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So confused
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
I've just come out of an appointment with a lupus specialist. I'm more confused than before. He said that even though I have a diagnosis for lupus, he believes I might have fibromyalgia. He said that my steroid injections wouldn't work with fibromyalgia, after I had told him that I'm significantly better
purple-lou
in
LUPUS UK
11 years ago
AMA and ANA
Is anyone else both AMA and ANA positive?
Is anyone else both AMA and ANA positive?
Hidden
in
PBC Foundation
12 years ago
Confused after first Haematology Consultant Appointment, please Help
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
Hi, I just wanted to ask if anyone has had the same experience at their first consultant appointment? Yesterday morning met my haematologist consultant for the first time (Warwick Hospital), and came out after my 20 min consult more confused than when I went in. So far I have had 2 positive
dragtalav
in
Hughes Syndrome APS Forum
12 years ago
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You guys could diagnose me but the consultant won't!
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Well I got a letter yesterday from the consultant telling me that despite the ANA being 'weakly' positive for the third time running (1st time 1:320 2nd time not sure 3rd time 1:160) he was passing me back to my GP as I didn't show any of the symptoms of lupus! He also said that 5-10% of the population
Angelcake
in
LUPUS UK
12 years ago
I wonder why Lupus takes a while to show up!? if ever ? views please !?
To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until diagnosis did Lupus show itself in a blood test ? I know it may never but am curious ! x I didnt ask gp to refer me to st thomas s , i dont know
To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until diagnosis did Lupus show itself in a blood test ? I know it may never but am curious ! x I didnt ask gp to refer me to st thomas s , i dont know
larissa
in
LUPUS UK
12 years ago
ANA positive. ENA positive showing PCNA, dsDNA, SM, Scl 70, Jo 1 + couple of others... Lupus? I also have IIH and psuedopappiladaema
browneyes2012
in
LUPUS UK
12 years ago
Advice please - I dont understand diagnosis or lack of ....
Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred to a rhuematologist and was first told the joint pain was caused because of the graves disease. I had a thyroidectomy last year and the thyroid
Hi everyone I was diagnosed with Graves disease 2 1/2years ago and around the same time started with joint pain. After a long battle I was finally referred to a rhuematologist and was first told the joint pain was caused because of the graves disease. I had a thyroidectomy last year and the thyroid
LULU85
in
LUPUS UK
12 years ago
rhuemy app !!!
Well just got back from app . I showed him photos of my red face and across my nose .,had my 4th positive ANA and symptoms. He said he can diagnose Connective Tissue Disease but one difinitative bloods for lupus has always been negative and he is waiting for the results of my recent one . Dont think
Well just got back from app . I showed him photos of my red face and across my nose .,had my 4th positive ANA and symptoms. He said he can diagnose Connective Tissue Disease but one difinitative bloods for lupus has always been negative and he is waiting for the results of my recent one . Dont think
larissa
in
LUPUS UK
12 years ago
st thomas'
I have managed to get my app moved to 3 wks time with my Rheumy after loads of symptoms, fibro, and 3 positive ANA s' I am hopefully gonna get some answers as i'm so fed up being in limbo! Either way i have decided that i will ask the GP if he can refer me , to get a diagnosis or to look at my meds
I have managed to get my app moved to 3 wks time with my Rheumy after loads of symptoms, fibro, and 3 positive ANA s' I am hopefully gonna get some answers as i'm so fed up being in limbo! Either way i have decided that i will ask the GP if he can refer me , to get a diagnosis or to look at my meds
larissa
in
LUPUS UK
12 years ago
how many days does it take to get Ana blood test result back from doctors?
hi if you had a positive Ana blood test .how many days did it take to receive results by post from doctors? if you rang doctors to ask about results how many days did you leave it? i have spent 7yrs having all my symptoms dismissed by GPS as just anxiety.so when i come across lupus on the Internet
hi if you had a positive Ana blood test .how many days did it take to receive results by post from doctors? if you rang doctors to ask about results how many days did you leave it? i have spent 7yrs having all my symptoms dismissed by GPS as just anxiety.so when i come across lupus on the Internet
flint1
in
LUPUS UK
12 years ago
Please help me :o( .... is this Fibromyligia ????
The rhemy I saw in the beginning of Oct says that he thinks I have fibromyligia, when I saw him I was on a good day ... felt normal .. looked normal, no bad aches or pains, and I told him that had he had seen me 2 weeks previous I could barely drag myself out of bed!! They have done more tests, and
The rhemy I saw in the beginning of Oct says that he thinks I have fibromyligia, when I saw him I was on a good day ... felt normal .. looked normal, no bad aches or pains, and I told him that had he had seen me 2 weeks previous I could barely drag myself out of bed!! They have done more tests, and
weather66
in
LUPUS UK
12 years ago
Can a positive ana turn negative?
I have been ill for around four years. Symptoms include joint and muscle pain, migraines, fatigue, cognitive difficulties, hair loss, burning shins with hair loss, pleurisy twice, arthritis in hands (confirmed dx) wrist pain, hip pain, very bad leg pain especially at night, v. slight redness over nose
I have been ill for around four years. Symptoms include joint and muscle pain, migraines, fatigue, cognitive difficulties, hair loss, burning shins with hair loss, pleurisy twice, arthritis in hands (confirmed dx) wrist pain, hip pain, very bad leg pain especially at night, v. slight redness over nose
melodypond
in
LUPUS UK
12 years ago
Back pain????
Hello Can anybody tell me if rheumatoid arthritis can cause bad back pain that's constantly there? I don't know if I have RA, but I have many of the symptoms, pains in fingers, feet, positive ana titer etc. I'm due to see my rheumatologist next week and I may find out what's wrong, not expecting
Hello Can anybody tell me if rheumatoid arthritis can cause bad back pain that's constantly there? I don't know if I have RA, but I have many of the symptoms, pains in fingers, feet, positive ana titer etc. I'm due to see my rheumatologist next week and I may find out what's wrong, not expecting
natal1a
in
NRAS
12 years ago
Hi , told had lupus by dermotologist referred rhuem having 2 possitive blood first border second accel have symptoms rhuemi says not have it
I have researched the different effects of lupus and know in myself that is what i have from being referred with a diagnosis to being told i will not "be Labelled" by the rhuemi is very confusing and even more upsetting. Can your bloods show positive ana and anticoag but not have it with numerous symptoms
I have researched the different effects of lupus and know in myself that is what i have from being referred with a diagnosis to being told i will not "be Labelled" by the rhuemi is very confusing and even more upsetting. Can your bloods show positive ana and anticoag but not have it with numerous symptoms
farah1
in
LUPUS UK
12 years ago
ANA tests
Hello everyone I have never posted on this forum before, only in the Lupus and Fibromyalgia ones. I just wanted to ask for a bit of general advice on your diagnosis. I have not yet had a diagnosis but have been ill all year. I have pains in my back, neck, fingers, knees, and feet. Some days are
Hello everyone I have never posted on this forum before, only in the Lupus and Fibromyalgia ones. I just wanted to ask for a bit of general advice on your diagnosis. I have not yet had a diagnosis but have been ill all year. I have pains in my back, neck, fingers, knees, and feet. Some days are
natal1a
in
NRAS
12 years ago
What causes fibromyalgia?
Ok so I know nobody knows a definitive answer to that question, but I just wondered if people remember anything significant around the time they got ill? I haven't yet had a diagnosis and the only test that keeps coming back positive is the ana test, but I went to India in November, caught a bad stomach
Ok so I know nobody knows a definitive answer to that question, but I just wondered if people remember anything significant around the time they got ill? I haven't yet had a diagnosis and the only test that keeps coming back positive is the ana test, but I went to India in November, caught a bad stomach
natal1a
in
Fibromyalgia Action UK
12 years ago
Hellooooo
Hey all I am new to this forum. I have previously been posting on the lupus forum as i havent had a diagnosis of anything yet. All i know is i have had a positive ana titer three times but nothing more specific has shown up in my blood. Fibromyalgia has been mentioned a few times but to be honest
Hey all I am new to this forum. I have previously been posting on the lupus forum as i havent had a diagnosis of anything yet. All i know is i have had a positive ana titer three times but nothing more specific has shown up in my blood. Fibromyalgia has been mentioned a few times but to be honest
natal1a
in
Fibromyalgia Action UK
12 years ago
So Down in the dumps right now :o(
Hi All I went to the doctors this morning to get the results of my ANA test, and they have come back negative. I know I should be pleased, but I just want some answers. I have been having aches and pains, severe exhaustion, blood spots, rashes on my feet when I go in the sun, very painful feet
Hi All I went to the doctors this morning to get the results of my ANA test, and they have come back negative. I know I should be pleased, but I just want some answers. I have been having aches and pains, severe exhaustion, blood spots, rashes on my feet when I go in the sun, very painful feet
weather66
in
LUPUS UK
12 years ago
Limbo !!!
O.k , went to rheumatologist and because the Hydrochloriquine hasn't made much difference he now thinks all my symptoms are probably down to my Fibro . My skin is stinging again today cause of sitting outside for 30 mins hmmmmmm, not sure this is Fibro !!!!!!!?????? His advise is to stop the Hydro..
O.k , went to rheumatologist and because the Hydrochloriquine hasn't made much difference he now thinks all my symptoms are probably down to my Fibro . My skin is stinging again today cause of sitting outside for 30 mins hmmmmmm, not sure this is Fibro !!!!!!!?????? His advise is to stop the Hydro..
larissa
in
LUPUS UK
12 years ago
Latest rheumatology appointment... Now I really don't know what to think!!!!!
Hey everyone I joined a few weeks ago and have posted some questions before about how hard it is to get a diagnosis / to figure out what's going on etc. first started feeling ill at the beginning of this year, joint and muscle pains, exhaustion, feeling sick, headaches etc. a very good gp thought
Hey everyone I joined a few weeks ago and have posted some questions before about how hard it is to get a diagnosis / to figure out what's going on etc. first started feeling ill at the beginning of this year, joint and muscle pains, exhaustion, feeling sick, headaches etc. a very good gp thought
natal1a
in
LUPUS UK
12 years ago
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