Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,886 members • 5,436 posts

All posts for March 2021

Of those of you who have tried vitamin C to treat Raynaud's, have you found it to work? If so, what dose did you take?

Vitamin C, Raynaud's, effective?

Vitamin C, Raynaud's, effective?

•3 years ago

Flare up after covid jab?

Anyone experiencing flare of symptoms after jab? I had mine on 9th feb n altho just had normal side effects of injection couple of days afterwards, I feel...

Anyone experiencing flare of symptoms after jab? I had mine on 9th feb n altho ...

•3 years ago

Schleroderma and Raynauds

I have noticed as the winters are feeling colder that my Raynauds and Ostioarthritis are worse than normal, but, worse still the last couple of weeks the tops...

I have noticed as the winters are feeling colder that my Raynauds and Ostioarthr...

•3 years ago

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Nifedipine alternatives

I've been taking Nifedipine for 20 or more years and my current prescription is for 20mg MR (modified release) e.g. slowly, rather than a quick hit which is...

I've been taking Nifedipine for 20 or more years and my current prescription is...

•3 years ago

Waving Goodbye to Hand Hobbies 👋

Hi Everyone! I'm back with another topic and more questions! My post today is revolves mainly around Rauynards Phenomenon and mobility issues caused by...

Hi Everyone! I'm back with another topic and more questions! My post today is ...

•3 years ago

Any one experienced scleredema (not scleroderma)?

Hi. Just had a call from dermatology saying that my recent skin biopsy suggested scleredema. Prognosis wise - it seems less severe than any of the types of...

Hi. Just had a call from dermatology saying that my recent skin biopsy suggested...

•3 years ago

PIP Telephone assessment

Hi, I have a PIP telephone Assessment tomorrow. I have read through my form - made some notes on the descriptor sheet. Any other useful tips?? Am proper...

Hi, I have a PIP telephone Assessment tomorrow. I have read through my form - m...

•3 years ago

Could this be scleroderma? What should I ask from my GP?

Hello everyone, I’ve had a strange thing going on with my right hand since before Christmas. Initially my fingers were very swollen and painful to bend. Some...

Hello everyone, I’ve had a strange thing going on with my right hand since befor...

•3 years ago

Raynaud’s disease

I have lupus and been diagnosed with Raynaud’s disease. My feet are always cold but when it’s touched it feels normal. Is this normal please?

I have lupus and been diagnosed with Raynaud’s disease. My feet are always cold ...

•3 years ago

Body temperature

Any idea I've recently had iloprost infusion about 2weeks ago, but my body temperature has dropped and my hands,nose and feet are even colder than before. Has...

Any idea I've recently had iloprost infusion about 2weeks ago, but my body tempe...

•3 years ago

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Because Y is a crooked letter that cannot be straightened....

Happy Fri-yay to all my fellow Warriors!! Today I want to tackle the subject of parenting when suffering with Scleroderma and other autoimmune diseases. I...

Happy Fri-yay to all my fellow Warriors!! Today I want to tackle the subject of...

•3 years ago

Hi everyone,

I've recently been diagnosed with mctd and raynauds. The last few days my hands have been shaking, in the mornings in particular, and now today my legs are...

I've recently been diagnosed with mctd and raynauds. The last few days my hands ...

•3 years ago

Covid Vaccine Experience! Sometimes you've just got to put your big girl pants on and be brave xx

Hi everyone! I've noticed recently that there are a lot of posts on here asking about people's experiences with the covid vaccine. It's clear to me that a lot...

Hi everyone! I've noticed recently that there are a lot of posts on here asking...

•3 years ago

Mouth Dryness

I have Schleroderma and I experience extreme dryness in my mouth daily and at night it is off the scale and it keeps me from sleeping. The doctors in Spain...

I have Schleroderma and I experience extreme dryness in my mouth daily and at ni...

•3 years ago

Toe locking, cramps and Raynaud's

Hi I'm not sure if anyone can help me but i'm going to try. I have been an amputee for 35 years, so my remaining leg is under a lot of pressure. I was...

Hi I'm not sure if anyone can help me but i'm going to try. I have been an amput...

•3 years ago

Magnesium to help Raynaud's and Scleroderma

Has anyone tried increasing their magnesium intake to help their body to heal? This would help readjust the balance in the body between calcium and magnesium...

Has anyone tried increasing their magnesium intake to help their body to heal? T...

•3 years ago

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Any recommendations for foot treatment?

I experience extreme flare ups of my Raynaud's in the form of foot pain, numbness and leg shakes. I eat very healthy, exercise daily and stay warm wearing...

I experience extreme flare ups of my Raynaud's in the form of foot pain, numbne...

•3 years ago

Throbbing Pain From Raynaud’s

I have Raynaud’s. I’m on nifedipine and Sildenafil for circulation. Sometimes I experience throbbing pain in my fingers. Does anyone else go through this and...

I have Raynaud’s. I’m on nifedipine and Sildenafil for circulation. Sometimes I...

•3 years ago

Digestive Issues

Hi, Can you help please? I’m struggling so much with my digestion right now. I’m on PPIs and ranitidine, I can’t eat meat or fish, nuts, biscuits and bread get...

Hi, Can you help please? I’m struggling so much with my digestion right now. I’m...

•3 years ago

Weight Gain as opposed to weight loss

I have limited systemic scleroderma and take the following medications: Prednisolone 5 mg,Omeprazole 40mg, Plaquenil, Telfast,Arcoxia, Fluoxetine, Tolterodine,...

I have limited systemic scleroderma and take the following medications: Predniso...

•3 years ago

How much you get out?

How much would you normally go out and how much you got out in the last 12 months? There were many days I stayed indoors. What made me confident are heated...

How much would you normally go out and how much you got out in the last 12 month...

•3 years ago