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Dry eyes
Hi.. I have PA am self injecting every few weeks but have recently developed irritation in my eyes.. I think it’s dry eyes. I live in a hot country so have to use fans which is a pain but I wondered if it’s just another symptom of getting older (I’m 52) or if it’s linked to the PA ? Anyone got any ideas
Hi.. I have PA am self injecting every few weeks but have recently developed irritation in my eyes.. I think it’s dry eyes. I live in a hot country so have to use fans which is a pain but I wondered if it’s just another symptom of getting older (I’m 52) or if it’s linked to the PA ? Anyone got any ideas
lifegems
in
Pernicious Anaemia Society
5 years ago
I'm new here...
I'm here because I was searching for a support group online and found this group. I am a 35 year old female and I am diagnosed with PTSD, generalized anxiety disorder, and recurrent clinical depression. Even though I was diagnosed with these conditions about two years, I'm sure I've had some form of
I'm here because I was searching for a support group online and found this group. I am a 35 year old female and I am diagnosed with PTSD, generalized anxiety disorder, and recurrent clinical depression. Even though I was diagnosed with these conditions about two years, I'm sure I've had some form of
bluephoenix
in
Anxiety and Depression Support
5 years ago
The saga continues...hit a brick wall
Hello all! Hope your summer was enjoyable! Mine was pretty good until recently. Part 1: I’ve hit a wall with the prednisone usage and the doctors. I can’t get down below 35mg without my temple and eye pain coming back. I’ve been on the prednisone for over 3 months at a high dose. I did not have many
Hello all! Hope your summer was enjoyable! Mine was pretty good until recently. Part 1: I’ve hit a wall with the prednisone usage and the doctors. I can’t get down below 35mg without my temple and eye pain coming back. I’ve been on the prednisone for over 3 months at a high dose. I did not have many
Kern1410
in
PMRGCAuk
5 years ago
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Optimel Manuka eye drops and gels
Hi all, Just wondering if anyone’s tried these and had any success with their eye symptoms? I’ve just had both the drops and gel delivered after seeing a study on it significantly improving people’s MGD etc. I’ve already exhausted the ophthalmologists under the NHS help after less than a year treatment
Hi all, Just wondering if anyone’s tried these and had any success with their eye symptoms? I’ve just had both the drops and gel delivered after seeing a study on it significantly improving people’s MGD etc. I’ve already exhausted the ophthalmologists under the NHS help after less than a year treatment
Littlemisssunshine87
in
The Australian Sjögren's Syndrome Association
5 years ago
Feeling Supported
I have been having a torrid time over the last few weeks. It's like the Pred is no longer working (diagnosed in May 2017). I stagger around like a half dead, manky penguin! I have never got below 9 mg daily and once down there have experienced flares every time. But this latest bout, whether brought
I have been having a torrid time over the last few weeks. It's like the Pred is no longer working (diagnosed in May 2017). I stagger around like a half dead, manky penguin! I have never got below 9 mg daily and once down there have experienced flares every time. But this latest bout, whether brought
Louisa1840
in
PMRGCAuk
5 years ago
B12 Injection?
Hi there. I heard through the grapevine (and not from allopathic docs) that B12 injections can help with fatigue, mood, and other co-occuring symptoms we all face (in the autoinflammatory and autoimmune worlds). I had my first today to try it and the nurse said it would be fairly soon that I would have
Hi there. I heard through the grapevine (and not from allopathic docs) that B12 injections can help with fatigue, mood, and other co-occuring symptoms we all face (in the autoinflammatory and autoimmune worlds). I had my first today to try it and the nurse said it would be fairly soon that I would have
Stm252
in
Behçet's UK
5 years ago
Lucentis for Central Serous Retinopathy
I have had bilateral CSR for over four years and the hospital did not offer treatment for the first three years. Last year, I moved house and so moved hospital too. My new opthamologist is much more proactive. Earlier this year I tried Epleronone but it did not work. My consultant has successfully applied
I have had bilateral CSR for over four years and the hospital did not offer treatment for the first three years. Last year, I moved house and so moved hospital too. My new opthamologist is much more proactive. Earlier this year I tried Epleronone but it did not work. My consultant has successfully applied
Jogie
in
Macular Society
5 years ago
Hospice-ask your doctor and look into it.
Our neurologist recommended hospice for my husband in dec 2018. My father was dying and put off until now. We met, he was approved and I can’t tell you how helpful after one visit -all within an hour and a half. His lift recliner had broken, we got a new one this afternoon. He will get a hospital bed
Our neurologist recommended hospice for my husband in dec 2018. My father was dying and put off until now. We met, he was approved and I can’t tell you how helpful after one visit -all within an hour and a half. His lift recliner had broken, we got a new one this afternoon. He will get a hospital bed
susantigner
in
PSP Association
5 years ago
I need to cut my nails ((
Have you noticed how crazy they are about nails? Women and men look at your hands and see who you are. Probably because of connetive tissue dysplasia my nails are very weak. When l try to grow them, they break or bend. Today my nail bended again, it was painful, so l decided to cut them. I used collagen
Have you noticed how crazy they are about nails? Women and men look at your hands and see who you are. Probably because of connetive tissue dysplasia my nails are very weak. When l try to grow them, they break or bend. Today my nail bended again, it was painful, so l decided to cut them. I used collagen
Dysplasianna
in
MY SKIN
5 years ago
My story so far
Hi. I was diagnosed with PBC only last January although I’m 73. I live in France so I have to contend with the language as well as the disease! I’m unable to say which is harder! At present I’m only stage 1 and responding well to the medication. My symptoms are very dry eyes and mouth, and almost constant
Hi. I was diagnosed with PBC only last January although I’m 73. I live in France so I have to contend with the language as well as the disease! I’m unable to say which is harder! At present I’m only stage 1 and responding well to the medication. My symptoms are very dry eyes and mouth, and almost constant
Marmalady
in
PBC Foundation
5 years ago
Pegasys - possibly closer to slowing progression than anything else?
Hopefully this is not an irresponsible header since may raise false hopes, especially for those who can not tolerate Pegasys. However the quote is from a highly respected MPN specialist today. I saw him about 18 months ago and asked, if you were me, would you start Pegasys (I was coping on venesections
Hopefully this is not an irresponsible header since may raise false hopes, especially for those who can not tolerate Pegasys. However the quote is from a highly respected MPN specialist today. I saw him about 18 months ago and asked, if you were me, would you start Pegasys (I was coping on venesections
Paul123456
in
MPN Voice
5 years ago
freaking out
Okay guys, I think I am actually scared to the bone right now. I woke up with the slight ringing ears and other than that I was good. My sore throat is gone which idk why I had it. Now I went to the store and the lights were very flourecent. I do have floaters in my eyes fyi. Anyways, my vision started
Okay guys, I think I am actually scared to the bone right now. I woke up with the slight ringing ears and other than that I was good. My sore throat is gone which idk why I had it. Now I went to the store and the lights were very flourecent. I do have floaters in my eyes fyi. Anyways, my vision started
janeths466
in
Anxiety Support
5 years ago
Pegasys, does it work for you ?
Hi ET peeps. I am on this forum from my son who was diagnosed with ET after a stroke at age 10 . he has been treated with Hydroxyurea untill last year when we switched to Ruxolitnib. The later has been less successful at getting his Platelets down below 1,000. I have noticed lately a lot of people
Hi ET peeps. I am on this forum from my son who was diagnosed with ET after a stroke at age 10 . he has been treated with Hydroxyurea untill last year when we switched to Ruxolitnib. The later has been less successful at getting his Platelets down below 1,000. I have noticed lately a lot of people
Louforjack
in
MPN Voice
5 years ago
Anticoagulant and small haemorrhage on optical disc.
Last week I went to the opticians after having a new, rather prominent, floater in the left eye. The optometrist noticed a small haemorrhage on the disc. This, she said, could be vitreous detachment (which is a normal part of the ageing process), a sign of incipient glaucoma (although she said the disc
Last week I went to the opticians after having a new, rather prominent, floater in the left eye. The optometrist noticed a small haemorrhage on the disc. This, she said, could be vitreous detachment (which is a normal part of the ageing process), a sign of incipient glaucoma (although she said the disc
Hidden
in
AF Association
5 years ago
No more eye injections with an implantable pump!
Coming soon! No more eye injections! My retinal specialist told me a Mini Drug Pump for Ophthalmic Use is going to be approved for Lucentis. (Like an insulin pump device) I'm not sure if Eylea will be offered as well. He said it should be available in a year or so. Has anyone else heard of this? I
Coming soon! No more eye injections! My retinal specialist told me a Mini Drug Pump for Ophthalmic Use is going to be approved for Lucentis. (Like an insulin pump device) I'm not sure if Eylea will be offered as well. He said it should be available in a year or so. Has anyone else heard of this? I
RandyM
in
Macular Society
5 years ago
My Iritis flared on Humira and MTX
Hurts like the dickens. I am using drops too. Wondering if it is because I stopped taking prednisone a week agao? Seems weird that with all the meds I am on, I am still getting these flares. I am scared. I do not want to lose my eye.
Hurts like the dickens. I am using drops too. Wondering if it is because I stopped taking prednisone a week agao? Seems weird that with all the meds I am on, I am still getting these flares. I am scared. I do not want to lose my eye.
OneLove2019
in
LUPUS UK
5 years ago
Graves and eye lid surgery
Hello I’m looking for anyone who has Graves’ disease and knows anything about the subsequent eye surgery. I was diagnosed with Graves’ disease in February this year. It also affects my eyes, with them being a bit starey. Not bulgy but definitely changed appearance. My eyelids have retracted which is
Hello I’m looking for anyone who has Graves’ disease and knows anything about the subsequent eye surgery. I was diagnosed with Graves’ disease in February this year. It also affects my eyes, with them being a bit starey. Not bulgy but definitely changed appearance. My eyelids have retracted which is
Yorkie2019
in
Thyroid UK
5 years ago
"Dry skin" and Pegasys
Many people here report that Pegasys gives them dry skin. No doubt this is often true because Pegasys has a GIGANTIC range of side-effects. But I wanted to call attention to something else Pegasys does which could be confused with dry skin. Pegasys is a recombinant alpha interferon (IFN-α) and as
Many people here report that Pegasys gives them dry skin. No doubt this is often true because Pegasys has a GIGANTIC range of side-effects. But I wanted to call attention to something else Pegasys does which could be confused with dry skin. Pegasys is a recombinant alpha interferon (IFN-α) and as
pnArt
in
MPN Voice
5 years ago
Uniform
For years I used to pipe on an honor guard. I was asked by the local VFW to pipe a military funeral Wednesday; the first time I've piped for anyone outside of family since I was injured, left the service, and got sick. As uniforms left too long unworn in closets have a tendency to shrink, I found myself
For years I used to pipe on an honor guard. I was asked by the local VFW to pipe a military funeral Wednesday; the first time I've piped for anyone outside of family since I was injured, left the service, and got sick. As uniforms left too long unworn in closets have a tendency to shrink, I found myself
Hidden
in
Heal My PTSD
5 years ago
Graves and eye surgery
Hello I’m looking for anyone who has Graves’ disease and knows anything about the subsequent eye surgery. I was diagnosed with Graves’ disease in February this year. It also affects my eyes, with them being a bit starey. Not bulgy but definitely appear “wide”. I have seen an eye specialist and am on
Hello I’m looking for anyone who has Graves’ disease and knows anything about the subsequent eye surgery. I was diagnosed with Graves’ disease in February this year. It also affects my eyes, with them being a bit starey. Not bulgy but definitely appear “wide”. I have seen an eye specialist and am on
Hidden
in
Thyroid UK
5 years ago
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