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Acalabrutinib
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Acalabrutinib
I sent in my prescription 5 days ago and today I have been told by the pharmacist when I tried to pick it up that the drug is no longer available. I have tried two other drug stores and they are saying the same. The London Regional Cancer Clinic is closed on weekends, the cancer clinic pharmacy is closed
I sent in my prescription 5 days ago and today I have been told by the pharmacist when I tried to pick it up that the drug is no longer available. I have tried two other drug stores and they are saying the same. The London Regional Cancer Clinic is closed on weekends, the cancer clinic pharmacy is closed
Vinweesel2023
in
CLL Support
3 months ago
HI! I only joined today.
I will start on
Acalabrutinib
in a couple of weeks. 😒
I will start on
Acalabrutinib
in a couple of weeks. 😒
Hidden
in
CLL Support
2 months ago
Dental treatment and CLL
My husband has been taking
Acalabrutinib
for nearly two years. His lymphocyte count is around 40 and other blood results normal. His dentist says he needs 4 teeth extracted over the next year or so - 3 teeth in 2 sessions in the Spring/Summer and one in the Winter.
My husband has been taking
Acalabrutinib
for nearly two years. His lymphocyte count is around 40 and other blood results normal. His dentist says he needs 4 teeth extracted over the next year or so - 3 teeth in 2 sessions in the Spring/Summer and one in the Winter.
Leo71
in
CLL Support
2 months ago
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switching capsule acalabrutinib to tablet form promoted vomiting, migraine headache, anyone else?
switching capsule
acalabrutinib
to tablet promoted vomiting, migraine headache Recent posting about switching from capsules to tablet form for
Acalabrutinib
have been discussed. Here is my experience and perhaps others.
switching capsule
acalabrutinib
to tablet promoted vomiting, migraine headache Recent posting about switching from capsules to tablet form for
Acalabrutinib
have been discussed. Here is my experience and perhaps others.
234me
in
CLL Support
3 months ago
Starting to take acalabrutinib
My husband has relapsed after 9 years in remission ,his doctor is talking about starting him on
acalabrutinib
,but he is worried about the side effects he has been reading about ,can anyone relate to their experience on this drug please
My husband has relapsed after 9 years in remission ,his doctor is talking about starting him on
acalabrutinib
,but he is worried about the side effects he has been reading about ,can anyone relate to their experience on this drug please
Takingchances
in
CLL Support
19 days ago
Majic trial arm "A"
For the Majic trail, arm "A", I would like to know if anyone has completed the first 15 cycles of
Acalabrutinib
and Venetoclax. Has your bone marrow testing showed below MRD indicating deep remission. My test comes up in June with my fingers crossed.
For the Majic trail, arm "A", I would like to know if anyone has completed the first 15 cycles of
Acalabrutinib
and Venetoclax. Has your bone marrow testing showed below MRD indicating deep remission. My test comes up in June with my fingers crossed.
JDG45
in
CLL Support
1 month ago
Recently started Acalabrutinib
He has now started
acalabrutinib
5 days ago. The doctors have said it may take anywhere from 6-8 weeks for the drug to show results given the current state of the bone marrow and lymph nodes.
He has now started
acalabrutinib
5 days ago. The doctors have said it may take anywhere from 6-8 weeks for the drug to show results given the current state of the bone marrow and lymph nodes.
Healthgiddy
in
CLL Support
22 days ago
Acalabrutinib tablets versus capsules
Some time ago I read posts about changing
Acalabrutinib
from capsules to tablets. I think others were having problems with the different formulation but I can't find the posts on here now. Did anyone have problems and, if so, what were they, and did they have to give up
acalabrutinib
altogether?
Some time ago I read posts about changing
Acalabrutinib
from capsules to tablets. I think others were having problems with the different formulation but I can't find the posts on here now. Did anyone have problems and, if so, what were they, and did they have to give up
acalabrutinib
altogether?
Leo71
in
CLL Support
4 months ago
Acalabrutinib and Skin Cancers
I am aware that
Acalabrutinib
might be resonsible for encouraging skin cancers to develop? I would appreciate it if others taking
Acalabrutinib
who are also running into rampant appearance of skin cancer lesions might let me know their situation please? Thankyou.
I am aware that
Acalabrutinib
might be resonsible for encouraging skin cancers to develop? I would appreciate it if others taking
Acalabrutinib
who are also running into rampant appearance of skin cancer lesions might let me know their situation please? Thankyou.
spanish36
in
CLL Support
3 months ago
Short term stopping Acalabrutinib
I was told by my consultant that I should stop my
Acalabrutinib
for a week. I can't feel any raised lymph nodes but my neck feels bruised. Does anyone know if stopping the
Acalabrutinib
will have a detrimental effect. I hope not because I have tolerated and done really well for nearly three years.
I was told by my consultant that I should stop my
Acalabrutinib
for a week. I can't feel any raised lymph nodes but my neck feels bruised. Does anyone know if stopping the
Acalabrutinib
will have a detrimental effect. I hope not because I have tolerated and done really well for nearly three years.
kitchengardener2
in
CLL Support
4 months ago
Another update
My husband is finally having treatment for his cll they are putting him on
acalabrutinib
his spleen is six times the size it should be his red cells are slowly but surely fighting back a little his white cells are still quite high but to finally get to know the full picture is quite a relief
My husband is finally having treatment for his cll they are putting him on
acalabrutinib
his spleen is six times the size it should be his red cells are slowly but surely fighting back a little his white cells are still quite high but to finally get to know the full picture is quite a relief
Nikkij81
in
CLL Support
5 days ago
3 months on acalabrutinib for SLL great news
Update three months on
acalabrutinib
for SLL/CLL, good news One-100mg
acalabrutinib
daily for 3 months --SLL in sacrum/tailbone and rest of body Dec 30th -3 month CT scan showed No masses in sacrum/tailbone at all. But,still in rest of body.
Update three months on
acalabrutinib
for SLL/CLL, good news One-100mg
acalabrutinib
daily for 3 months --SLL in sacrum/tailbone and rest of body Dec 30th -3 month CT scan showed No masses in sacrum/tailbone at all. But,still in rest of body.
234me
in
CLL Support
4 months ago
Alcalabrutinib and colonoscopy
Currently on
acalabrutinib
for past 16 nmonths withgood response ALC down from 56 to 2.31 after poor response from BR in 2019. My Surgeon says to stop Acala for 2 weeks prior.This does not seem right ?. I have not asked my Oncologist yet. What have other members been told ?
Currently on
acalabrutinib
for past 16 nmonths withgood response ALC down from 56 to 2.31 after poor response from BR in 2019. My Surgeon says to stop Acala for 2 weeks prior.This does not seem right ?. I have not asked my Oncologist yet. What have other members been told ?
Joffre1
in
CLL Support
28 days ago
Continue medication upon remission
Hi Fellow members, I am on
Acalabrutinib
since April 2022 and Venetoclax since last July. I did the BM test last month and my hematologist declared I am UMRD - ( less than one cell in 100,000 ).
Hi Fellow members, I am on
Acalabrutinib
since April 2022 and Venetoclax since last July. I did the BM test last month and my hematologist declared I am UMRD - ( less than one cell in 100,000 ).
dave20
in
CLL Support
5 months ago
Switching from acalabrutinib to ibrutinib
After 1 year 3 month of
acalabrutinib
, now lymph nodes are increasing. So our doctor suggested to shift from
acalabrutinib
to ibrutinib. Anyone here who did the same. Bit worrired :(
After 1 year 3 month of
acalabrutinib
, now lymph nodes are increasing. So our doctor suggested to shift from
acalabrutinib
to ibrutinib. Anyone here who did the same. Bit worrired :(
pbaddi
in
CLL Support
6 months ago
acalabrutinib and blood blisters in mouth
I started
acalabrutinib
a couple of days ago and I have developed painless blood blisters in my mouth on the inside of my cheeks. My CLL team haven't seen this before as a side effect. Has anyone has experienced these? thanks!
I started
acalabrutinib
a couple of days ago and I have developed painless blood blisters in my mouth on the inside of my cheeks. My CLL team haven't seen this before as a side effect. Has anyone has experienced these? thanks!
Tivi19
in
CLL Support
3 months ago
Remission
Does CLL ever go into total remission where a person no longer has to take
Acalabrutinib
or is it referred to as medical remission. My oncologist has told me that I will be on it for the rest of my life. She might reduce the dose to 1 x's per day.
Does CLL ever go into total remission where a person no longer has to take
Acalabrutinib
or is it referred to as medical remission. My oncologist has told me that I will be on it for the rest of my life. She might reduce the dose to 1 x's per day.
Vinweesel2023
in
CLL Support
3 months ago
MRD Results
His Dr wants him to keep taking his venetoclax and
acalabrutinib
so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year on Venetoclax and 1.5 year
acalabrutinib
.
His Dr wants him to keep taking his venetoclax and
acalabrutinib
so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year on Venetoclax and 1.5 year
acalabrutinib
.
spi3
in
CLL Support
3 months ago
Acalabrutinib and brain fog
I am in my 4th week of taking
acalabrutinib
for CLL and every morning my brain feels like its had a sleeping tablet or a large slug of alcohol, but the rest of me feels fine. This starts about an hour after taking the tablet and then lasts all morning.
I am in my 4th week of taking
acalabrutinib
for CLL and every morning my brain feels like its had a sleeping tablet or a large slug of alcohol, but the rest of me feels fine. This starts about an hour after taking the tablet and then lasts all morning.
Tivi19
in
CLL Support
2 months ago
Acalabrutinib- stopping before surgery and possible side effects.
I’ve been on
Acalabrutinib
for a year. I believe I will have to stop taking it for a few days before and after surgery. Are there any side effects when stopping for that brief period? Thanks!
I’ve been on
Acalabrutinib
for a year. I believe I will have to stop taking it for a few days before and after surgery. Are there any side effects when stopping for that brief period? Thanks!
Katie-LMHC-Artist
in
CLL Support
5 months ago
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