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Anxious - Endo and bowel surgery
Hello all! Joined this group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe endo, obliterated pouch of Douglas, adhesions to the bowel. MRI has also confirmed adenomyosis. Not great! I’ve tried dienogest which just turned me into a psycho so not keen
Hello all! Joined this group when I discovered I had endometriosis. I’ve since had a laparoscopy which has confirmed severe endo, obliterated pouch of Douglas, adhesions to the bowel. MRI has also confirmed adenomyosis. Not great! I’ve tried dienogest which just turned me into a psycho so not keen
Highlandgoat
in
Endometriosis UK
2 years ago
Is this a UTI
I suffer health anxiety which I have had many years. After my hysterectomy 7 years ago I had bladder problems which was the feeling of wanting to pee as soon as I had been. It was horrible and lasted over the 6 weeks the consultant said was normal. Now I know once I start something like this I cannot
I suffer health anxiety which I have had many years. After my hysterectomy 7 years ago I had bladder problems which was the feeling of wanting to pee as soon as I had been. It was horrible and lasted over the 6 weeks the consultant said was normal. Now I know once I start something like this I cannot
Alloagirl
in
Anxiety Support
2 years ago
bowel blockage scar tissue
Iam stage 111c2high grade ovarian cancer had hysterectomy then 3rounds chemo followed by debunking surgery 3more rounds chemo followed by 2yrs on olaparib iam Ned which iam so grateful for Every few months I get terrible pain in my abdomen with vomiting which can last up to 24 hrs very debilitating
Iam stage 111c2high grade ovarian cancer had hysterectomy then 3rounds chemo followed by debunking surgery 3more rounds chemo followed by 2yrs on olaparib iam Ned which iam so grateful for Every few months I get terrible pain in my abdomen with vomiting which can last up to 24 hrs very debilitating
1946val
in
My Ovacome
2 years ago
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Fibro caused by ?
My so called fibro turned out to be caused by low estrogen levels. Do you know what causes yours? Ive been struggling with what I was told was asthma for years, then other symptoms, then after a hysterectomy it got much worse very quick. I now know for a fact my so called various illnesses were symptoms
My so called fibro turned out to be caused by low estrogen levels. Do you know what causes yours? Ive been struggling with what I was told was asthma for years, then other symptoms, then after a hysterectomy it got much worse very quick. I now know for a fact my so called various illnesses were symptoms
amberbrown
in
Fibromyalgia Action UK
2 years ago
Free comfort
Ive been struggling with what I was told was asthma for years, then other symptoms, then after a hysterectomy it got much worse very quick. I now know for a fact my so called various illnesses were symptoms of estrogen loss. One thing that has helped me is being able to go to a free prayer forum for
Ive been struggling with what I was told was asthma for years, then other symptoms, then after a hysterectomy it got much worse very quick. I now know for a fact my so called various illnesses were symptoms of estrogen loss. One thing that has helped me is being able to go to a free prayer forum for
amberbrown
in
Asthma Community Forum
2 years ago
Carboplatin on its own. Stage 1 anyone else?
Hi everyone, I have looked back through previous posts and can't find many in the same situation as me. Im 57 years old, had a full hysterectomy a month ago to remove a 13cm ovary mass, turned out to be cancerous within the ovary and some pre cancer cells within the fallopian tube. They said it was
Hi everyone, I have looked back through previous posts and can't find many in the same situation as me. Im 57 years old, had a full hysterectomy a month ago to remove a 13cm ovary mass, turned out to be cancerous within the ovary and some pre cancer cells within the fallopian tube. They said it was
Weeworrier
in
My Ovacome
2 years ago
Finally operation date…..
Hi I finally have a date for my hysterectomy 21st November, my emotions are up and down. I will ask at my pre op but anyone have any ideas how long I will have to stay in hospital for ? Is it day surgery ? Am on the morning list so was hoping I would be home by tea time or early evening. Any
Hi I finally have a date for my hysterectomy 21st November, my emotions are up and down. I will ask at my pre op but anyone have any ideas how long I will have to stay in hospital for ? Is it day surgery ? Am on the morning list so was hoping I would be home by tea time or early evening. Any
Bassem1979
in
Endometriosis UK
2 years ago
Spinal endometriosis? Feeling confused and alone
I was diaognoised with endometriosis back in february this year. I've since had two surgeries the last resulting in in a full hysterectomy. So I'd hoped my problems would have been solved. But as we all know endometriosis is never that simple. Long story short I've also always suffered with back pain
I was diaognoised with endometriosis back in february this year. I've since had two surgeries the last resulting in in a full hysterectomy. So I'd hoped my problems would have been solved. But as we all know endometriosis is never that simple. Long story short I've also always suffered with back pain
Bubble41
in
Endometriosis UK
2 years ago
Please need some support and guidance
Hi all ok trying to cut a long story short here , I have been diagnosed with stage 4 endo on bowel and bladder , I was referred for full / hysterectomy and bowel reconstruction surgery . The long and short is I have been on the waiting list for over a year and have had 3 pre ops and no surgery. Yesterday
Hi all ok trying to cut a long story short here , I have been diagnosed with stage 4 endo on bowel and bladder , I was referred for full / hysterectomy and bowel reconstruction surgery . The long and short is I have been on the waiting list for over a year and have had 3 pre ops and no surgery. Yesterday
Faithstar
in
Endometriosis UK
2 years ago
14 year old daughter facing laparoscopy
Hi, I’m hoping to get some advice and support about my 14 year old daughter. I’ve got endo myself and have suffered for 30+ years with it, I had a radical hysterectomy 8 years ago. My worst fears appear to be a reality as my daughter has suffered horrendous period pain since she started 4 years ago.
Hi, I’m hoping to get some advice and support about my 14 year old daughter. I’ve got endo myself and have suffered for 30+ years with it, I had a radical hysterectomy 8 years ago. My worst fears appear to be a reality as my daughter has suffered horrendous period pain since she started 4 years ago.
Whitley15
in
Endometriosis UK
1 year ago
Continuous Utrogestan after hysterectomy?
Hi everyone! My little back story.... I was diagnosed with endometriosis back in 2015, skip forward to 2020 and my symptoms got a whole lot worse. I was diagnosed with severe DIE (bowel, ureter and pouch of Douglas), adenomyosis and an endometrioma all affecting my left pelvis. I had a hysterectomy
Hi everyone! My little back story.... I was diagnosed with endometriosis back in 2015, skip forward to 2020 and my symptoms got a whole lot worse. I was diagnosed with severe DIE (bowel, ureter and pouch of Douglas), adenomyosis and an endometrioma all affecting my left pelvis. I had a hysterectomy
77yellow
in
Endometriosis UK
2 years ago
MRI scan
hi, I was diagnosed with endometrial in September 2020, I’ve since had chronic pain and was advised to complete my family and then have a hysterectomy, i have since had my baby and I’m about to start the injections to mimic the menopause, but I would like to have an MRI scan to check for endometriosis
hi, I was diagnosed with endometrial in September 2020, I’ve since had chronic pain and was advised to complete my family and then have a hysterectomy, i have since had my baby and I’m about to start the injections to mimic the menopause, but I would like to have an MRI scan to check for endometriosis
Jodie08
in
Endometriosis UK
2 years ago
CA125
I am just finished my 3rd chemo session, when I spoke to Nurse last week before my 3rd session. I asked what my CA125 was sitting at 2 weeks after my full Hysterectomy it was sitting at 456 after my 2nd chemo session it's was 86 is this looking good? Thanks
I am just finished my 3rd chemo session, when I spoke to Nurse last week before my 3rd session. I asked what my CA125 was sitting at 2 weeks after my full Hysterectomy it was sitting at 456 after my 2nd chemo session it's was 86 is this looking good? Thanks
Beoony
in
My Ovacome
2 years ago
Hormonal Treatments
Hi all, I’m new to the forum but have had confirmed endometriosis since 2017 following laparoscopic surgery for cysts. I’ve found out I now have multiple cysts again, 1 of which is almost 20cm!!! Had a very rushed appointment with an endometriosis consultant on the nhs last week after having trans vaginal
Hi all, I’m new to the forum but have had confirmed endometriosis since 2017 following laparoscopic surgery for cysts. I’ve found out I now have multiple cysts again, 1 of which is almost 20cm!!! Had a very rushed appointment with an endometriosis consultant on the nhs last week after having trans vaginal
Cocolil20
in
Endometriosis UK
2 years ago
Hernia prevention after an abdominal hysterectomy
Hello I am looking for some advice please. I have ready many posts where women comment that they have had a hernia after having had a hysterectomy and I wondered if there is anything that puts some women more at risk of a hernia than others? Also, is there any advice that anybody could share which
Hello I am looking for some advice please. I have ready many posts where women comment that they have had a hernia after having had a hysterectomy and I wondered if there is anything that puts some women more at risk of a hernia than others? Also, is there any advice that anybody could share which
SarahBa
in
My Ovacome
2 years ago
Adenomyosis Warriors...advice sought from a new adeno club member
Hi all! I am new to this community as just two weeks ago I was diagnosed with adenomyosis after years of pain and being sent in circles by doctors. Guess I am a new member to the adeno club. The specialist said I need a hysterectomy and talked of IVF. I'm 43 no kids. I don't want a hysterectomy
Hi all! I am new to this community as just two weeks ago I was diagnosed with adenomyosis after years of pain and being sent in circles by doctors. Guess I am a new member to the adeno club. The specialist said I need a hysterectomy and talked of IVF. I'm 43 no kids. I don't want a hysterectomy
nempenthe79
in
Endometriosis UK
2 years ago
Mini pill
hi everyone. I tried noriday mini pill for just under 3 mths but I bled a lot and was quite angry on it 🤦♀️ I stopped taking it a week before my holiday in august, as I was worried it would ruin it with all the bleeding. However I saw my gynea 2 weeks ago for my mri follow up. My endo is severe
hi everyone. I tried noriday mini pill for just under 3 mths but I bled a lot and was quite angry on it 🤦♀️ I stopped taking it a week before my holiday in august, as I was worried it would ruin it with all the bleeding. However I saw my gynea 2 weeks ago for my mri follow up. My endo is severe
Starry1977
in
Endometriosis UK
2 years ago
Struggling a bit
Hi, I was diagnosed in July with 1C Mucinous OC with a few clear cells also found. It was a bit of a shock diagnosis (for consultant as well) as after bloods and MRI etc, nothing appeared sinister. The original affected ovary was only found by chance (random unrelated question to GP and no symptoms
Hi, I was diagnosed in July with 1C Mucinous OC with a few clear cells also found. It was a bit of a shock diagnosis (for consultant as well) as after bloods and MRI etc, nothing appeared sinister. The original affected ovary was only found by chance (random unrelated question to GP and no symptoms
Frankie1405
in
My Ovacome
2 years ago
Just some advice please 🙏
Hi all Hope your all doing well just after a bit of advice really but don’t want to make this long. So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . I have been on waiting list since 2021 and have had 2 pre ops . My last physical examination was done in February
Hi all Hope your all doing well just after a bit of advice really but don’t want to make this long. So I have serve endo and am waiting surgery for hysterectomy and possible bowel resection . I have been on waiting list since 2021 and have had 2 pre ops . My last physical examination was done in February
Faithstar
in
Endometriosis UK
2 years ago
Excision surgery or hysterectomy?
Hi all, I need a bit of help/advise on how to move forward. Just had a call with the doctor. I tried many meds, but they do not help much. I have very tight pelvic muscles that causes pain. I am taking Cymbalta for my nerve pain that is caused by tight muscles. I have Mirena, that does not help much
Hi all, I need a bit of help/advise on how to move forward. Just had a call with the doctor. I tried many meds, but they do not help much. I have very tight pelvic muscles that causes pain. I am taking Cymbalta for my nerve pain that is caused by tight muscles. I have Mirena, that does not help much
Knina
in
Endometriosis UK
2 years ago
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