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Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
5 months ago
PMR Flare
So I think I might be in full flare. Last September, I was told to taper off pred. I ignored what I was told about being down to zero by the end of the year as I considered it unrealistic and went at my own pace. By mid Feb, I was hovering around 3/2.5/2 mg and by then, my legs, hips and back were
So I think I might be in full flare. Last September, I was told to taper off pred. I ignored what I was told about being down to zero by the end of the year as I considered it unrealistic and went at my own pace. By mid Feb, I was hovering around 3/2.5/2 mg and by then, my legs, hips and back were
Gimme
in
PMRGCAuk
2 months ago
Hubby's MOT
So my husband, aged 79, was called into GP surgery for MOT as not been seen since before COVID. Bloods taken, BP, weight etc. so I suggested he get a printout+ low+ behold lots of tests taken not discussed (even tho told all ok) - it was a phone call. One test was thyroid function test : TSH, T4 but
So my husband, aged 79, was called into GP surgery for MOT as not been seen since before COVID. Bloods taken, BP, weight etc. so I suggested he get a printout+ low+ behold lots of tests taken not discussed (even tho told all ok) - it was a phone call. One test was thyroid function test : TSH, T4 but
Lottyplum
in
Thyroid UK
1 month ago
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Considerations when starting out with private endo
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
I’m thinking of going to a private Endo. Looking at the list, there’s none in my county. I can travel half hour to one that’s just private and he sounds good but that means if I do get T3 and it does work, I’ll be forever paying for it (I don’t know costs yet). There’s one that’s NHS and private
Loopnova
in
Thyroid UK
5 months ago
NDT does this medication contain fillers🤔
Hi everyone ❤️ I've been reading up on NDT, and trying to find out what if any fillers are added to the tables... I started on 12.5 vencamil on Thursday this week. As many members might know I've been off my thyroid medication since January 31st ( teva t4 gastric issues amongst other issues with t4
Hi everyone ❤️ I've been reading up on NDT, and trying to find out what if any fillers are added to the tables... I started on 12.5 vencamil on Thursday this week. As many members might know I've been off my thyroid medication since January 31st ( teva t4 gastric issues amongst other issues with t4
birkie
in
Thyroid UK
2 months ago
T3 stopped 😡
Hi everyone ❤️ As some of you may know my gp stopped my T3 until I saw the endo on Dec 27th which didn't go well😠.. My gp said I would see the endo before my T3 ran out😂 this of course never happened so she gave me one months supply to tide me over. The appointment with the endo was for thyroid medication
Hi everyone ❤️ As some of you may know my gp stopped my T3 until I saw the endo on Dec 27th which didn't go well😠.. My gp said I would see the endo before my T3 ran out😂 this of course never happened so she gave me one months supply to tide me over. The appointment with the endo was for thyroid medication
birkie
in
Thyroid UK
5 months ago
GP advice needed please!
Hello, I was (eventually) diagnosed with Hashimoto's 25 years ago (the misdiagnosis nearly killed me, I was literally a week away from a coma, the consultant said.) I've been on 150mcg on day one and 175mcg day two, for 25 years. Every time I move house, the gp decides to reduce it, then puts it back
Hello, I was (eventually) diagnosed with Hashimoto's 25 years ago (the misdiagnosis nearly killed me, I was literally a week away from a coma, the consultant said.) I've been on 150mcg on day one and 175mcg day two, for 25 years. Every time I move house, the gp decides to reduce it, then puts it back
hcmoss68
in
Thyroid UK
5 months ago
thyroidectomy
Hi l had my op to remove a non cancerous lump and half my thyroid in Dec 2023. Since then l have continued to take 125 mg thyroxine. i’ve been on this for 10years. i’m due a blood test but wanted to ask if anyone else has had tiredness/ anxiety/ muscle aches and breathlessness. l can’t seem to get back
Hi l had my op to remove a non cancerous lump and half my thyroid in Dec 2023. Since then l have continued to take 125 mg thyroxine. i’ve been on this for 10years. i’m due a blood test but wanted to ask if anyone else has had tiredness/ anxiety/ muscle aches and breathlessness. l can’t seem to get back
Sneets
in
Thyroid UK
2 months ago
update
morning everyone hope your as well as can be , I’ve now had my gallbladder removed, I’m putting on my latest results and would like to know if I can raise t3 a little bit more , I had bloods done 8/20 nothing to eat and drank only water,the only thing I did wrong was take all meds at the same time as
morning everyone hope your as well as can be , I’ve now had my gallbladder removed, I’m putting on my latest results and would like to know if I can raise t3 a little bit more , I had bloods done 8/20 nothing to eat and drank only water,the only thing I did wrong was take all meds at the same time as
Kowbie
in
Thyroid UK
1 month ago
Choices
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Calceolaria
in
Thyroid UK
5 months ago
Conns disease
I have being diagnosed with Conns Diease. 2 benign tumours on my kidneys. initially I was prescribed Spriolactone to reduce aldosterone. Potassium levels became very high. Also had diarrhoea, wheezing chest, and fatigue. Felt very poorly. Had blood test and consultant stopped the Spriolactone. Some
I have being diagnosed with Conns Diease. 2 benign tumours on my kidneys. initially I was prescribed Spriolactone to reduce aldosterone. Potassium levels became very high. Also had diarrhoea, wheezing chest, and fatigue. Felt very poorly. Had blood test and consultant stopped the Spriolactone. Some
Sony1944
in
British Heart Foundation
2 months ago
Latest blood results
No wonder I’m feeling unwell again. TSH up, T4 and T3 down. So glad I have started on 75mcgs Levo now. Hopefully I’ll start to feel better again soon.
No wonder I’m feeling unwell again. TSH up, T4 and T3 down. So glad I have started on 75mcgs Levo now. Hopefully I’ll start to feel better again soon.
MsWhistledown
in
Thyroid UK
2 months ago
Why do I suddenly feel terrible but still taking Armour?
I have been happy as a clam and able to function and be part of the world since I started Armour two grains a day in Sept 2022. This was after a year on levo that did nothing for me. Around Xmas 2023, I started feeling sluggish and constipated. Bloods were done mid Feb through my private thyroid doctor
I have been happy as a clam and able to function and be part of the world since I started Armour two grains a day in Sept 2022. This was after a year on levo that did nothing for me. Around Xmas 2023, I started feeling sluggish and constipated. Bloods were done mid Feb through my private thyroid doctor
lauraleeds666
in
Thyroid UK
2 months ago
Ambulatory B/P monitors
Hi guys, I've just noticed that there are ambulatory monitors being advertised for sale. Wouldn't it be great if they did what they claim to do ! A bit akin to the difference between testing your blood sugar level at home, which is a snap shot of that moment and an hba1c blood test which gives an
Hi guys, I've just noticed that there are ambulatory monitors being advertised for sale. Wouldn't it be great if they did what they claim to do ! A bit akin to the difference between testing your blood sugar level at home, which is a snap shot of that moment and an hba1c blood test which gives an
itsok
in
High Blood Pressure Support
2 months ago
Ferritin dropping, FT3 is not great
Hello wise ones. I'm coming up to a year since a diagnosis of Hashimotos, and on Levothyroxine. I've been trying to get the dosage increased in tiny increments of 12.5 ug after each blood test. So far I've been successful but it feels like slow progress. I'm currently taking 87.5 ug daily. My doctor
Hello wise ones. I'm coming up to a year since a diagnosis of Hashimotos, and on Levothyroxine. I've been trying to get the dosage increased in tiny increments of 12.5 ug after each blood test. So far I've been successful but it feels like slow progress. I'm currently taking 87.5 ug daily. My doctor
florasmate
in
Thyroid UK
2 months ago
ANA & Connective Tissue Disorder results Graves
Hoping for some help. I got called into the doctors on Monday to discuss my latest bloods & my continued weight loss, I had already discussed my thyroid bloods with the endocrine nurse so was not really sure what is was about. My GP said that I had tested positive for ANA & connective tissue disease
Hoping for some help. I got called into the doctors on Monday to discuss my latest bloods & my continued weight loss, I had already discussed my thyroid bloods with the endocrine nurse so was not really sure what is was about. My GP said that I had tested positive for ANA & connective tissue disease
Mah43
in
Thyroid UK
2 months ago
I have appt booked with endocrinologist re my low T3 level, what should I be pushing for? Advice for best outcome from this consultation.
My free T3 level is 4.2 (range 3.1 - 6.8) , T4 is 20.50 (range 12 - 22) and TSH is 0.311 (range 0.27 - 4.20) Taking 75mg levothyroxine currently I have made an appointment with an Endocrinologist privately, but he also is an NHS consultant at Ipswich hospital . I am going there to ask for
My free T3 level is 4.2 (range 3.1 - 6.8) , T4 is 20.50 (range 12 - 22) and TSH is 0.311 (range 0.27 - 4.20) Taking 75mg levothyroxine currently I have made an appointment with an Endocrinologist privately, but he also is an NHS consultant at Ipswich hospital . I am going there to ask for
Alternatively
in
Thyroid UK
2 months ago
Thyroid test results
I have had an underactive thyroid for 30 years. My Levothyroxine dose is now 100mcg daily and was reduced from the 125 mcg during the pandemic after I lost 3 stones in weight. I have never been given my full annual thyroid test results in the past but they have now been made accessible online. When
I have had an underactive thyroid for 30 years. My Levothyroxine dose is now 100mcg daily and was reduced from the 125 mcg during the pandemic after I lost 3 stones in weight. I have never been given my full annual thyroid test results in the past but they have now been made accessible online. When
Manycrafts
in
Thyroid UK
2 months ago
Hopefully getting closer to just a bit more tweaking...?
Right, over the speed bump that happened around Feb. After speaking to endo, reduced Levo to 50mcg and am back up to 5mcg x3/ day T3. I have been feeling more stable and a bit more alert, more energy for about 4 weeks. Just recently started slowing down again, sluggish bowels, cold intolerance, dry skin
Right, over the speed bump that happened around Feb. After speaking to endo, reduced Levo to 50mcg and am back up to 5mcg x3/ day T3. I have been feeling more stable and a bit more alert, more energy for about 4 weeks. Just recently started slowing down again, sluggish bowels, cold intolerance, dry skin
Caffeinefreezone
in
Thyroid UK
2 months ago
Add more t4 and quit t3 ?
I just got my test results back , I'm on levothyroxine 75mcg/ 5 days a week and 100mcg 2/days a week. I also take 3mcg of Cytomel. My body can't handle a higher dose of Cytomel. It makes me very anxious. I am wondering if I should go back to T4 only, maybe a bit more? (I must add that there were
I just got my test results back , I'm on levothyroxine 75mcg/ 5 days a week and 100mcg 2/days a week. I also take 3mcg of Cytomel. My body can't handle a higher dose of Cytomel. It makes me very anxious. I am wondering if I should go back to T4 only, maybe a bit more? (I must add that there were
Sofie007
in
Thyroid UK
2 months ago
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