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Experiences with
Aicardi-goutieres syndrome (AGS)
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Worried and uncertain
Hi all. As some of u may know I am expecting to miscarry soon. I am heart broken but starting to come to terms with it ish. Def lot of ok and downs. What struggling with is the not knowing when it or if it may happen naturally. No signs at mo. Going away today too and so scared it may happen on journey
Hi all. As some of u may know I am expecting to miscarry soon. I am heart broken but starting to come to terms with it ish. Def lot of ok and downs. What struggling with is the not knowing when it or if it may happen naturally. No signs at mo. Going away today too and so scared it may happen on journey
Dreamingofbaby
in
Fertility Network UK
6 years ago
Interproximal gaps in teeth..side effect of dopamine drug?
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Hi, I haven't been on the site for a while because the RLS is better. However I have interproximal gaps at the top of and in-between my teeth. Does anyone know if this is a side effect ? I'm on Ropinerole, metoprolol, Xanax, Bupropion, Levothyroxine.Is it a side effect from a drug, overbite,grinding
Tazmania1
in
Restless Legs Syndrome
6 years ago
I did it!
Having seen ep and being told to stop Nebivolol and being given 100 of Flecainide as a PIP, I immediately started having several episodes of AF at night. I was anxious about taking the Flecainide as nobody had said have the first tablet monitored. Last night AF started again and no point going to A
Having seen ep and being told to stop Nebivolol and being given 100 of Flecainide as a PIP, I immediately started having several episodes of AF at night. I was anxious about taking the Flecainide as nobody had said have the first tablet monitored. Last night AF started again and no point going to A
Hidden
in
AF Association
6 years ago
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Casualty Episode, Saturday night!
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
The conditions of fibromyalgia, EDS, POTS, hypermobility all featured on prime time TV!! 💥
sing123sleep
in
Ehlers-Danlos Support UK
6 years ago
My fibro story
Hello everyone! today is my first day here. I have fibromyalgia, spinal stenosis and degenerative disc disease. I'm really glad to have found this forum.
Hello everyone! today is my first day here. I have fibromyalgia, spinal stenosis and degenerative disc disease. I'm really glad to have found this forum.
ashimahimsa
in
Fibromyalgia Action UK
6 years ago
Pramipexole and connection of RLS to Parkinsons
I have taken ropinirole for a few years but now find that they don't work as well as they did and I frequently need to take more than the maximum dose daily. My GP has now prescribed pramipexole, after consulting with a neurologist. I am worried about the side effects, and also that I will only take
I have taken ropinirole for a few years but now find that they don't work as well as they did and I frequently need to take more than the maximum dose daily. My GP has now prescribed pramipexole, after consulting with a neurologist. I am worried about the side effects, and also that I will only take
Suebeloo
in
Restless Legs Syndrome
6 years ago
New here, PCOS, need supplementary medicine suggestions
Hi, I have PCOS, my OBGYN already put me on Metformin Hydrochloride 1 gm, Letrozole and Folic Acid. I want to start below supplementary medicines on top of what I'm already taking. Can anyone advice? 1. Paba 2. Myo-Inositol 3. D Chiro Inositol 4. Should I go for Pregnitude which contains Folic
Hi, I have PCOS, my OBGYN already put me on Metformin Hydrochloride 1 gm, Letrozole and Folic Acid. I want to start below supplementary medicines on top of what I'm already taking. Can anyone advice? 1. Paba 2. Myo-Inositol 3. D Chiro Inositol 4. Should I go for Pregnitude which contains Folic
beamom
in
Fertility Network UK
6 years ago
TRAMADOL
After reading many many posts on this site, I have formed the consensus that most of you are either taking or have taken Tramadol as a med for RLS. Unfortunately down here in Oz, the medical practitioners I have seen have been reluctant to prescribe this for me. Are there any people on this site from
After reading many many posts on this site, I have formed the consensus that most of you are either taking or have taken Tramadol as a med for RLS. Unfortunately down here in Oz, the medical practitioners I have seen have been reluctant to prescribe this for me. Are there any people on this site from
Phogan
in
Restless Legs Syndrome
6 years ago
Dipyridamole Treatment Update
I posted a few weeks ago that I was going to try this drug following a small study which found it helpful for RLS sufferers. Previously I was using pregabalin (200mg) and Kratom to treat my rls. Although I got sleep on that regime, I felt really dopey and ‘druggy’ during the day. I titrated up gradually
I posted a few weeks ago that I was going to try this drug following a small study which found it helpful for RLS sufferers. Previously I was using pregabalin (200mg) and Kratom to treat my rls. Although I got sleep on that regime, I felt really dopey and ‘druggy’ during the day. I titrated up gradually
involuntarydancer
in
Restless Legs Syndrome
6 years ago
Feeling frustrated and I feel lazy
Hi all, I feel I am being so lazy. I can't stay awake in the day. I try and try to stay awake but nod off. I don't get dressed until the afternoon and feel I am being lazy. I have no energy whatsoever. When I do feel a bit more lively, I go for a walk to a park with my friend but suffer afterwards. I
Hi all, I feel I am being so lazy. I can't stay awake in the day. I try and try to stay awake but nod off. I don't get dressed until the afternoon and feel I am being lazy. I have no energy whatsoever. When I do feel a bit more lively, I go for a walk to a park with my friend but suffer afterwards. I
Mandypandy1969
in
Fibromyalgia Action UK
6 years ago
Chronic fatigue trial results 'not robust', new study says
Just seen this article on the BBC News site - I imagine there will be similar on other sites.
[i]Chronic fatigue trial results 'not robust', new study says[/i]
[i]Fresh analysis of a controversial study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome
Just seen this article on the BBC News site - I imagine there will be similar on other sites.
[i]Chronic fatigue trial results 'not robust', new study says[/i]
[i]Fresh analysis of a controversial study, which recommended exercise and psychological therapy for people with chronic fatigue syndrome
helvella
Thyroid UK
in
Thyroid UK
6 years ago
Wean off of Ropinirole?
Hello, I'm new here.....I just happened to find this website today, and it appears to be a helpful one! I have quite a few health issues, but the most recent one has been extreme dryness of the lips, mouth, nasal passages, and throat. It started back around Nov 1, 2017. At first I thought it was
Hello, I'm new here.....I just happened to find this website today, and it appears to be a helpful one! I have quite a few health issues, but the most recent one has been extreme dryness of the lips, mouth, nasal passages, and throat. It started back around Nov 1, 2017. At first I thought it was
jase318
in
Restless Legs Syndrome
6 years ago
New medication with itching side effects!!
Hello. I’ve recently been given Dihydrocodeine for my restless leg,I was on co codamol,had tried Amitriptyline which had made it worse and have been given quinine. Last night was a bad night again! I’ve been prescribed 30mg Dihydrocodeine 4 times a day when required. Had to take the full 4 over time
Hello. I’ve recently been given Dihydrocodeine for my restless leg,I was on co codamol,had tried Amitriptyline which had made it worse and have been given quinine. Last night was a bad night again! I’ve been prescribed 30mg Dihydrocodeine 4 times a day when required. Had to take the full 4 over time
Kells22
in
Restless Legs Syndrome
6 years ago
Antidepressant to wean off Pramipexole???
I saw my GP yesterday to discuss help with weaning off Pramipexole. I gave her a list of the various meds I had tried over the last few years with no success! She had given me Tramadol before but it does nothing for me...it does not help with pain nor RLS for me. I asked if I could try Methadone as
I saw my GP yesterday to discuss help with weaning off Pramipexole. I gave her a list of the various meds I had tried over the last few years with no success! She had given me Tramadol before but it does nothing for me...it does not help with pain nor RLS for me. I asked if I could try Methadone as
lbrosa
in
Restless Legs Syndrome
6 years ago
We saw our little buba 💗🌈🦄
Thank you to you lovely ladies that remembered we had our Viability Scan at Week 7 +1 yesterday, it was so sweet of you to message me 😘😘. Our anxiety was off the chart, but I’m pleased to tell you that our scan went well, our little buba is growing nicely and we saw and heard it’s heartbeat 💗!
Thank you to you lovely ladies that remembered we had our Viability Scan at Week 7 +1 yesterday, it was so sweet of you to message me 😘😘. Our anxiety was off the chart, but I’m pleased to tell you that our scan went well, our little buba is growing nicely and we saw and heard it’s heartbeat 💗!
Hannah143
in
Fertility Network UK
6 years ago
Paper showing low T3 in Chronic Fatigue Syndrome
A new paper in full showing that in CFS there is often low FT3. Suggests trying T3 supplementation to see if this helps. More grist to the mill. Front. Endocrinol., 20 March 2018 | https://doi.org/10.3389/fendo.2018.00097 Higher Prevalence of “Low T3 Syndrome” in Patients With Chronic Fatigue Syndrome
A new paper in full showing that in CFS there is often low FT3. Suggests trying T3 supplementation to see if this helps. More grist to the mill. Front. Endocrinol., 20 March 2018 | https://doi.org/10.3389/fendo.2018.00097 Higher Prevalence of “Low T3 Syndrome” in Patients With Chronic Fatigue Syndrome
diogenes
in
Thyroid UK
6 years ago
Using tramadol
My neurologist is trying to wean me off the neupro patch and currently I am taking 2700 mg of gabapentin, 1 mg neupro patch and 2-50mg tramadol tablets. Once I started with tramadol my restless leg went entirely away. My question is whether anyone has been on tramadol long term. Are there side effects
My neurologist is trying to wean me off the neupro patch and currently I am taking 2700 mg of gabapentin, 1 mg neupro patch and 2-50mg tramadol tablets. Once I started with tramadol my restless leg went entirely away. My question is whether anyone has been on tramadol long term. Are there side effects
Lancerhog
in
Restless Legs Syndrome
6 years ago
Bowel Problems
Hi, I was wondering if anyone has experience similar, I had surgery back in January last year and they had to remove some endo off the bowel, since then bowel problems have got a lot worse. I suffer with loose stools & constipation, I struggle eating sometimes because no matter what it is, it’s like
Hi, I was wondering if anyone has experience similar, I had surgery back in January last year and they had to remove some endo off the bowel, since then bowel problems have got a lot worse. I suffer with loose stools & constipation, I struggle eating sometimes because no matter what it is, it’s like
Kirstiexxx
in
Endometriosis UK
6 years ago
Pregnancy after miscarriage
Hi I’m wondering how you all coped, this is my third pregnancy, my first was successful with a fabulous dd, the second ended in mmc at 8weeks, and now I’m 4 weeks into my 3rd. I would love to get excited but I’m finding it really hard. I’m trying to keep busy but everyone keeps telling me I should rest
Hi I’m wondering how you all coped, this is my third pregnancy, my first was successful with a fabulous dd, the second ended in mmc at 8weeks, and now I’m 4 weeks into my 3rd. I would love to get excited but I’m finding it really hard. I’m trying to keep busy but everyone keeps telling me I should rest
Cjaythom
in
Pregnancy and Parenting Support
6 years ago
Just so you can all be jealous...UPDATE...THUNDERSNOW!!!!
I'm working from home today in my jammies on the couch, watching the second Nor'easter of the week develop into a major snow storm about to dump a foot of snow in NYC. I could tell yesterday, even without the weatherman, that something wicked this way comes. I was achey and irritable all day, and was
I'm working from home today in my jammies on the couch, watching the second Nor'easter of the week develop into a major snow storm about to dump a foot of snow in NYC. I could tell yesterday, even without the weatherman, that something wicked this way comes. I was achey and irritable all day, and was
GOOD_GRIEF
in
PMRGCAuk
6 years ago
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