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Second Opinion Update
Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current symptoms from 6 weeks ago through now (mouth sores, swollen lymph nodes, one swollen tonsil, mild fatigue, on and off pain in ribs, one week headaches
Before I would go to the rheumatologist, I visited another primary doctor for a second opinion. She... Reviewed my lab results one by one Reviewed my current symptoms from 6 weeks ago through now (mouth sores, swollen lymph nodes, one swollen tonsil, mild fatigue, on and off pain in ribs, one week headaches
GhostfaceMcGee
in
LUPUS UK
5 years ago
10 day difference in labs before and after pain medication
I went by ambulance to the ER for severe muscle spasms on left side of my back. They drew blood before giving me any medication. While waiting for results I was given an i.v. of morphine and some sort of muscle relaxer. All labs came back in normal range so I was released with instructions to take Naproxen
I went by ambulance to the ER for severe muscle spasms on left side of my back. They drew blood before giving me any medication. While waiting for results I was given an i.v. of morphine and some sort of muscle relaxer. All labs came back in normal range so I was released with instructions to take Naproxen
shadowme2
in
PBC Foundation
5 years ago
Hi- Have fatigue, joint pain, swollen glands, mouth ulcers, scaly red rash on face when in sun since Xmas but ANA test just back negative?
I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -
I’m 57 and realised I’ve had periods like this for over 20 years. Only when I developed the rash that I considered Lupus - it’s like reading about myself -
cathART
in
LUPUS UK
5 years ago
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Did your loved ones want you to get a second opinion?
I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health insurance for now since my current health insurance does not cover specialists (I am almost 24). Before I would go to a rheumatologist, though
I recently told my parents about my primary doctor referring me to a rheumatologist for further evaluation, because I may need to switch back onto their health insurance for now since my current health insurance does not cover specialists (I am almost 24). Before I would go to a rheumatologist, though
GhostfaceMcGee
in
LUPUS UK
5 years ago
AST/ALT ratio?
Hi, I had LFTs done as part of a general health check. I’ve been asked to have LFTs rechecked in a month. Results are as follows: Bilirubin 8 Alk phos 81 AST. 39 ALT. 37 Gamma GT 25 Protein 73 Albumin 43 Globulin 30 I also had a full blood count which was normal. The ALT and AST were highlighted
Hi, I had LFTs done as part of a general health check. I’ve been asked to have LFTs rechecked in a month. Results are as follows: Bilirubin 8 Alk phos 81 AST. 39 ALT. 37 Gamma GT 25 Protein 73 Albumin 43 Globulin 30 I also had a full blood count which was normal. The ALT and AST were highlighted
Waterhouse
in
British Liver Trust
5 years ago
Lupus or something else? Guidance please :)
Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice, constant throat and chest infections. I've always been pale and slight in frame. Then when I hit 14 (probably puberty related) I had to get tonsils out
Hi all, I've been reading many posts on here but yet to write myself. I'm in a bit of a pickle. As a child I was always getting sick. Pneumonia twice, constant throat and chest infections. I've always been pale and slight in frame. Then when I hit 14 (probably puberty related) I had to get tonsils out
Wardlow
in
LUPUS UK
5 years ago
Was it worth it for you to take advantage of a referral to a Rheumatologist?
My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily life, however, my lab work showed a positive ANA with titer of 640 homogenous and 2560 centromere. Did you wait until symptoms got worse, to see
My primary doctor just referred me to a rheumatologist to go over my lab work. I am hesitant, because I'm my symptoms are not drastically affecting my daily life, however, my lab work showed a positive ANA with titer of 640 homogenous and 2560 centromere. Did you wait until symptoms got worse, to see
GhostfaceMcGee
in
LUPUS UK
5 years ago
Herbs !
INFO St johns wort dont use with anti depressants,
INFO St johns wort dont use with anti depressants,
gerrerd
in
Anxiety and Depression Support
5 years ago
According to a Briova Pharmacist, Sodium Phosphate IS allowed while taking Ibrance!
if you look on drugs.com, it will tell you that sodium phosphate has MODERATE interaction with Ibrance and not allowed. I called Briova Specialty Pharmacy today and they told me it was okay. The pharmacist just stressed NO st. john's wort or grapefruit! I also asked if I could have whatever I liked
if you look on drugs.com, it will tell you that sodium phosphate has MODERATE interaction with Ibrance and not allowed. I called Briova Specialty Pharmacy today and they told me it was okay. The pharmacist just stressed NO st. john's wort or grapefruit! I also asked if I could have whatever I liked
Godbeforme
in
SHARE Metastatic Breast Cancer
5 years ago
A big decision , don't know what to do!
I've had back problems for 5 years and tried everything . I had a discectomy in 2017 on L5 but had complications and 2 more surgeries for a csf leak and spinal sepsis. I'm still in a lot pain and at first they said I need a 2 level fusion but the surgeon changed his mind saying it wouldn't help my pain
I've had back problems for 5 years and tried everything . I had a discectomy in 2017 on L5 but had complications and 2 more surgeries for a csf leak and spinal sepsis. I'm still in a lot pain and at first they said I need a 2 level fusion but the surgeon changed his mind saying it wouldn't help my pain
Megnstan
in
Neuro Support
5 years ago
Should I be concerned about my high ANA titer?
I am not diagnosed with anything, but doctor has ordered blood work to figure out why I have had fatigue, mouth sores, headaches, swollen lymph nodes and a rash on my neck. WBC was 4.3 Positive ANA, with a mixed pattern (640 homogenous and 2560 centromere). All the other blood tests which follow a positive
I am not diagnosed with anything, but doctor has ordered blood work to figure out why I have had fatigue, mouth sores, headaches, swollen lymph nodes and a rash on my neck. WBC was 4.3 Positive ANA, with a mixed pattern (640 homogenous and 2560 centromere). All the other blood tests which follow a positive
GhostfaceMcGee
in
LUPUS UK
5 years ago
Pain all over, can’t take it anymore
Hello, I am desperate for answers... it all started almost 2 years ago. I began having horrible chest pain out of the blue, same story as many, went through all the tests on my heart and its all came up excellent. i'm a 26 year old male in pretty good shape so that wasnt a surprise. Doc said it was
Hello, I am desperate for answers... it all started almost 2 years ago. I began having horrible chest pain out of the blue, same story as many, went through all the tests on my heart and its all came up excellent. i'm a 26 year old male in pretty good shape so that wasnt a surprise. Doc said it was
tim_15
in
Fibromyalgia Action UK
5 years ago
Newbie with a rash
Hi all been lurking for a while.53yrs old diagnosed SS Feb 19, also stage 3 IGa kidney disease in July 18. Started on hydroxychloraquine a month ago on the last day of the first month(30th) day came out rash on back of arms and over chest saw the consultant coincidently the same day he said allergic
Hi all been lurking for a while.53yrs old diagnosed SS Feb 19, also stage 3 IGa kidney disease in July 18. Started on hydroxychloraquine a month ago on the last day of the first month(30th) day came out rash on back of arms and over chest saw the consultant coincidently the same day he said allergic
Catpuss66
in
The Australian Sjögren's Syndrome Association
5 years ago
Moving On To Another Trial
After a year on weekly Humira injections; I’m switching to Cimzia. Additionally, I inject MTX once a week and take 5 mgs of prednisone. I have 3 types of arthritis: RA, PsA and OA. It is a delayed diagnosis due to a misdiagnosis by a rheumatologist 3 years ago. I also have neurological factors to consider
After a year on weekly Humira injections; I’m switching to Cimzia. Additionally, I inject MTX once a week and take 5 mgs of prednisone. I have 3 types of arthritis: RA, PsA and OA. It is a delayed diagnosis due to a misdiagnosis by a rheumatologist 3 years ago. I also have neurological factors to consider
IslandLife53
in
NRAS
5 years ago
St. John's Wort or Sodium Phosphate not to be taken with Ibrance!
Says so in this article. I don't take Wort, but fixing to start Ibrance, so reading more about it and I share pertinent info when I find it. Also, found that I can't have sodium phosphate with ibrance. Goodbye sliced ham and American cheese! God bless and heal us all in Jesus name, amen! https:/
Says so in this article. I don't take Wort, but fixing to start Ibrance, so reading more about it and I share pertinent info when I find it. Also, found that I can't have sodium phosphate with ibrance. Goodbye sliced ham and American cheese! God bless and heal us all in Jesus name, amen! https:/
Godbeforme
in
SHARE Metastatic Breast Cancer
5 years ago
Letter given to Rheumatologist w labs and an article
Hi all, I typed up a letter to the Rheumatologist whom I was referred to and included my lab work along with a government article on the Hep 2 cell ANA test. All my questions were included and I requested that he respond via email. He was out of town last week and its been 3 days since he got back and
Hi all, I typed up a letter to the Rheumatologist whom I was referred to and included my lab work along with a government article on the Hep 2 cell ANA test. All my questions were included and I requested that he respond via email. He was out of town last week and its been 3 days since he got back and
JennaShi
in
LUPUS UK
5 years ago
Positive ANA/negative ENA update!
I had a positive ANA test and was referred for an ENA panel. It has come back negative, as well as C3 and C4 being negative too. I’m feeling as bad as ever. Does anyone know what this means or does not mean? I can’t find too much specific information online. UPDATE - Saw rheumatologist today and he
I had a positive ANA test and was referred for an ENA panel. It has come back negative, as well as C3 and C4 being negative too. I’m feeling as bad as ever. Does anyone know what this means or does not mean? I can’t find too much specific information online. UPDATE - Saw rheumatologist today and he
Wee1kirby
in
LUPUS UK
5 years ago
Tortured by a Butterfly -- Dermatology and extreme sun reactions
Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save that for another day). Because forefront on my mind is my Dermatology appt this afternoon. Yesterday, I provoked 2 bright red, painful burns
Hi Guys, Got my Rheumatology letter yesterday, which threw me in multiple directions (and upset me about the breast explant situation again -- but I'll save that for another day). Because forefront on my mind is my Dermatology appt this afternoon. Yesterday, I provoked 2 bright red, painful burns
panda2
in
LUPUS UK
5 years ago
Blood Test Today - Advice needed
Morning Everyone, I have another blood test today and wanted to ask if anyone has some advice for my next steps. This will be the 4th blood test to see in positive ANA are present but I think they are going to check inflammation levels too - is it okay to ask the nurse what she is testing for? I figured
Morning Everyone, I have another blood test today and wanted to ask if anyone has some advice for my next steps. This will be the 4th blood test to see in positive ANA are present but I think they are going to check inflammation levels too - is it okay to ask the nurse what she is testing for? I figured
Leenie0811
in
LUPUS UK
5 years ago
Addisons disease
I was basically told i had Addisons after i got these results back from a blood test and was put on steroid tablets, but after a subsequent synacthen test 2.5 month later i was told i hadn't got it as my results were borderline so taken back off the medication , i have posted my first set of results
I was basically told i had Addisons after i got these results back from a blood test and was put on steroid tablets, but after a subsequent synacthen test 2.5 month later i was told i hadn't got it as my results were borderline so taken back off the medication , i have posted my first set of results
Freddy1000
in
Thyroid UK
5 years ago
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