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Participation in clinical trials.
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
On July 3rd I attended a meeting jointly organised by a number of PD support organisations which was a truly memorable experience! It focussed on clinical trials from the perspectives of PwP (especially those with experience of trials), carers/ their families & medical professionals. The event was
honeycombe3
in
Cure Parkinson's
11 years ago
Complications After Kidney Transplant
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
After kidney transplant, the patient is very prone to infection. Three contributive factors are as following. First, the major surgery on blood vessel and urinary system temporarily decrease patient immune ability. Secondly, for kidney failure patients, their absolute immunity is low then normal person
Hidden
in
Early CKD Support
11 years ago
Esa Tribunal Advice
Hi guys, I am due to attend an ESA tribunal on the 5th August and am looking to get some advice as to how best approach this. My background history is as follows; (please excuse the fact that is so long!) I am 39 years old this month, and was diagnosed with Hodgins Disease in May of 1999. The cancer
Hi guys, I am due to attend an ESA tribunal on the 5th August and am looking to get some advice as to how best approach this. My background history is as follows; (please excuse the fact that is so long!) I am 39 years old this month, and was diagnosed with Hodgins Disease in May of 1999. The cancer
kjaye767
in
Lung Conditions Community Forum
11 years ago
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BoneMarrow
Anyone know about a Bone Marrow Transplant? As a last resort for ITP?
Anyone know about a Bone Marrow Transplant? As a last resort for ITP?
lmc167
in
ITP Support Association
11 years ago
Some red spot in my upper mouth and coming blood after getting b12 injection
Hi, fabruary 2012 my doctor found some erosion in my duodenum, he gives me treepol therapy, ant ppi, but I filling burning in my stomach, then doctor see my b12 label it was 135, iron was 40, doctor give me b12 supplement, and iron supplement, but no major improvement, then doctor check b12 label
Hi, fabruary 2012 my doctor found some erosion in my duodenum, he gives me treepol therapy, ant ppi, but I filling burning in my stomach, then doctor see my b12 label it was 135, iron was 40, doctor give me b12 supplement, and iron supplement, but no major improvement, then doctor check b12 label
npno
in
Pernicious Anaemia Society
11 years ago
C- PEPTIDE TEST FOR DIABETES..
What Is C Peptide? Insulin is responsible for regulating the body's glucose levels. Glucose, the body's main source of energy, is a sugar that comes from foods. After a meal, our bodies break down the foods we eat into glucose and other nutrients, which are then absorbed into the bloodstream from
What Is C Peptide? Insulin is responsible for regulating the body's glucose levels. Glucose, the body's main source of energy, is a sugar that comes from foods. After a meal, our bodies break down the foods we eat into glucose and other nutrients, which are then absorbed into the bloodstream from
Hidden
in
Diabetes India
11 years ago
REMEDY IN HERBAL FOR SICKLE CELL
If the truth will not be ignored, There are herbal remedies/cure to this genetic disease. Apart from the bone marrow transplant declared by the specialist as the only cure, though its 50/50 chance as also said, i have witnessed several cure with herbal medication used with 3-6months. It high time
If the truth will not be ignored, There are herbal remedies/cure to this genetic disease. Apart from the bone marrow transplant declared by the specialist as the only cure, though its 50/50 chance as also said, i have witnessed several cure with herbal medication used with 3-6months. It high time
Hidden
in
Sickle Cell Society
11 years ago
rain stopped play :/
Hi all, im feeling pretty good at the mo helped no doubt by philip on bgt i laughed so much at his louis spencer i thought i was going to wee :) hehe. It felt good to laugh i really should try to do it more, Im always to serious and looking around for the dangers even when they arent present that at
Hi all, im feeling pretty good at the mo helped no doubt by philip on bgt i laughed so much at his louis spencer i thought i was going to wee :) hehe. It felt good to laugh i really should try to do it more, Im always to serious and looking around for the dangers even when they arent present that at
Hidden
in
Anxiety Support
11 years ago
Its coming back :/
Well what can I say im still housebound but was beginning to be happy in my surroundings as I had,nt really suffered a panic attack in a few weeks and then wham last night a big one, but it was very different to any ive had before I felt as if my body was falling and that I was slippin away and I had
Well what can I say im still housebound but was beginning to be happy in my surroundings as I had,nt really suffered a panic attack in a few weeks and then wham last night a big one, but it was very different to any ive had before I felt as if my body was falling and that I was slippin away and I had
Hidden
in
Anxiety Support
11 years ago
I have 3 sons who have just been diagnosed with ALD
The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were. Also my eldest is in an arrested state at present, but due to his LOES score being 14 and already having suffered nerve damage there is nothing the doctors will do when it starts progressing again. Was
The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were. Also my eldest is in an arrested state at present, but due to his LOES score being 14 and already having suffered nerve damage there is nothing the doctors will do when it starts progressing again. Was
littlelegs2
in
Leukodystrophy Support
11 years ago
W7R2: For my colleague who died on Wednesday
So my close colleague for 13 years died on Wednesday after a failed stem cell transplant. (We are both doctors) He was planning to be back at work in March after a week in ICU and recovery. In fact he had 3 months in ICU then 2 weeks on a normal ward then his last 3 days ventilated in ICU. What a shitty
So my close colleague for 13 years died on Wednesday after a failed stem cell transplant. (We are both doctors) He was planning to be back at work in March after a week in ICU and recovery. In fact he had 3 months in ICU then 2 weeks on a normal ward then his last 3 days ventilated in ICU. What a shitty
PhilippaB
Graduate
in
Couch to 5K
11 years ago
Can you have sickle cell crisis when you're just a sickle cell carrier?
Hello, my name is Dorothee, I am french. My daughter is called Clara, She is 10 years old, Her father is African (Gambia), but has hardly ever been there in her life. We live in Portsmouth and lived in France before. Clara grew "very quickly" recently, she is even more developed than some of the pupils
Hello, my name is Dorothee, I am french. My daughter is called Clara, She is 10 years old, Her father is African (Gambia), but has hardly ever been there in her life. We live in Portsmouth and lived in France before. Clara grew "very quickly" recently, she is even more developed than some of the pupils
Dottie62930
in
Sickle Cell Society
11 years ago
Richter's in a Nut Shell
'Richter's transformation, or Richter's syndrome, is an uncommon clinicopathological condition observed in about 5% to 10% of patients with chronic lymphocytic leukemia (CLL). "Richter's transformation" refers to the development of aggressive lymphoma during the course of CLL. Diffuse large B-cell lymphoma
'Richter's transformation, or Richter's syndrome, is an uncommon clinicopathological condition observed in about 5% to 10% of patients with chronic lymphocytic leukemia (CLL). "Richter's transformation" refers to the development of aggressive lymphoma during the course of CLL. Diffuse large B-cell lymphoma
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
EBMT Transplant Patient and Family Day
EBMT – European Group for Blood and Marrow Transplantation will be holding a patient and family day on Saturday 6th April 2013 from 9.30 am – 6 pm in The Mermaid Theatre, Puddle Dock, Blackfriars, London, EC4V 3DB, registration fee is £10 per person. What the day is about On the day you will
EBMT – European Group for Blood and Marrow Transplantation will be holding a patient and family day on Saturday 6th April 2013 from 9.30 am – 6 pm in The Mermaid Theatre, Puddle Dock, Blackfriars, London, EC4V 3DB, registration fee is £10 per person. What the day is about On the day you will
Mazcd
MPNVoice
in
MPN Voice
11 years ago
Brilliant News
Hi everyone, I just wanted to update you all about some brilliant news I received on Friday... I was transferred to The Christie a couple of weeks ago once I had finished my IVF treatment with the plan being to have my transplant there and my new consultant did a re test of my bone marrow and it turns
Hi everyone, I just wanted to update you all about some brilliant news I received on Friday... I was transferred to The Christie a couple of weeks ago once I had finished my IVF treatment with the plan being to have my transplant there and my new consultant did a re test of my bone marrow and it turns
Jennie_Barnes
in
MPN Voice
11 years ago
New-latest- updated-exercise-guidelines-for-cancer-survivors
Survivors may soon get their very own exercise prescription, following new guidelines presented today at the American Society of Clinical Oncology's annual meeting. Scientific evidence about cancer and exercise has grown greatly in the past few decades, as has the number of cancer survivors, which has
Survivors may soon get their very own exercise prescription, following new guidelines presented today at the American Society of Clinical Oncology's annual meeting. Scientific evidence about cancer and exercise has grown greatly in the past few decades, as has the number of cancer survivors, which has
Robertlowe
in
The Roy Castle Lung Cancer Foundation
11 years ago
New clinical trial planned in Giant Cell Arteritis (GCA)
Pharma company Roche are planning a clinical trial of tocilizumab (TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the treatment of RA (rheumatoid arthritis). The objective of the GCA trial is to gather data on whether using TCZ alongside pred can enable the patient
Pharma company Roche are planning a clinical trial of tocilizumab (TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the treatment of RA (rheumatoid arthritis). The objective of the GCA trial is to gather data on whether using TCZ alongside pred can enable the patient
Polywotsit
PMRGCAuk team member
in
PMRGCAuk
11 years ago
talking
Well i have had my first chat with a councellor so thought i would share, she was a very nice lady and sadly our chat was very brief but i felt it helped shift some weight as i will put it. Not to confuse this is not the councellor i am scheduled to see in a few weeks this is my sons diabetic physcologist
Well i have had my first chat with a councellor so thought i would share, she was a very nice lady and sadly our chat was very brief but i felt it helped shift some weight as i will put it. Not to confuse this is not the councellor i am scheduled to see in a few weeks this is my sons diabetic physcologist
Hidden
in
Anxiety Support
11 years ago
Has anyone here had bone marrow transplant for lupus?
fragorosvar
in
LUPUS UK
11 years ago
Big Brother (or is that Big Pharma?) strikes again
This morning I checked my supply of my winter standby of Echinacea, and decided it was time to buy some more. To my horror the price from my usual supplier has rocketed, so I checked other sites only to discover that the same high prices applied, and on none of the sites was it now called straightforward
This morning I checked my supply of my winter standby of Echinacea, and decided it was time to buy some more. To my horror the price from my usual supplier has rocketed, so I checked other sites only to discover that the same high prices applied, and on none of the sites was it now called straightforward
Hidden
Administrator
in
Thyroid UK
11 years ago
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