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(Currently trying to get tested for Pernicious
anaemia
but haven’t been diagnosed) Thanks 🙏
(Currently trying to get tested for Pernicious
anaemia
but haven’t been diagnosed) Thanks 🙏
EllsBells591
in
Thyroid UK
7 months ago
B12 217ng/L low folate/serum ferritin
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum ferritin 19.9ug/L and B12 is within range at 218ng/L(but low end). I'm wondering did anyone take B12 shots with these levels and did it help? Or
Sotired3
in
Pernicious Anaemia Society
9 months ago
Un knowledgable Neurologist aahhh!!
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me because of my b12 numbers He has decided even with all my neurological and neuropathy symptoms, and that after my doctor did tests and believed
brenanddave
in
Pernicious Anaemia Society
9 months ago
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intrinsic factor test
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
My GP agreed to do an intrinsic factor antibody test. The test he did was IgA and the results came back as within normal range.1.10gl normal range 0.8 to 4.0 . Was this the correct test for pernicious anemia? Thank you
Painttube
in
Pernicious Anaemia Society
5 months ago
Advice on best treatment
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
I have had CLL since 2013 watch and wait. Recently hemoglobin levels dropped and a bit anemic so been advised 3 types of treatment. However left to make own choice. Guess would like to know what other people have tried and how effective treatment was.
Guinness4822
in
CLL Support
9 months ago
Pernicious Anaemia
Hi Guys I have had B12 above reference range (NHS UK so probably a very outdate reference range system) GP told me it was high a year ago. Nobody had told me! I don't take any B12 supplements or multi vitamins ( I take Vit D and Vit c separately daily only) I also have "borderline" full blood count
Hi Guys I have had B12 above reference range (NHS UK so probably a very outdate reference range system) GP told me it was high a year ago. Nobody had told me! I don't take any B12 supplements or multi vitamins ( I take Vit D and Vit c separately daily only) I also have "borderline" full blood count
Kwizzbit
in
Pernicious Anaemia Society
1 year ago
Please some help treating low b12
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was then diagnosed with chronic fatigue syndrome for the following 10 years by this time I was almost bedbound after searching the Internet with my systems
Tbob
in
Pernicious Anaemia Society
9 months ago
Iron and magnesium levels plus
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
Hi everyone. I recently had blood tests done as suggested and results have come back showing slightly low magnesium level at 0.68mmol/L and serum ferritin level of 60ng/ml. (Low?) I've been asked to go back for retest on the magnesium but no mention of the iron? Looking back on my test results I had
GreyMaus
in
Restless Legs Syndrome
9 months ago
Is it reliable and trusty to measure homocystein after loading doses of b12 injections?
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i learned about homocystein after injections of b12. My lab results of vit b12 was 165pg/ml(160-944)I wondered whether homocystein level affeteed by
Emiroskui
in
Pernicious Anaemia Society
9 months ago
What ? and Watt !! 😜
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes occur in the outer bit (or matrix) of our power cells where the food we eat and the oxygen we breathe is transformed into energy. In order for
Narwhal10
in
Pernicious Anaemia Society
9 months ago
FINALLY found a scientific study that supports my theory about Brain Iron and Serum Iron. Finally!!!
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
First, the relevant quote from the article: “The serum iron concentration was significantly higher in the RLS group than in the control group, but remained within normal ranges in both groups. In this study, there was a significant correlation between serum and CSF iron concentrations, both in the RLS
DesertOasis
in
Restless Legs Syndrome
6 months ago
A positive tale...so far
He diagnosed me with Autoimmune Negative Pernicious
Anaemia
, and recommend I continue with twice weekly subcutaneous injections, which he taught me to self administer. I gave my GP a copy of the consultant's letter along with a note to say I was going to self inject. Out and proud!
He diagnosed me with Autoimmune Negative Pernicious
Anaemia
, and recommend I continue with twice weekly subcutaneous injections, which he taught me to self administer. I gave my GP a copy of the consultant's letter along with a note to say I was going to self inject. Out and proud!
Myoldcat
in
Pernicious Anaemia Society
3 months ago
Have I progressed to PV?
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
Hello everyone, I have had ET, Jak2+ for 5-1/2 years and my platelets have been rising the past 1-1/2 years above normal range. Recently, I had routine blood work ordered by my GP and the results showed an almost 200 thousand increase in platelets since May from 629 to 805. I messaged my MPN specialist
mbr8076
in
MPN Voice
9 months ago
accord brand of buprenorphine causing nausea???
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cut…… after half a tablet I had panic / shakiness that I hadn’t experienced with the morningside tablets…. After three x half tablets (0.6mg)
hello - I started taking the accord brand of buprenorphine last night having moved from the morningside make because those tablets were small and difficult to cut…… after half a tablet I had panic / shakiness that I hadn’t experienced with the morningside tablets…. After three x half tablets (0.6mg)
Drls
in
Restless Legs Syndrome
9 months ago
How quickly does homocysteine rise following cessation of B12 injections?
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
Previous post for context: @https://healthunlocked.com/pasoc/posts/149711971/antibody-to-transcobalamin-ii-causing-functional-b12-deficiency?responses=149728666 I have been trying to convince doctors that I need daily injections to prevent B12 deficiency symptoms from returning. They simply do not believe
jeremycat_
in
Pernicious Anaemia Society
9 months ago
Vit B12 too high?!!
I understood you can't take too much B12 ... and my grandmother died of pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
I understood you can't take too much B12 ... and my grandmother died of pernicious
anaemia
hence my taking the B12 drops as I didn't feel well at all she also had thyroid problems like me. I would appreciate any comments on the 2000 reading. Thanks!!
PolyannaYorkshire
in
Pernicious Anaemia Society
1 year ago
Adenosylcobalamin
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml which with my limited chemistry knowledge means the most I could inject is .097 mcg/ml. However water solubility of hydroxocobalamin is 0.0273 mg
WIZARD6787
in
Pernicious Anaemia Society
9 months ago
Liquid Iron
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after many visits and blood tests !
davina70
in
Pernicious Anaemia Society
9 months ago
Struggling again
I am seen by a haematologist for a blood related condition and they said I didn’t need a folate supplement as their blood tests which I don’t see are satisfactory and I am not
anaemia
. I am a bit afraid to take one against this advice but feeling really rubbish and very anxious .
I am seen by a haematologist for a blood related condition and they said I didn’t need a folate supplement as their blood tests which I don’t see are satisfactory and I am not
anaemia
. I am a bit afraid to take one against this advice but feeling really rubbish and very anxious .
jodary
in
Thyroid UK
4 months ago
My baby girl.
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Good morning all. I've been writing my updates as anonymous as possible but trying to give relevant information and updates to the condition. In reality I've been writing on my wife's behalf. She was diagnosed in February this year and was taking tremendous strides in getting better. She looked fantastic
Hidden
in
British Liver Trust
9 months ago
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