Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,867 members • 5,424 posts

All posts for August 2016

IS THERE ANYONE OUT THERE IN THE SUFFOLK AREA.....

It would be so nice to meet up with someone else who is suffering from Systemic Scleroderma with Raynaulds, feeling isolated .....

It would be so nice to meet up with someone else who is suffering from Systemic ...

•8 years ago

New heart problem diagnosis

Hello everyone, I have Limited and Raynauds; a recent echo cardiogram showed a slight left ventricle impairment..the consultant cardiologist thinks caused by...

Hello everyone, I have Limited and Raynauds; a recent echo cardiogram showed a s...

•8 years ago

itchy inside my mouth

Hello, anyone with Ssc get these symptoms....itchy inside my mouth...not all the time but enough to be annoying...the roof of my mouth and under my tongue, no...

Hello, anyone with Ssc get these symptoms....itchy inside my mouth...not all the...

•8 years ago

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Living with Scleroderma and it's "friends"!

I have had scleroderma over 20 years, Raynaud's even longer, and since 2010 my health has declined with lots of other conditions diagnosed resulting in an...

I have had scleroderma over 20 years, Raynaud's even longer, and since 2010 my h...

•8 years ago

Potassium

I have CREST Syndrome. I had a frightening experience at the weekend. I was rung by a doctor at the crack of dawn on Saturday to say that the blood test...

I have CREST Syndrome. I had a frightening experience at the weekend. I was rung...

•8 years ago

New to this

Hi all I have sjogrens with a few other probelms on the side! I havent talked to rheumy about this yet but ive been having some probelms with my toes. I have...

Hi all I have sjogrens with a few other probelms on the side! I havent talked to...

•8 years ago

Does anyone recognise this pattern?

I am a fit 56 year old man who was diagnosed with SSc about 15 months ago but didn't really know what that meant having never been ill! Since then I have been...

I am a fit 56 year old man who was diagnosed with SSc about 15 months ago but di...

•8 years ago

Long time sufferer of Raynauds and SSc, but new symptom...

Hi guys, So I've suffered Raynauds all my life and developed Systemic Sclerosis in my mid 30s like a lot of women do with Raynauds (i'm now 42), and I thought...

Hi guys, So I've suffered Raynauds all my life and developed Systemic Sclerosis ...

•8 years ago

Air conditioning

Hi. Is it me or not but i am sick of shops having there air conditioning on to cold. I can't cope with it , im finding myself almost running back out of the...

Hi. Is it me or not but i am sick of shops having there air conditioning on to c...

•8 years ago

BURNING hands, feet & face in this heat! Here's a grrrreat erythromelalgia article

So predictable 😏: my raynauds is simultaneous with erythromelalgia (EM)...which of course is worse than ever right now...just found this on Facebook...thought...

So predictable 😏: my raynauds is simultaneous with erythromelalgia (EM)...which...

•8 years ago

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Magnesium oil

My calf muscles were cramping terribly so I tried Magnesium oil. It really helped and my skin that was very hard started to flake/peel away and the skin...

My calf muscles were cramping terribly so I tried Magnesium oil. It really help...

•8 years ago

Scleroderma help

Hi, ANA showed Scleroderma Limited and I'm about to visit Consultant next week. Just wondering what to expect if anyone can help? So far, I'm so tired all the...

Hi, ANA showed Scleroderma Limited and I'm about to visit Consultant next week. ...

•8 years ago

I am off on my hols!!!

Well the time has come, I am off on my hols. Infact my daughter, son in law and granddaughters will be picking me up in 6 hours time!!! yes you read it...

Well the time has come, I am off on my hols. Infact my daughter, son in law and...

•8 years ago

Any one had problems with hospital finding veins

Had a traumatic hospital visit this morning. Had to have a cannula put in for a scan, they ended up having to find veins using an ultrasound. Used to them...

Had a traumatic hospital visit this morning. Had to have a cannula put in for a ...

•8 years ago

Osteomylitis

Last year I wrote in about an ulcerated middle digit, which I had been diagnosed with Raynaud Syndrome - being treated with a topical cream called Bacitercin,...

Last year I wrote in about an ulcerated middle digit, which I had been diagnosed...

•8 years ago

Recently Diagnosed with Systemic Scleroderma.

Any help or advise please. I was admitted to hospital with shortness of breath & chest pain, after being unwell for the past 6 months. I spent 12 days in...

Any help or advise please. I was admitted to hospital with shortness of breath &...

•8 years ago