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Dead-end at haematologist appointment-what next?
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
I'm feeling slightly cornered and not sure what to do. I'm became very unwell in March with an array of symptoms including extreme weakness, lightheadedness, joint pain, motor weakness, stomach problems. I'm so weak I can hardly walk. An FBC showed macrocytosis (I also learnt today that I've had a
Booksellercate
in
Pernicious Anaemia Society
8 years ago
Update Doctors
Hi all, have just been to my doctors and picked up my blood test results, that my new doctors wanted to do before going any further (originally the new doctor said she would arrange for me to have a MRI scan, but think this has been knocked on the head by her supervisor). At that point I had to make
Hi all, have just been to my doctors and picked up my blood test results, that my new doctors wanted to do before going any further (originally the new doctor said she would arrange for me to have a MRI scan, but think this has been knocked on the head by her supervisor). At that point I had to make
AngelaJG
in
Pernicious Anaemia Society
8 years ago
Hi - New and Undiagnosed
Hi - I'm new here, have been reading a few of your posts and thought I should come out of lurking...It is a bit of a long rambly one i'm afraid because I don't know which symptoms might relate to a broader condition or whether it is just getting older/separate conditions (i'm 39). I also feel like I
Hi - I'm new here, have been reading a few of your posts and thought I should come out of lurking...It is a bit of a long rambly one i'm afraid because I don't know which symptoms might relate to a broader condition or whether it is just getting older/separate conditions (i'm 39). I also feel like I
scscsc
in
LUPUS UK
8 years ago
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Sedementation Rate
No diagnosis & no meds other than pred a few times in last 18 months. Also frequent Naproxyn. Labs have been all over the place. No Positive ANA but it has been borderline. Anyway Sed Rate has been consistently 65, other than 125 a couple of times in the last 18 months. Never drops below 65. Is this
No diagnosis & no meds other than pred a few times in last 18 months. Also frequent Naproxyn. Labs have been all over the place. No Positive ANA but it has been borderline. Anyway Sed Rate has been consistently 65, other than 125 a couple of times in the last 18 months. Never drops below 65. Is this
Sheole
in
LUPUS UK
8 years ago
alternative, herbs, vitamins and supplements
If you are considering complementary medicine, we strongly urge you to investigate the credentials and experience of anyone offering advice or product recommendations regarding such products. learn more about some complementary medicines: •Antioxidants Vitamin C and E, the Mediterranean Diet •Calcium
If you are considering complementary medicine, we strongly urge you to investigate the credentials and experience of anyone offering advice or product recommendations regarding such products. learn more about some complementary medicines: •Antioxidants Vitamin C and E, the Mediterranean Diet •Calcium
Hidden
in
Cure Parkinson's
8 years ago
Why didn't I join LUPUS UK years ago ?!
Hi everyone, I'm new here & have just been browsing the posts for the last hour. Not glad that you've all got this illness too, but happy that I'm not the only one & there are folk who understandEXACTLY how it feels. I was diagnosed with systemic lupus (& Sjogren's) syndrome 17 years ago. I had been
Hi everyone, I'm new here & have just been browsing the posts for the last hour. Not glad that you've all got this illness too, but happy that I'm not the only one & there are folk who understandEXACTLY how it feels. I was diagnosed with systemic lupus (& Sjogren's) syndrome 17 years ago. I had been
Carolyn1063
in
LUPUS UK
8 years ago
Hints and tips please from my "Scleroderma family"? (new on this website)
Dear "family", It's been only a few days that I came across this forum and I've already found some of the posts invaluable. I was diagnosed with limited sSc in late August and the Internet has been my only advisor...It's good to know that on this forum there is a person on the other side, one that I
Dear "family", It's been only a few days that I came across this forum and I've already found some of the posts invaluable. I was diagnosed with limited sSc in late August and the Internet has been my only advisor...It's good to know that on this forum there is a person on the other side, one that I
tanya1981
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Blood results - mean anything?
Hello, I just got hold of some recent bloods, and wondered if they mean anything re thyroid or adrenal function? Bloods taken at 4.30pm TSH 2.84 (range 0.30 - 4.40) Cortisol 126 nmol/l (expected values 9am 138-635, midnight <318) FT4 16.1 (9.0 - 19.1) Positive ANA (titre 1:1280) and nucleolar pattern
Hello, I just got hold of some recent bloods, and wondered if they mean anything re thyroid or adrenal function? Bloods taken at 4.30pm TSH 2.84 (range 0.30 - 4.40) Cortisol 126 nmol/l (expected values 9am 138-635, midnight <318) FT4 16.1 (9.0 - 19.1) Positive ANA (titre 1:1280) and nucleolar pattern
whisperit
in
Thyroid UK
8 years ago
Needing advice?
Hi I am new here and I was just curious I have been diagnosed with raynaud's for 2yrs now and I didn't really do anything about it until these past 2months or so because my symptoms were getting worse I was getting more sensitive to the weather changing and sometimes it came on for no reason. I did get
Hi I am new here and I was just curious I have been diagnosed with raynaud's for 2yrs now and I didn't really do anything about it until these past 2months or so because my symptoms were getting worse I was getting more sensitive to the weather changing and sometimes it came on for no reason. I did get
Shari_bags
in
LUPUS UK
8 years ago
Still feeling rubbish, will I ever feel well? Sorry for a pitiful post.
Sorry for the woah me post. You all know my background. It took me such a long time to get diagnosed and I felt even then I had to bully my GP into giving me thyroxine. I went through a trauma 4 years ago, I was attacked by my brother. As a result I had horrific anxiety and agoraphobia. The stress
Sorry for the woah me post. You all know my background. It took me such a long time to get diagnosed and I felt even then I had to bully my GP into giving me thyroxine. I went through a trauma 4 years ago, I was attacked by my brother. As a result I had horrific anxiety and agoraphobia. The stress
Hidden
in
Thyroid UK
8 years ago
Going to see endo today. What should I tell her? Test results
Hi all, today I have appointment with endo. Not sure what to tell her. My last test results: 03.08.2016 Serum aspartate aminotransferase 20U/L<32.0 03.08.2016 Serum alanine aminotransferase 15U/L0.0 - 33.0 03.08.2016 Alpha-amylase in serum 58U/L<100.0 03.08.2016 C-reactive protein in the serum <0.12mg
Hi all, today I have appointment with endo. Not sure what to tell her. My last test results: 03.08.2016 Serum aspartate aminotransferase 20U/L<32.0 03.08.2016 Serum alanine aminotransferase 15U/L0.0 - 33.0 03.08.2016 Alpha-amylase in serum 58U/L<100.0 03.08.2016 C-reactive protein in the serum <0.12mg
smi1e123
in
Thyroid UK
8 years ago
Help feeling very lost
Hi I'm new to the website and to the illness. I have been having problem for 4 years. I have just got my bloods back and it show a positive ANA it's 1/640 I also have abnormal centromere the blood test says 'associated with limited cutaneous systemic sclerosis' I have problems with my chest for a while
Hi I'm new to the website and to the illness. I have been having problem for 4 years. I have just got my bloods back and it show a positive ANA it's 1/640 I also have abnormal centromere the blood test says 'associated with limited cutaneous systemic sclerosis' I have problems with my chest for a while
Sami13
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Back Spasms
Has anyone experienced continuous back spasms? No meds have helped to date. The next step is to try a spinal cord stimulator. Any one used this device and their experience?
Has anyone experienced continuous back spasms? No meds have helped to date. The next step is to try a spinal cord stimulator. Any one used this device and their experience?
Booda
in
My MSAA Community
8 years ago
Confused
I was very fatigued, having bouts of itchiness, belching and having upper right quadrant pain. The pain reminded me of when I had gallstone blockages. I knew something was really wrong. When I went to see a gastroenterologist, my bloodwork showed that my ALT, AST, BILI were elevated and ALB was decreased
I was very fatigued, having bouts of itchiness, belching and having upper right quadrant pain. The pain reminded me of when I had gallstone blockages. I knew something was really wrong. When I went to see a gastroenterologist, my bloodwork showed that my ALT, AST, BILI were elevated and ALB was decreased
ginam
in
PBC Foundation
8 years ago
DRIVEN BONKERS about time we had 100% answers researchers!
We are all in this, trying to find what to take, what not to consume, wanting a cure, told there isn't one or read it may be possible to get some kind of remission. You recall I, as some, can't take the meds, severe side effects. I also had several useless doctors so learned a lot from this site and
We are all in this, trying to find what to take, what not to consume, wanting a cure, told there isn't one or read it may be possible to get some kind of remission. You recall I, as some, can't take the meds, severe side effects. I also had several useless doctors so learned a lot from this site and
storm
in
Thyroid UK
8 years ago
Spinal cord stimulator
So I've been diagnosed with CRPS for the last year. This month I finally met with a consultant who wanted to get right now to treatment. I'd already tried most other treatments and was referred to a consultant at St Thomas London for a spinal cord stimulator. Despite many doctors being concerned that
So I've been diagnosed with CRPS for the last year. This month I finally met with a consultant who wanted to get right now to treatment. I'd already tried most other treatments and was referred to a consultant at St Thomas London for a spinal cord stimulator. Despite many doctors being concerned that
Haylou
in
Pain Concern
8 years ago
Supplements/alternative treatments
Hi all, I won't go in to laborious detail about my endo....see my bio! It's stage IV and not being treated as I'm TTC. However two weeks ago my latest scan showed several endometrioma which have grown rapidly and my mood....like my bladder control is deteriorating rapidly! Never thought I'd be in Tena
Hi all, I won't go in to laborious detail about my endo....see my bio! It's stage IV and not being treated as I'm TTC. However two weeks ago my latest scan showed several endometrioma which have grown rapidly and my mood....like my bladder control is deteriorating rapidly! Never thought I'd be in Tena
sleepykoala
in
Endometriosis UK
8 years ago
Spinal cord stimulator trial
So I finally got approved for a spinal cord stimulator looks like things are looking up.
So I finally got approved for a spinal cord stimulator looks like things are looking up.
Haylou
in
Pain Concern
8 years ago
Skin redness after shower getting worse
Hi I am not sure what is going on with my skin but it is getting worse. I do have mild seborrheic dermatitis centrally on my nose and chin probably triggered by cold weather and insufficient moisturizing. But this redness is different. I thought it might be rosacea but it is all over my body in patches
Hi I am not sure what is going on with my skin but it is getting worse. I do have mild seborrheic dermatitis centrally on my nose and chin probably triggered by cold weather and insufficient moisturizing. But this redness is different. I thought it might be rosacea but it is all over my body in patches
Jar1973
in
LUPUS UK
8 years ago
Is it worth going private?
Im feeling a bit overwhelmed today, sick of feeling sick and tired and sore. So far my own GP has been good but all my results show up as normal, last one being the ANA test. Its hard to explain to him my joints hurt, they ache, my bones ache, my legs are heavy, my neck hurts, its as if my heads too
Im feeling a bit overwhelmed today, sick of feeling sick and tired and sore. So far my own GP has been good but all my results show up as normal, last one being the ANA test. Its hard to explain to him my joints hurt, they ache, my bones ache, my legs are heavy, my neck hurts, its as if my heads too
Loulouella
in
LUPUS UK
8 years ago
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