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Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
2 months ago
Pregablin
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Baz33
in
Restless Legs Syndrome
5 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
5 months ago
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Tried Bovine Thyroid Supplement - feel very ill!
I could really use some help. I just started on a beef thyroid supplement this morning (Grassfed Beef Thyroid by Ancestral Supplements). And it looks like my body is reacting the same way it reacted when I tried 2 porcine thyroid supplements in the past - heart palpitations and severe fatigue. Although
I could really use some help. I just started on a beef thyroid supplement this morning (Grassfed Beef Thyroid by Ancestral Supplements). And it looks like my body is reacting the same way it reacted when I tried 2 porcine thyroid supplements in the past - heart palpitations and severe fatigue. Although
Betterhealth4me
in
Thyroid UK
5 months ago
Update on my journey of elimination
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Hello everyone, I'm a 39 yrs old female. Some months ago I started my elimination process. I haven't been feeling well for the last 6.5 years, in and out of jobs and life in general. I was doing great on 3 gr of Armour for 2 years up until mid 2017 and then crashed. Trying to resolve the mystery of
Incoguto
in
Thyroid UK
4 months ago
Recommendations for places to purchase T3 meds please
Please could you DM me your recommendations for places to purchase T3 meds. Many thanks ❤️
Please could you DM me your recommendations for places to purchase T3 meds. Many thanks ❤️
Flaxjax
in
Thyroid UK
5 months ago
low lymphocytes in blood. High white cells in urine. Should I be worried?
Recently had a letter from rheumatologist saying my lymphocytes are low 0.5. And +++ Leukocytes in urine. As well as low vitamin D & low ferritin. I take Vit D anyway and am on MMF & prednisolone 7mg . Should I be worried? My named rheumatology team are not helpful at all, these results only came
Recently had a letter from rheumatologist saying my lymphocytes are low 0.5. And +++ Leukocytes in urine. As well as low vitamin D & low ferritin. I take Vit D anyway and am on MMF & prednisolone 7mg . Should I be worried? My named rheumatology team are not helpful at all, these results only came
Beau2016
in
LUPUS UK
5 months ago
Dodo appointment today 😠
Merry Christmas everyone 🎄 Well I've just come from the most awful endo appointment ever, I've seen this endo several time and each time she as dismissed me with changing my thyroid medication. So far she as changed me from T4 to T3 then Back to T4 then T3 again, thinking she's going to get a different
Merry Christmas everyone 🎄 Well I've just come from the most awful endo appointment ever, I've seen this endo several time and each time she as dismissed me with changing my thyroid medication. So far she as changed me from T4 to T3 then Back to T4 then T3 again, thinking she's going to get a different
birkie
in
Thyroid UK
5 months ago
What causes subclinical hypothyroidism?
My brief history: Diagnosed subclincal last year and have felt persistently awful on all doses of levo (25-75mcg) and 75 pushed my t4 slightly too high. The side effects of it have been debilitating and in many ways I feel worse taking it. 25mcg puts my t4 at around 18 which seemed high for a tiny dose
My brief history: Diagnosed subclincal last year and have felt persistently awful on all doses of levo (25-75mcg) and 75 pushed my t4 slightly too high. The side effects of it have been debilitating and in many ways I feel worse taking it. 25mcg puts my t4 at around 18 which seemed high for a tiny dose
GreenTealSeal
in
Thyroid UK
3 months ago
Advice please on latest results after dose decrease
Dear all, for the last 3 months I've been taking 112 levo (eutirox) and 10ml T3 Liotir (liquid). A slight reduction from the 125 levo I was taking when I last posted.My results (using protocol advised here) are as follows: Ft3 2.92 (2.30-4.20) 3 x months ago on 125 levo - 3.18 Ft4 0.93 (0.89-1.76)
Dear all, for the last 3 months I've been taking 112 levo (eutirox) and 10ml T3 Liotir (liquid). A slight reduction from the 125 levo I was taking when I last posted.My results (using protocol advised here) are as follows: Ft3 2.92 (2.30-4.20) 3 x months ago on 125 levo - 3.18 Ft4 0.93 (0.89-1.76)
Sandytango
in
Thyroid UK
2 months ago
Update on what was thought was PMR
He'llo everyone , I first posted on hear after my gp said he thought I had PMR. I took 20 mg of pred for 10 days. No improvement so more blood tests, and finally I had a Cervical spinal MRI in January. This has revealed some issues with Spurs on some vertebrae and general wear and tear.However te MRI
He'llo everyone , I first posted on hear after my gp said he thought I had PMR. I took 20 mg of pred for 10 days. No improvement so more blood tests, and finally I had a Cervical spinal MRI in January. This has revealed some issues with Spurs on some vertebrae and general wear and tear.However te MRI
Charlieanna12
in
PMRGCAuk
3 months ago
Happy holidays, need help, exhausted after med change
Hi friends, I last posted after raising my meds a bit 5 months ago. Was doing ok on that but still needed a little T3 so tried adding liothyronine (again) and it felt good for a while but then started up with side effects after a bit. I was doing a tiny amount...started with 2.5 mcg daily and then tried
Hi friends, I last posted after raising my meds a bit 5 months ago. Was doing ok on that but still needed a little T3 so tried adding liothyronine (again) and it felt good for a while but then started up with side effects after a bit. I was doing a tiny amount...started with 2.5 mcg daily and then tried
deniseross
in
Thyroid UK
5 months ago
West Sussex/Hampshire/Surrey borders endo recommendation please
Hi, I have high HDL and normal LDL. Total levels over 6. Used to be very low cholesterol before half thyroidectomy over 15 years ago due to multi nodular goitre. Now on 75mg Levo. I am also type 2 diabetic for 30 years. Also low ferritin approx 30 despite taking iron daily. Recently given a statin
Hi, I have high HDL and normal LDL. Total levels over 6. Used to be very low cholesterol before half thyroidectomy over 15 years ago due to multi nodular goitre. Now on 75mg Levo. I am also type 2 diabetic for 30 years. Also low ferritin approx 30 despite taking iron daily. Recently given a statin
debfinch
in
Thyroid UK
2 months ago
Looks Like My Cholesterol Is High, Yikes
I've spent the best part of the day at my local hospital today. I saw my GP as I'd been experiencing increasing shortness of breath over the last week or so and as I had pericarditis last summer I think they wanted to be sure it wasnt anything similar. So I got sent to the one stop shop aka SDEC, same
I've spent the best part of the day at my local hospital today. I saw my GP as I'd been experiencing increasing shortness of breath over the last week or so and as I had pericarditis last summer I think they wanted to be sure it wasnt anything similar. So I got sent to the one stop shop aka SDEC, same
Sparklingsunshine
in
Thyroid UK
3 months ago
T3 prescribing
My endo and gp have decided to remove my prescription for Liothyronine and want me to be on levo only. I'm in Cumbria. May I have the list of T3 doctors or endos that might prescribe lio on the NHS, if there even is such a thing. I can buy my own but my supply is reliant on someone else bringing it
My endo and gp have decided to remove my prescription for Liothyronine and want me to be on levo only. I'm in Cumbria. May I have the list of T3 doctors or endos that might prescribe lio on the NHS, if there even is such a thing. I can buy my own but my supply is reliant on someone else bringing it
carolinegodlonton
in
Thyroid UK
5 months ago
Please enlighten me!!!
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
I have not had labs since 2023 and needed new RX. The following are results from 4/11 at which time I had not taken any thyroid meds for one week. I had really been concerned about the possibility of heart issues due to over 6 months of extreme fatigue, inability to do even light excercise, shortness
milkgoat
in
Thyroid UK
17 days ago
Test Results and heart flutters
Hello everyone, I'm new on here. So glad to have found this site! I've posted before for a friend but now I'm looking for some help with my own thyroid medication. I've had hashimotos for 34 years (since I was 20yrs old) and been on levothyroxine for most of that time. Mostly I've been ok-ish. Just
Hello everyone, I'm new on here. So glad to have found this site! I've posted before for a friend but now I'm looking for some help with my own thyroid medication. I've had hashimotos for 34 years (since I was 20yrs old) and been on levothyroxine for most of that time. Mostly I've been ok-ish. Just
LoveAndPeas
in
Thyroid UK
2 months ago
Update on my daughter - 5 months later - Tell me what would you do if you were me? Please please help!
Previous Post
: https://healthunlocked.com/thyroiduk/posts/150084606/second-opinion-for-my-daughter-ruling-out-thyroid-opinion-on-vitamins We have followed the priorites and action plan in that above post pretty closely. .
MY QUESTION:
Do I start her on Levo. Or. Do I wait one more
Previous Post
: https://healthunlocked.com/thyroiduk/posts/150084606/second-opinion-for-my-daughter-ruling-out-thyroid-opinion-on-vitamins We have followed the priorites and action plan in that above post pretty closely. .
MY QUESTION:
Do I start her on Levo. Or. Do I wait one more
FallingInReverse
in
Thyroid UK
2 months ago
hashimotos and b12
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
Rowing2
in
Pernicious Anaemia Society
29 days ago
Male hormone tests
Hi all, My partner has had his hormone tests back, helpfully they don’t have any measurements on them. They all look fine, apart from testosterone is a bit high. FSH is 10.2, LH 3.6, testosterone is 28 and prolactin 145. His sperm analysis shows low sperm count and low motility. Could the high
Hi all, My partner has had his hormone tests back, helpfully they don’t have any measurements on them. They all look fine, apart from testosterone is a bit high. FSH is 10.2, LH 3.6, testosterone is 28 and prolactin 145. His sperm analysis shows low sperm count and low motility. Could the high
Porridge98
in
Fertility Network UK
2 months ago
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