free T4 level(XaERr) 10 pmol/L Serum c reactive protein level(XaINL) 11mg/L above range Platelet count 464 above range Hematocrit
I've finally got a copy of some blood test results after 2 years. I had blood test because of waking up saturated on a night. Serum tsh level(xaELV) 7.5 mu/L above range Serum free T4 level(XaERr) 10 pmol/L Serum c reactive protein level(XaINL) 11mg/L above range Platelet count 464 above range Hematocrit
BlueKeith
in
Thyroid UK
1 year ago
Statins
Common or very common side effects:
anaemia
; gout; hyperuricaemia; pain in extremity. Frequency not known: Diarrhoea; muscle spasms; nausea And Nustendi (Nexlizet in the US) which combines ezetimibe with bempedoic acid.
Common or very common side effects:
anaemia
; gout; hyperuricaemia; pain in extremity. Frequency not known: Diarrhoea; muscle spasms; nausea And Nustendi (Nexlizet in the US) which combines ezetimibe with bempedoic acid.
ChrisColumbus
in
Restless Legs Syndrome
1 year ago
Recommendations on iron panel please
Hi, I would be grateful for your thoughts. Thank you! Following forum advice on November 22 ferritin test results (ferritin: 29 ug/L (13-300) I took a full iron panel. These are the results: Iron: 23.8 umol/L (6.6-26) - 88.7% through range TIBC: 56 umol/L (41-77) 41.67% through range Transferrin
Hi, I would be grateful for your thoughts. Thank you! Following forum advice on November 22 ferritin test results (ferritin: 29 ug/L (13-300) I took a full iron panel. These are the results: Iron: 23.8 umol/L (6.6-26) - 88.7% through range TIBC: 56 umol/L (41-77) 41.67% through range Transferrin
Dandelions
in
Thyroid UK
1 year ago
Dr. Mark Porter's B12 Times article
Deficiency can cause numerous symptoms (see more below) ranging from lack of energy, memory issues, a sore tongue, weakness and pins and needles, to
anaemia
, breathlessness, confusion and, rarely, even paralysis and death.
Deficiency can cause numerous symptoms (see more below) ranging from lack of energy, memory issues, a sore tongue, weakness and pins and needles, to
anaemia
, breathlessness, confusion and, rarely, even paralysis and death.
Sneedle
in
Pernicious Anaemia Society
9 months ago
Swoping from SI using Hydroxocobalamin to Cyanocobalamin
Hi all, 👋 I have a question to all you good people out there.... I've been buying and self injecting for over 3 years now with Hydroxocobalamin from a Germany company. All I can buy now from them is cyanocobalamin. Is it ok for me to swop? If anyone has a link to send that sell Hydroxocobalamin, I would
Hi all, 👋 I have a question to all you good people out there.... I've been buying and self injecting for over 3 years now with Hydroxocobalamin from a Germany company. All I can buy now from them is cyanocobalamin. Is it ok for me to swop? If anyone has a link to send that sell Hydroxocobalamin, I would
Onlyme75
in
Pernicious Anaemia Society
1 year ago
Terrible reflux on Teva levothyroxine...help!
Hi, I have just started 50mg of Levothyroxine (teva). I have subclinical hypothyroidism with TPO antibodies. I took the tablets as advised on an empty stomach but they are causing terrible reflux symptoms. I persevered for 2 weeks but have had to stop taking them. The GP told me to try taking lansoprazole
Hi, I have just started 50mg of Levothyroxine (teva). I have subclinical hypothyroidism with TPO antibodies. I took the tablets as advised on an empty stomach but they are causing terrible reflux symptoms. I persevered for 2 weeks but have had to stop taking them. The GP told me to try taking lansoprazole
EJT82
in
Thyroid UK
1 year ago
Could Vitamin D3 affect hemoglobin levels?
My husband ( 84 years old) has had CLL for at least 20 years. Two years ago they started him on Imbruvica 420 mg daily but stopped it after 14 months because his neutrophil count was so low. Since June of 2022 he has been getting Eprex injections (40,000 units ) weekly and taking Aclovir 400 mg twice
My husband ( 84 years old) has had CLL for at least 20 years. Two years ago they started him on Imbruvica 420 mg daily but stopped it after 14 months because his neutrophil count was so low. Since June of 2022 he has been getting Eprex injections (40,000 units ) weekly and taking Aclovir 400 mg twice
Seaperson
in
CLL Support
1 year ago
New Blood Results
I have new updated blood results… TSH is 2.66, down from 3.47 in November (no diagnosed thyroid issues and not on any medication) range 0.27-4.20 T4 is 15.6 (range 12-22) T3 is 4.8 (range 3.9-6.7) I am awaiting a full blood count including for
anaemia
to come back, the only other result is for Vit
I have new updated blood results… TSH is 2.66, down from 3.47 in November (no diagnosed thyroid issues and not on any medication) range 0.27-4.20 T4 is 15.6 (range 12-22) T3 is 4.8 (range 3.9-6.7) I am awaiting a full blood count including for
anaemia
to come back, the only other result is for Vit
Hidden
in
Thyroid UK
1 year ago
vitamin D, Folate and hypochromasia
Hi, Daughter has had blood results, symptoms of tiredness and anxiety. Results back, Drs just text to say low and get supplements! I told her to get print out. Im posting on here because you’ve been very helpful to me. Is there some other group which I should post to for advice? She needs to know what
Hi, Daughter has had blood results, symptoms of tiredness and anxiety. Results back, Drs just text to say low and get supplements! I told her to get print out. Im posting on here because you’ve been very helpful to me. Is there some other group which I should post to for advice? She needs to know what
Fluffyone
in
Thyroid UK
1 year ago
Results please
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 75mcg and t3, 5mcg at morning with levo then 10mcg afternoon.My symptoms have greatly improved with the addition of t3, but having increasing problems with low stomach acid. Any advice will be most welcome 🌸🌸🌸🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
1 year ago
Iron tablets and T3 timing?
I'm trying to raise my low ferritin (33 at last test) and am taking ferrous sulphate twice a day (will be testing my levels again soon).I was previously taking my T3 meds once a day but am having a bit of trouble tolerating a recent 5mcg increase (was taking 10, now 15mcg) so I'd like to try splitting
I'm trying to raise my low ferritin (33 at last test) and am taking ferrous sulphate twice a day (will be testing my levels again soon).I was previously taking my T3 meds once a day but am having a bit of trouble tolerating a recent 5mcg increase (was taking 10, now 15mcg) so I'd like to try splitting
Smorzando
in
Thyroid UK
1 year ago
Infusion how long to "kick in"? Hehe.
I finally got my iron infusion (yay!) but it hasn't "kicked in" yet. No pun intended. Last night I had one of my worst yet. Zero sleep and threw up water & zofran all night. When I had my infusions in 2020 I was fresh out of COVID hospital and quite ill with pleural effusions... plus having been
I finally got my iron infusion (yay!) but it hasn't "kicked in" yet. No pun intended. Last night I had one of my worst yet. Zero sleep and threw up water & zofran all night. When I had my infusions in 2020 I was fresh out of COVID hospital and quite ill with pleural effusions... plus having been
SkyCop
in
Restless Legs Syndrome
1 year ago
Can someone look at my results please?
Hi all, I posted my latest thyroid results the other day and have now received my other results. could some look at them and tell me if they are ok please? Thank you in advance x Blood haematinic levels Serum vitamin B12 level 508 ng/L [197.0 - 771.0]. Serum folate level > 20.0 ug/L [3.0 -
Hi all, I posted my latest thyroid results the other day and have now received my other results. could some look at them and tell me if they are ok please? Thank you in advance x Blood haematinic levels Serum vitamin B12 level 508 ng/L [197.0 - 771.0]. Serum folate level > 20.0 ug/L [3.0 -
HappyBadger
in
Thyroid UK
1 year ago
Weakness and fatigue after nearly 3 years of injections
Hi there, I started injections nearly 3 years ago. I have had varying frequencies, everything from eod to every 2 weeks. I had so much improvement in the first year or so, but since then it seems to have tapered off. Some symptoms that have improved include dark vision, depression, balance issues,
Hi there, I started injections nearly 3 years ago. I have had varying frequencies, everything from eod to every 2 weeks. I had so much improvement in the first year or so, but since then it seems to have tapered off. Some symptoms that have improved include dark vision, depression, balance issues,
KittyKitten
in
Pernicious Anaemia Society
1 year ago
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