Search
Search
About
Log in
Join
Experiences with
Alexander disease
Posts
Communities
42,564 public posts
Filter results
Home testing machines
I am new to this group and I have family with afib, I have panic and anxiety with rapid heartbeat but was trying to rule out heart issues. I bought a kardiamobile ekg machine and tried it about 10 times and always got unclassified. My husband tried it and he got normal so it didnt appear to be interference
I am new to this group and I have family with afib, I have panic and anxiety with rapid heartbeat but was trying to rule out heart issues. I bought a kardiamobile ekg machine and tried it about 10 times and always got unclassified. My husband tried it and he got normal so it didnt appear to be interference
Shell2023
in
AF Association
6 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
8 months ago
York Lupus Group Coffee and Chat meeting - 9th December at 11.30
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
Come join the York Lupus Group for our next Coffee and Chat meeting on the 9th December, 11.30 until 1.30 at Sledmere House Cafe, Sledmere, Driffield, Yorkshire, YO25 3XG. This is a great opportunity to meet others with lupus or associated conditions, friends and family also welcome! For more information
michaellasmith
Administrator
in
LUPUS UK
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
6 months ago
induced coma
my brother was put into a coma due to alcohol withdrawal, he was having seizures they put him on a ventilator. Why isn’t he breathing on his own? Is it the medication they put him on to induce the coma or damage to lungs?
my brother was put into a coma due to alcohol withdrawal, he was having seizures they put him on a ventilator. Why isn’t he breathing on his own? Is it the medication they put him on to induce the coma or damage to lungs?
Kri-27
in
ICUsteps
8 months ago
IBS and kidney Stones
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Hi,Firstly , I posted similar about 1 year or so ago. I was prescribed potassium citrate mixture in order to prevent further kidney stones , however, the side effects are stomach pains and even more diarrhoea issues . In fact , if I took this med in the quantity prescribed I would for ever need to
Will1234
in
IBS Network
4 months ago
What causes autoimmune diseases?
https://www.youtube.com/watch?v=PpZhLQXp__g I don't often post Youtube videos but I was much impressed by this lecture by Dr Peter Osborne and felt the need to share it. This is quite a long lecture (1 hour 50 mins) by an expert in autoimmune diseases who has rather unconventional views on the subject
https://www.youtube.com/watch?v=PpZhLQXp__g I don't often post Youtube videos but I was much impressed by this lecture by Dr Peter Osborne and felt the need to share it. This is quite a long lecture (1 hour 50 mins) by an expert in autoimmune diseases who has rather unconventional views on the subject
Frank77
in
Pernicious Anaemia Society
6 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
8 months ago
serum inorganic phosphate
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Hello, I hope you are all keeping as well as possible. Last week I had some blood results back and have an appointment this Friday to talk to my GP about raised serum inorganic phosphate. This was measured one year ago and was in the normal range at 1.26mmoI/L. It is now 1.84mmI/L and in the abnormal
Pangolin43
in
PMRGCAuk
8 months ago
And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
8 months ago
Folic Acid does not cause PA
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
I saw this article with responses about the consumption of folic acid. What do people think about the responses? Especially the one who says that there shouldn't be a limit to the amount of folic acid taken. https://www.bmj.com/content/329/7479/1376/rapid-responses I have been taking 5mg folic acid
MEguy
in
Thyroid UK
6 months ago
PIP when on oxygen 24/7
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
What a shocking past week! I've had COPD ( emphysema ) for several years but over the course of the last few weeks I've experienced a rapid decline in my breathing to the degree I could only walk a few metres before being totally out of breath. On Wednesday I attended a routine appointment at Sevenoaks
Nickcv
in
Lung Conditions Community Forum
6 months ago
Orgovyx stopped woking.
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
Started orgovyx 2 months ago. PSA went from 35 to 5 in first month. Second month, PSA went from 5 to 8. This month PSA is 18. Looks like cancer is castrate resistant. Anyone else had this problem. If so what did your doc switch you to and how is it working for you? I talked to my doc today, he said he
woppaginny
in
Advanced Prostate Cancer
8 months ago
VETEBRAL PLASTY SURGERY FINALLY SCHED FOR NEXT WEEK
At long last. Vetebral surgery scheduled for Sept. 21.
PMRPRo,
can you please tell me about hydrocortisone cover (during surgery) and doubling up on regular Pred for a couple of days afterward? This, so I can sound intelligent when the Nurse calls. Lol. It is a local anesthetic, not being put
At long last. Vetebral surgery scheduled for Sept. 21.
PMRPRo,
can you please tell me about hydrocortisone cover (during surgery) and doubling up on regular Pred for a couple of days afterward? This, so I can sound intelligent when the Nurse calls. Lol. It is a local anesthetic, not being put
Missus835
in
PMRGCAuk
8 months ago
UKIVAS Vasculitis Educational Course - Manchester November 2023
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
The course was attended by around 70 attendees including junior doctors, registrars and specialist nurses. All thanks to Dr Nina Brown and her team in organising the delivery of this highly regarded annual event which included expert presentations and intensive interactive sessions. Programme was extensive
Suzi70
Administrator
in
Vasculitis UK
6 months ago
Decongestant ingredient in popular products does not work, FDA concludes
There have long been questions about those with thyroid issues taking phenylephrine, in any form. Including used by ophthalmologists during operations. The latest news suggests not being able to take phenylephrine might not make much, if any, difference! Note: The brand names mentioned might well contain
There have long been questions about those with thyroid issues taking phenylephrine, in any form. Including used by ophthalmologists during operations. The latest news suggests not being able to take phenylephrine might not make much, if any, difference! Note: The brand names mentioned might well contain
helvella
Thyroid UK
in
Thyroid UK
8 months ago
So girding my loins, GP's in morning,
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
So have an appointment with GP at 11 am tomorrow. Now this was supposed to be about pain/discomfort ? RA. Of course they are bit sneaky and lots of other tests were included, but we aren't daft are we, we check first. So Thyroid bloods , TSH 0.01 (0.27-4.20) FT4 21.6 (12-22) as usual no FT3
Polo22
in
Thyroid UK
6 months ago
HRT and Lupus
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
I’m 44 and have just been diagnosed with lupus and sjogrens in the last couple of months- there’s an awful lot to Learn. My GP thought my joint pain and anxiety was perimenopause related, and I was prescribed Evorel patches but after a month the pain was increasing rather than decreasing and autoimmune
RachelMaryS
in
LUPUS UK
6 months ago
cirrhosis and high kidney levels!
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
hi my husband has cirrhosis and he got his routine bloods last week and repeated I. Monday both sets of bloods had kidney function readings of 199! The hospital phone late yesterday evening looking him to come first thing this morning to repeat blood and get fluids Has anyone else had these problem
Cfmol
in
British Liver Trust
8 months ago
Post ablation (1 week) and back in AFib. How often is this likely to happen over next few weeks?
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Have had PAF for a few years and this year episodes became lengthier and more frequent, the latest lasting 4 weeks. Had a Cryo-ablation last Tuesday at Lancashire Cardiac Centre and was ok for a week, albeit with a few spells of ectopic beats and a very short run of AF (30-40 seconds only). Went on
Sorre1
in
AF Association
6 months ago
1
...
89
90
91
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5613 results
British Liver Trust
4439 results
Advanced Prostate Cancer
4321 results
View top 10 communities
Sort by
Most Relevant
Newest