Search
Search
About
Log in
Join
Experiences with
Aminolevulinic Acid
Posts
Communities
4,102 public posts
Filter results
‘Supplementing’ supplements with whole-foods.
Before Parkinson’s symptoms came into my husband’s life, we generally tried to get all our nutrients from the food we ate (and had to supplement B12, D, and omega 3 because of a plant-based diet). Since following sites like this, we have added more B vitamins (B complex, B1, more B12), and magnesium
Before Parkinson’s symptoms came into my husband’s life, we generally tried to get all our nutrients from the food we ate (and had to supplement B12, D, and omega 3 because of a plant-based diet). Since following sites like this, we have added more B vitamins (B complex, B1, more B12), and magnesium
Ashti
in
Cure Parkinson's
1 year ago
Obeticholic acid
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia 😊
Hi everyone I was diagnosed around 5 years ago. Unfortunately I am not fully responding to first line treatment Urso. The Dr's are suggesting that I should start on Obeticholic Acid. I'm a little apprehensive due to the side effects listed. Is there anyone here who could advise please? Tia 😊
Marj6364
in
PBC Foundation
2 years ago
Elevated parathyroid hormone?
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Is there any research, data, or personal experience with having parathyroid levels, but not blood calcium levels, become elevated while taking alendronate? I had been on alendronate very successfully (no side effects and a stabilized DEXA) for about 6 months when my TSH to monitor my decade long hypothyroidism
Loveballet
in
Osteoporosis Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
denosumab injections
Hi Everyone, I’m hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldn’t tolerate. They changed me to Anastrozole which I’m ok
Hi Everyone, I’m hoping to get some advice so I can make an informed decision about treatment with denosumab. I am 61 and I had a small hormone-related breast cancer removed at the start of 2020. Subsequently I went on Letrozole which I couldn’t tolerate. They changed me to Anastrozole which I’m ok
Calamintha
in
Bone Health and Osteoporosis UK
2 years ago
Can I Reduce The Symptoms of ADHD Taking These Supplements?
Hi everyone, I am diagnosed with ADHD last week. My psychiatrist prescribed me Strattera (Atomoxetine). I have heart arryhtmia and learned that it is not recommended to use Straterra if you have heart arryhtmia. Also I learned that sudden deaths and stroke have been reported in adults taking atomoxetine
Hi everyone, I am diagnosed with ADHD last week. My psychiatrist prescribed me Strattera (Atomoxetine). I have heart arryhtmia and learned that it is not recommended to use Straterra if you have heart arryhtmia. Also I learned that sudden deaths and stroke have been reported in adults taking atomoxetine
BusyTraffic
in
CHADD's Adult ADHD Support
1 year ago
Expiration date
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
After reading about the (supposed?) shortage of B12 in UK, I, too, am wondering if PanPharma’s shortened expiration date from 2 years to one year has contributed to this perceived shortage. Have we gotten the final answer on why PanPharma shortened their expiry date? Does anyone know if the inactive
EiCa
in
Pernicious Anaemia Society
2 years ago
Anyone clued up on bone health please?
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
I recently had a bone scan and was very concerned to learn that there had been severe degenerative changes to both my spine and hips which weren't expected as my scan 3 years ago wasn't bad. They did take me off Alendronic Acid 18 months ago at which time I also went gluten and dairy free (found out
Delgor
in
Thyroid UK
2 years ago
Fungus used in Chinese medicine improves sleep in rodents (and also impacts glutamine/glutamate)
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
This isn't an easy read but, if the results can be relied on, looks promising https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8837518/ Abstract Ganoderma resinaceum is a valuable Chinese medicine. This study aimed to investigate whether a G. resinaceum alcohol extract (GRAE) improves sleep, and analyze
Hidden
in
Restless Legs Syndrome
1 year ago
My Stack - Need Suggestions
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
I have: Vitamin D3 600 IU+K2 55mcg plant based Vitamin D3 5000 IU Vitamin B1 HCL 500 mg capsule Vitamin B1 HCL 100 mg capsule Vitamin B3 Nicotinic Acid 100 mg capsule Methyl B Complex Melatonin 10 mg Magnesium L-Threonate Vinpocetine 10 mg Probiotics 50 billion CFU 16 strain blend PS128 and PS128+
JayPwP
in
Cure Parkinson's
1 year ago
Sleep Aid
Anyone use children’s Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the children’s Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afib…
Anyone use children’s Benadryl or Unisom to help sleep? Or another remedy? My doctor actually suggested the children’s Benadryl but it was the first time I ever saw him, he is a family med doc and may not have been aware yet that I have controlled afib…
Jafib
in
Atrial Fibrillation Support
1 year ago
Diagnosis Issue
Hi All, I have been having issues with my periods since they began but the last 3 years have gotten much worse. Every period I have seems to be worse than the last. After a lot of back and forth with the GP and having tried the pill, mini pill and coil over the last 6 years, I persuaded them to refer
Hi All, I have been having issues with my periods since they began but the last 3 years have gotten much worse. Every period I have seems to be worse than the last. After a lot of back and forth with the GP and having tried the pill, mini pill and coil over the last 6 years, I persuaded them to refer
RioBeau
in
Endometriosis UK
2 years ago
Dosage of Ursodiol
Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I have PBC. My other levels, GGT and Alk Phos are within normal range. My doctor has prescribed Ursodiol for me to treat the PBC and the dosage seems high. I am to take a 500mg tablet in the morning and a 250mg tablet at
Looking at my M2 Antibody levels from the last 2 blood panels, it looks like I have PBC. My other levels, GGT and Alk Phos are within normal range. My doctor has prescribed Ursodiol for me to treat the PBC and the dosage seems high. I am to take a 500mg tablet in the morning and a 250mg tablet at
Greenfern
in
PBCers Organization
2 years ago
Test results, a penny for your thoughts?
Hello everyone, just had my latest blood tests done. Just curious what you would say about them, if you have the time? A few months ago I went up by 12.5mcg in an attempt to bring my TSH down to around 1 where I generally feel better. My weight is a lot better these days, my heart rate has finally calmed
Hello everyone, just had my latest blood tests done. Just curious what you would say about them, if you have the time? A few months ago I went up by 12.5mcg in an attempt to bring my TSH down to around 1 where I generally feel better. My weight is a lot better these days, my heart rate has finally calmed
Starling87
in
Thyroid UK
1 year ago
Osteoporosis/alendronic acid
I have had a reasonably uneventful PMR journey so far 🤞. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
I have had a reasonably uneventful PMR journey so far 🤞. Diagnosed April 2020 slow pred reduction from 15mg now reducing 5.5mg/5m. I also take lansoprazole15mg/ vitamin D 800iu as prescribed by my GP since first diagnosis ( she said my diet was high enough in calcium) and following advice on this invaluable
Clarbeston
in
PMRGCAuk
2 years ago
Campaign for Changes
Firstly Happy New Year to you all. Just wanted to let you know about the work we are doing to raise awareness. We are launching a new epilepsy first aid campaign this year, and we continue to work around benefits, employment and the cost of living. You can keep up today with our campaigns work on
Firstly Happy New Year to you all. Just wanted to let you know about the work we are doing to raise awareness. We are launching a new epilepsy first aid campaign this year, and we continue to work around benefits, employment and the cost of living. You can keep up today with our campaigns work on
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
1 year ago
My rheumy wants me off of prednisone as soon as possible
First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't happy with my first rheumy appointment as she thinks I don’t need steroids because my inflammation markers are in a normal range and this is not a
First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't happy with my first rheumy appointment as she thinks I don’t need steroids because my inflammation markers are in a normal range and this is not a
Morningdew62
in
PMRGCAuk
2 years ago
The Human Serum Metabolome of Vitamin B-12 Deficiency and Repletion, and Associations with Neurological Function in Elderly Adults
Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis and nothing else. The occasional use of methylmalonic acid and homocysteine as additional tests. And that's your lot, folks. In my
Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis and nothing else. The occasional use of methylmalonic acid and homocysteine as additional tests. And that's your lot, folks. In my
helvella
in
Pernicious Anaemia Society
2 years ago
REMs scan result
Hi everyone, just wanted to share my good news with you all. I broke my back after a high impact fall from my kitchen worktop onto the floor in 2020. I had to fight for a Dexa scan after being advised to start bone meds. I had the scan last March results as follows. Dual Femur total -1.5 and lumbar spine
Hi everyone, just wanted to share my good news with you all. I broke my back after a high impact fall from my kitchen worktop onto the floor in 2020. I had to fight for a Dexa scan after being advised to start bone meds. I had the scan last March results as follows. Dual Femur total -1.5 and lumbar spine
Unluckylors
in
Bone Health and Osteoporosis UK
2 years ago
B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Hoyle
in
Pernicious Anaemia Society
2 years ago
alendronic acid and tooth extraction
morning all I managed to crack a tooth on a tea cake last week 😳 and after an emergency visit to the dentist I’m being referred to a hospital for an extraction because of the Alendronic acid ☹️ I have been on pred ( 5mgs daily at present ) as well as Alendronic for 2 years I am also taking Lefludamide
morning all I managed to crack a tooth on a tea cake last week 😳 and after an emergency visit to the dentist I’m being referred to a hospital for an extraction because of the Alendronic acid ☹️ I have been on pred ( 5mgs daily at present ) as well as Alendronic for 2 years I am also taking Lefludamide
Geordieland
in
PMRGCAuk
2 years ago
1
...
30
31
32
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
599 results
Endometriosis UK
499 results
Thyroid UK
397 results
View top 10 communities
Sort by
Most Relevant
Newest