Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,886 members • 5,436 posts

All posts for May 2019

B12? Or something else?

Hi guys, I havnt posted on here for quite a while now.. I was wondering if anyone is also experiencing the same symptoms as me? .. So I've been feeling super...

Hi guys, I havnt posted on here for quite a while now.. I was wondering if anyo...

Rebecca1993Foster

•5 years ago

Diagnosed with Scleroderma but am having really bad muscle pains to the point where I’m in bed 4days!!! Hopefully u can relate?

I was diagnosed with scleroderma about year n a half now.... I’m on cellcept 500 4 times a day!!! In the beginning it was everything real tight n achy plus...

I was diagnosed with scleroderma about year n a half now.... I’m on cellcept 500...

•5 years ago

Morphea Patches

Hi, My 9 year old daughter has Morphea with several patches on her body (2 on her back, 1 on her stomach and a few on her side) has anyone had experience of...

Hi, My 9 year old daughter has Morphea with several patches on her body (2 on he...

•5 years ago

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SRUK Patient Survey

Hi All, If you wouldn't mind taking 10 minutes to fill in our Patient Survey for anyone with Scleroderma or Raynaud's, it will be of immense help in forming...

Hi All, If you wouldn't mind taking 10 minutes to fill in our Patient Survey for...

Partner•5 years ago

Plmt

ik ben op zoek naar mensen met plmt. Heb ook last van piriformer en sacro_iliacale gewrichten en onderrugpijn. Graag contact.

ik ben op zoek naar mensen met plmt. Heb ook last van piriformer en sacro_iliac...

•5 years ago

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Recently purchased.....

Hi everyone I’m a newbie here. I’ve got Raynaulds and had it For years but I recently discovered these “hut boots”..........

Hi everyone I’m a newbie here. I’ve got Raynaulds and had it For years but I rec...

•5 years ago

Confused by anticentromere antibodies

Hi I had parvovirus at the beginning of the year with swollen fingers and terrible pains in my hands and arms. It triggered carpel tunnel syndrome and for the...

Hi I had parvovirus at the beginning of the year with swollen fingers and terrib...

•5 years ago

Disabling badge

Has anyone had success when applying for a disability badge. I am having problems walking any distance due to breathlessness and muscle weakness in legs....

Has anyone had success when applying for a disability badge. I am having problem...

•5 years ago

Back pain

Hi guys I've been experiencing back pain in my lower back, tailbone area. If I sit or lie down I really struggle to get back up without being in agony. It...

Hi guys I've been experiencing back pain in my lower back, tailbone area. If I s...

•5 years ago

Hydroxychloroquine and hypoglycaemia

Hi, My husband and I have noticed now, that if there is too much of a gap between meals, I start feeling and getting unwell (I don't just mean a bit hungry)....

Hi, My husband and I have noticed now, that if there is too much of a gap betwe...

•5 years ago

Electric feeling strange scary sensation throughout whole body

Back then I used to get this weird like surge rush feeling like kinda like I’m getting shock and now it’s starting to happen again so intensely. I can just...

Back then I used to get this weird like surge rush feeling like kinda like I’m g...

•5 years ago

Feeling depressed scleroderma

I have scleroderma raynauds osteoporosis and feel really ill.GPs don't understand how I feel think I am putting it on. Does anyone with illness feel like this

I have scleroderma raynauds osteoporosis and feel really ill.GPs don't understan...

•5 years ago

Medication

Hi can anyone tell me what medication they are on for Raynauds as I have been told by the doctors they have stoped Nifedipine thank you

Hi can anyone tell me what medication they are on for Raynauds as I have been to...

•5 years ago

Little walk or little activity makes me breathless stomach floating with Diarrhea.

This is going more wars since last 3 weeks did concert gp same time when this suddenly started go first send for chest X-ray no precipitation concert gp after...

This is going more wars since last 3 weeks did concert gp same time when this su...

•5 years ago

Hot hands! No sweating, just putting off intense heat, any suggestions for a cause?

My hands get so hot and it makes me miserable, anyone else have this issue?

My hands get so hot and it makes me miserable, anyone else have this issue?

•5 years ago

elprof7557

Suffering from limited scleroderma and Raynaud's since Nov.2011.

Suffering from limited scleroderma and Raynaud's since Nov.2011.

•5 years ago

Weird feeling

Just coming broadside of a 4 week flare of whatever this is causing it. Firearms are now solid like stone but for a week this weird thing. Just under the bum...

Just coming broadside of a 4 week flare of whatever this is causing it. Firearms...

•5 years ago

Recently diagnosed. Confused and concerned.

I was diagnosed with late onset Raynaud and Scleroderma in November 2018. This was as a result of a blood test taken by my GP in June when I was unwell and...

I was diagnosed with late onset Raynaud and Scleroderma in November 2018. This ...

•5 years ago

Bizarre

I find it totally bizarre that the majority of us have the ‘same’ condition but we all have such diverse issues. It’s difficult to find a common ground so I...

I find it totally bizarre that the majority of us have the ‘same’ condition but ...

•5 years ago

Nausea

How do you cope with nausea.. I'm on tramadol for pain, I'm having to take paracetamol and ibuprofen daily to manage headaches. I am really struggling to eat...

How do you cope with nausea.. I'm on tramadol for pain, I'm having to take parac...

•5 years ago

Swollen hands

I have recently been diagnosed with systemic sclerosis. I have had Raynaud's for many years. I find that my hands are almost always swollen. Is this...

I have recently been diagnosed with systemic sclerosis. I have had Raynaud's fo...

•5 years ago

White spots ?

I haven’t been diagnosed as of yet ( under rheumatologist etc etc for severe muscle pains and a long list of other ailments alongside it ) but I’m wondering...

I haven’t been diagnosed as of yet ( under rheumatologist etc etc for severe mus...

•5 years ago

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