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Aicardi-goutieres syndrome (AGS)
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how to cope
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
I have suffered with restless legs for many years but didn’t know it was a condition until about a year or so ago then the Gp handed me a prescription for Ropinarole which at first worked but then needed increase dose. anyway I weened off them but my legs are still restless and I take magnesium glycinate
Suzi88
in
Restless Legs Syndrome
1 day ago
Can't believe I did this
I've had RLS for 15 plus years, mainly being treated with Sinemet (1 tab 25/100) over the years, with Ropinirole and more painfully, Pramipexole which caused severe augmentation a year ago. Three weeks ago, I had surgery for right anterior tibial tendon repair on my right ankle BECAUSE I stretched it
I've had RLS for 15 plus years, mainly being treated with Sinemet (1 tab 25/100) over the years, with Ropinirole and more painfully, Pramipexole which caused severe augmentation a year ago. Three weeks ago, I had surgery for right anterior tibial tendon repair on my right ankle BECAUSE I stretched it
dickwalhout
in
Restless Legs Syndrome
3 days ago
Appreciate some guidance
Hello After MANY years, I am finally fully off pramipexole ...(Been nearly 2 months now). I find that the nasty augmentation symptoms that would start up early afternoon and go through the night have gradually subsided to the point where I can actually sit still and read a book or watch TV in the evening
Hello After MANY years, I am finally fully off pramipexole ...(Been nearly 2 months now). I find that the nasty augmentation symptoms that would start up early afternoon and go through the night have gradually subsided to the point where I can actually sit still and read a book or watch TV in the evening
Bikerguy1
in
Restless Legs Syndrome
3 days ago
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some advice on Codeine and Ropinirole.
Hey guys, im after some opinions after a very disappointing call with my Drs today. After things getting very bad and down to 3/4 hours sleep on 1mg ropinirole and 450 pregabalin i found some codeine and decided to try taking 60mg at night with my meds, all at the same time apart from 150 pregab during
Hey guys, im after some opinions after a very disappointing call with my Drs today. After things getting very bad and down to 3/4 hours sleep on 1mg ropinirole and 450 pregabalin i found some codeine and decided to try taking 60mg at night with my meds, all at the same time apart from 150 pregab during
RLSAndy
in
Restless Legs Syndrome
3 days ago
hydroxyzine hydrochloride antihistamine ??? Is this safe please
hi I occasionally have to take hydroxyzine hydrochloride a prescription strength antihistamine for intersistial cystitis (non bacterial but inflammatory) when I’m in a flare I had a colonoscopy last week as a scan showed some inflammation and thickening in my descending colon they ended up removing
hi I occasionally have to take hydroxyzine hydrochloride a prescription strength antihistamine for intersistial cystitis (non bacterial but inflammatory) when I’m in a flare I had a colonoscopy last week as a scan showed some inflammation and thickening in my descending colon they ended up removing
Zenawarrior73
in
Restless Legs Syndrome
5 days ago
Edema of feet -Ropinirole and/or Gabapentin?
Do/can Ropinirole and/or Gabapentin cause edema of the feet? If yes, does edema disappear once one is off Ropinirole and/or Gabapentin? Thank you.
Do/can Ropinirole and/or Gabapentin cause edema of the feet? If yes, does edema disappear once one is off Ropinirole and/or Gabapentin? Thank you.
Palm10Tree
in
Restless Legs Syndrome
6 days ago
Diuretics
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
I have pretty severe edema in feet and occasionally legs.Is there a diuretic that does not trigger rls? I have tried Bumex and Metolazone. Had very bad rls soon after taking each one. I am on low dose Ropinirole -.9mg . It didn't even calm it. Appreciate any input.
rmbroadh
in
Restless Legs Syndrome
7 days ago
DEXTROMETHOROHAN and RLS
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
I am possibly going to be taking Avuelity for MDD . I was doing some research on it because of the RLS. There was one article of a woman with RLS who was given Dextromethirphan for a cough and got significant reduction in her symptoms, to the point she stopped Gaba and kept going with the dextromethorphan
teakabeagle
in
Restless Legs Syndrome
7 days ago
Is Tramadol effective right away?
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
After seeing a new neurologist late in April, I started on clonazepam at bedtime. After a week of not having any results other than being way groggier than ever during my walking sessions through the night, I was told to double the dose...still no lessening of my RLS symptoms. Yesterday I was switched
Marzipana
in
Restless Legs Syndrome
10 days ago
restless leg syndrome
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
I have read up on this and found a article recommending to take one turmeric and one Tylenol no other type of pain reliever must be Tylenol. When I am getting restless leg syndrome at night I take one of each and I was in total shock because within 15 minutes my legs were calm. I could not believe it
Friend_rsl
in
Restless Legs Syndrome
11 days ago
questions about gabapentin
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
I have severe rls. I have gone through augmentation and had impulse control issues. I went through DAWS when I weaned off pramipraxole. I have been off of DAs for 5 years. I tried to go drug free when I got off but I was going crazy. I found a dr that prescribed methadone. That helped but it really
senders
in
Restless Legs Syndrome
13 days ago
Living Hell
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
I first experienced RLS about 1982. I had no idea what was wrong with me so I just put it down to some sort of allergy. As the attacks were quite intermittent, I didn't seek any help at the time. After about a year though. The frequency and severity of the attacks increased manyfold and was now causing
SteveSpectra
in
Restless Legs Syndrome
14 days ago
coffeecup
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
I have tried everything ! After years on Pramipexol I augmented but was persuaded by a neurologist (against my better judgement) to try Ropinerol - guess what - augmentation. After weaning off it I was so looking forward to relief from Pregabalin - no relief just horrendous brain fog. Gabapentin - no
Coffeecup
in
Restless Legs Syndrome
14 days ago
here’s what I use
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
Neupro patch 24 h 6mg, Tramadol 50 mg at night, Gabapentin 100 mg, Tylenol 500 mg, temazepam 30mg at bedtime, Iron 325 mg 3 x’s a week. Magnesium 500 mg at night. Works pretty good though I’m augmenting. I
maribarosay
in
Restless Legs Syndrome
17 days ago
Changing opiods
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
I have severe restless legs and have suffered for many years Recently I came off pramipexole, after augmentation. I am now on Targin 40 mg daily, 15mg at 2pm and 25mg at 8pm. I still suffer from restless legs early in the morning, however it is far less intense. Having read many comments re the benefits
Trish8433
in
Restless Legs Syndrome
18 days ago
2nd post update from neurology and quick Q. can you see your muscles moving?
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
hi only my second post, had a very disappointing appt with a private neurologist over my RLS and muscle twitching. brief history mine started as muscle twitching out hip surgery with restless legs flaring up as a side dish it’s now widespread twitching and restless legs. He tried prescribing me duloxetine
Zenawarrior73
in
Restless Legs Syndrome
19 days ago
Whirly Whirly bird.
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
You’ve heard about the whirly whirly bird that flies in ever decreasing circles until it finally flies up its own orifice. Well if not then you’ve probably heard about me HipHop1972, I am that whirly whirly bird. With my surgeries inability to treat my severe refractory RLS quite possibly due to the
HipHop1972
in
Restless Legs Syndrome
19 days ago
RLS and augmentation – the battle for sufficient treatment.
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
A HUGE thank you to everyone who has answered and advised me - both on inquiries regarding switch from pramipexole to pregabalin and experiences of treating RLS with morphine only. It has been a BIG help - thanks to you, my doctor has for the time being agreed to give me a small dose of morphine while
Gibbel
in
Restless Legs Syndrome
20 days ago
Ibuprofen gel/cream
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck, though? Or would that find its way into blood or stomach? Paracetamol does very little. Dihydrocodeine is highly effective, but I limit that as it
random901
in
PMRGCAuk
20 days ago
Thinking of switching to Gabapentin or Pregabalin
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
I had an absolutely horrible night last night. I take 2mg of Ropinirole but took an extra one last night. It's very ineffective and causes me all sorts of weird problems like confusion and cursing in a kind of semi-conscious daze. Which is best, Gabapentin or Pregabalin, and how much would I have to
Baldrick123
in
Restless Legs Syndrome
21 days ago
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