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NKF launches educational video series for lupus, lupus nephritis
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
Series is made up of four short videos in English and Spanish Andrea Lobo, PhD The National Kidney Foundation (NFK) has launched a patient-friendly video series to help patients better understand the association between lupus and lupus nephritis. Marked by kidney inflammation and damage, lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 months ago
PSA SCREEN VS SYMPTOMATIC
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
6357axbz
in
Advanced Prostate Cancer
8 months ago
Best UK substitue for US Synthroid
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
Hi, I lived in the US for over 20 years and was prescribed Synthroid for underactive Thyroid. I found that the generic levothyroxine brand was not effective. I have moved back to the UK and would like to find a brand that is as close to Synthroid as possible. Would appreciate any recomendations.
SeedSensation
in
Thyroid UK
5 months ago
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sublingual B12
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
if there is ever a problem getting my injectable B12 I was told sublingual B 12might be answer for me with my pernicious anemia. Anyone have any experience with using it as a backup
CH52
in
Pernicious Anaemia Society
5 months ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
4 months ago
Parkinson's medications and T3 interactions?
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
I've been hypothyroid for decades, in recent years self-dosing T3 (split dose - 50 mcg AM, 50 mcg afternoon, 12.5 mcg evening). Recently, I was formally diagnosed with Parkinson's disease (informally undiagnosed for years), and now my doctor put me on gradually increasing doses of a Levodopa/Carbidopa
chrysalis56
in
Thyroid UK
8 months ago
Sticky blood! A thing or not?
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
Many years ago my blood tests often had to be repeated at the pathology lab because the first and second samples had set solid in transit before testing. I was told it was because I had sticky blood. Last week I saw a cardiologist who initially wanted me to take blood thinners, but as I only scored 1
jointpain
in
Arrhythmia Alliance
8 months ago
B1 Question ( nothing comes easy )
question at the bottom I have been reading everything I could get my hands on that was about vitamin B1 over the last couple years and I tried one B1 100 mg per day for one week about a year ago. It did not help and actually it seemed to make shaking worse. Finally I purchased Daphne Bryan's
question at the bottom I have been reading everything I could get my hands on that was about vitamin B1 over the last couple years and I tried one B1 100 mg per day for one week about a year ago. It did not help and actually it seemed to make shaking worse. Finally I purchased Daphne Bryan's
Gymsack
in
Cure Parkinson's
8 months ago
Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
4 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
8 months ago
Urso Calculator
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
https://www.pbcfoundation.org.uk/what-is-pbc/urso-calculator/ Urso dosage is ONLY based on your body weight - [u][i]
never
[/i][/u] lab results or increase of symptoms. It is so important to take the right dose. This can often be a reason for no decrease in elevated liver enzymes. Look to see
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
4 months ago
Cold weather flare ups
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Good morning, Does anyone have any tips or tricks, I've been on my medication since April (methotrexate and hydroxychloroquine) I have rheumatoid and lupus overlap. I'm having a flare up and think it's weather related but I cant seem to find a happy medium. When my hands are warm my joints are less
Sunshine634
in
LUPUS UK
5 months ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
4 months ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
8 months ago
Bisoprolol again!
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
Be-still-my-heart
in
AF Association
4 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
5 months ago
Hi new here
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
Hi hoping I can understand my underactive thyriod more , living in sunny Devon
nannynett
in
Thyroid UK
5 months ago
here we go again!
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
AnniesRyder5
in
PMRGCAuk
8 months ago
Annual Thyroid Palaver NHS
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
Sparklingsunshine
in
Thyroid UK
8 months ago
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