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newly diagnosed and very confused!
I received a diagnosis last week from the GP after having been going round in circles for a few years having my pain blamed on various things like vitamin deficiency,
anaemia
, my alcohol intake, my lack of exercise, depression..
I received a diagnosis last week from the GP after having been going round in circles for a few years having my pain blamed on various things like vitamin deficiency,
anaemia
, my alcohol intake, my lack of exercise, depression..
SaaraMc
in
Fibromyalgia Action UK
9 months ago
MCV result Medichecks - NHS comparison
Just had my latest NHS Full Blood Count report and I noticed when putting them into my spreadsheet 😇 that there is always a big difference in my MCV results between these two? NHS... Mean cell volume (42A..) 92.1 fL [80 - 100] Medichecks... 97.9fL (81-98) Always taken under same conditions, within
Just had my latest NHS Full Blood Count report and I noticed when putting them into my spreadsheet 😇 that there is always a big difference in my MCV results between these two? NHS... Mean cell volume (42A..) 92.1 fL [80 - 100] Medichecks... 97.9fL (81-98) Always taken under same conditions, within
TiggerMe
in
Thyroid UK
1 year ago
please share your thoughts
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
9 months ago
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Neurologist able to tell the difference between PA and MS on an MRI
I am desperately seeking a neurologist in the UK who is able to tell the difference between Pernicious
Anaemia
and MS (especially how both show up on MRI scans) as I currently have two different doctors telling me two different things and I am unsure where to turn for clarity at this point.
I am desperately seeking a neurologist in the UK who is able to tell the difference between Pernicious
Anaemia
and MS (especially how both show up on MRI scans) as I currently have two different doctors telling me two different things and I am unsure where to turn for clarity at this point.
SeaglassMenagerie87
in
Pernicious Anaemia Society
1 year ago
Full blown PV now
I was diagnosed with Jak2+ PV back in January 2020. At that time, I didn't have high RBC, Hemaglobin, or hematocrit. I had high platelets, high WBC, basophilia, and eosinophilia. My hematologist said she was calling it PV rather than ET due to the high counts other than my platelets. She was completely
I was diagnosed with Jak2+ PV back in January 2020. At that time, I didn't have high RBC, Hemaglobin, or hematocrit. I had high platelets, high WBC, basophilia, and eosinophilia. My hematologist said she was calling it PV rather than ET due to the high counts other than my platelets. She was completely
Lena70
in
MPN Voice
1 year ago
calm magnesium powder
I love the calm magnesium powder, helps with relaxation & constipation. However, I don’t know its effect on Diabetis type 2 & hemophilia A factor 8 inhibitors. I started giving a small dose to my husband & saw improvement in memory.( he has dementia )Sadly he also has diabetes 2 & hemophilia A. I May
I love the calm magnesium powder, helps with relaxation & constipation. However, I don’t know its effect on Diabetis type 2 & hemophilia A factor 8 inhibitors. I started giving a small dose to my husband & saw improvement in memory.( he has dementia )Sadly he also has diabetes 2 & hemophilia A. I May
Suzi_
in
Thyroid UK
11 months ago
Transcobalamin
I have read often that B12 in the blood stream is not important and all that is important is the B12 available at the cellular level. I have not read as of yet that it is possible to experience both PA and an inborn transcobalamin error. It seems to be a one or the other method. With an inborn transcobalamin
I have read often that B12 in the blood stream is not important and all that is important is the B12 available at the cellular level. I have not read as of yet that it is possible to experience both PA and an inborn transcobalamin error. It seems to be a one or the other method. With an inborn transcobalamin
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Blood test questions
Hi everyone, I got back my third major blood panel. The only things that have been (slightly) high each time since starting the pred were my WBC and hemoglobin. Is this the normal for 25mg pred? Or something I should worry more about? Also, I haven't gotten a blood test for IL-6 yet. If I do, and if
Hi everyone, I got back my third major blood panel. The only things that have been (slightly) high each time since starting the pred were my WBC and hemoglobin. Is this the normal for 25mg pred? Or something I should worry more about? Also, I haven't gotten a blood test for IL-6 yet. If I do, and if
sferios
in
PMRGCAuk
1 year ago
Vitamin levels
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
Hi, it's me again.Just got my vitamin levels back from Docs. Serum total 25-OH vit D level-(RAB)-Normal. 79. Vitamin B12 . 384ng/L Serum Folate 6.6 ug/l Serum Ferritin 73 ug/L. I am currently taking 1000iu of Vitamin D. 500ug of Vitamin B12. I am not taking any supplements for Folate or Ferritin.
sylus_911
in
Thyroid UK
1 year ago
Pregnancy loss and more results
Hello, I posted a couple of days ago re 3 miscarriages and suboptimal thyroid results (the screenshot). Today I've had some results back from the gp - serum B12, serum folate and serum ferritin. I am waiting for these same results (and vitD) from monitor my health. Also waiting for the full thyroid screen
Hello, I posted a couple of days ago re 3 miscarriages and suboptimal thyroid results (the screenshot). Today I've had some results back from the gp - serum B12, serum folate and serum ferritin. I am waiting for these same results (and vitD) from monitor my health. Also waiting for the full thyroid screen
staceedin
in
Thyroid UK
1 year ago
Omeprazole
Are there any marked differences between diabetes tingling and pernicious
anaemia
.? Thanks for any help.
Are there any marked differences between diabetes tingling and pernicious
anaemia
.? Thanks for any help.
Bumblebetty
in
Pernicious Anaemia Society
1 year ago
Anaemia and asthma
My consultant is going to town with his blood tests.He is now saying that I have
anaemia
, low white blood cells and low vitamin d., as well as the expected allergies. How normal is all this with asthma.
My consultant is going to town with his blood tests.He is now saying that I have
anaemia
, low white blood cells and low vitamin d., as well as the expected allergies. How normal is all this with asthma.
Homely2
Administrator
in
Asthma Community Forum
1 year ago
Active b12 result
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a few years ago so I paid to get an active b12 test done privately (UK). Result is 47 pmol/mol. It says the cut off for a deficiency is 38, so
Hullaballop
in
Pernicious Anaemia Society
9 months ago
Subacute thyroiditis and sub clinical hypothyroidism
Hello, just asking for your opinion on whether I should start treatment or not for sub clinical hypothyroidism after subacute thyroiditis. I'm now it seems in the hypothyroid phase of this horrible illness ( subacute thyroiditis is like the gift that keeps on giving!) after becoming ill in October with
Hello, just asking for your opinion on whether I should start treatment or not for sub clinical hypothyroidism after subacute thyroiditis. I'm now it seems in the hypothyroid phase of this horrible illness ( subacute thyroiditis is like the gift that keeps on giving!) after becoming ill in October with
Julietilly22
in
Thyroid UK
1 year ago
Are your shoes causing RLS?
In the past treating my
anaemia
usually helped, but recently nothing has helped apart from applying heat wraps to my lower back. Until now that is. This spring I started to have pains in the balls of my feet.
In the past treating my
anaemia
usually helped, but recently nothing has helped apart from applying heat wraps to my lower back. Until now that is. This spring I started to have pains in the balls of my feet.
Newfeet
in
Restless Legs Syndrome
7 months ago
Anaemia or CLL? Time for re-referral?
I am of the opinion that she should be referred back to the Haematologist rather than aiming to correct the Haemoglobin level by treating for
Anaemia
. Also, could this be a case of Autoimmune Haemolytic
Anaemia
as discussed in 'Livingwith67’s post a couple of months ago?
I am of the opinion that she should be referred back to the Haematologist rather than aiming to correct the Haemoglobin level by treating for
Anaemia
. Also, could this be a case of Autoimmune Haemolytic
Anaemia
as discussed in 'Livingwith67’s post a couple of months ago?
NavyDavy
in
CLL Support
1 year ago
Should I switch SSRIs?
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Griffo_
in
Thyroid UK
9 months ago
Preservatives in B12 injections - does frequency matter?
Hi all, I'm hoping for some insight about what effect the preservatives in different B12 injections have (or don't have) on us. I know I've heard some members of the PAS from the U.S. talk about the hydroxocobalamin administered in the States as having a lot of parabens, with the insinuation that they
Hi all, I'm hoping for some insight about what effect the preservatives in different B12 injections have (or don't have) on us. I know I've heard some members of the PAS from the U.S. talk about the hydroxocobalamin administered in the States as having a lot of parabens, with the insinuation that they
Cobalt1312
in
Pernicious Anaemia Society
1 year ago
Exhaustion
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Sea-blue
in
Pernicious Anaemia Society
1 year ago
Blood test follow up
Thank you all for your help. Results of discussion with doc - Parathyroid hormone: 10.93 (range 1.5-7.2), higher than range but lower than a year ago apparently (14+). This was a few months before my GCA diagnosis. Still waiting on results for B12, iron, folate. A year ago vit D levels and calcium
Thank you all for your help. Results of discussion with doc - Parathyroid hormone: 10.93 (range 1.5-7.2), higher than range but lower than a year ago apparently (14+). This was a few months before my GCA diagnosis. Still waiting on results for B12, iron, folate. A year ago vit D levels and calcium
Bluey-1
in
PMRGCAuk
1 year ago
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