Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,867 members • 5,424 posts

All posts for April 2016

Homeopathic treatment

Has anyone else tried homeopathy for their Raynaulds. I find that two or three drops of liquid Ferrum Phosphoricum mixed it with some cream and rubbed on the...

Has anyone else tried homeopathy for their Raynaulds. I find that two or three ...

emmielu

•8 years ago

5 Replies

Raynauds/Wax Bath

When I went to see my Rheumatology Specialist Nurse the other week, she advised that using a hand wax bath would be beneficial for my hands!! She has since...

When I went to see my Rheumatology Specialist Nurse the other week, she advised ...

JayneO

•8 years ago

6 Replies

Travel Insurance

An update on my search for reasonable travel insurance. Finally got one. As I worked for Local Government I was able to get insurance through Civil Service...

An update on my search for reasonable travel insurance. Finally got one. As I...

Jennifer1950

•8 years ago

3 Replies

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Help with raynauds

I was told a few years ago I had raynauds in my feet and never usually get it anywhere else but this time I'm suffering with such bad pains in my legs, they...

I was told a few years ago I had raynauds in my feet and never usually get it an...

Emma020884

•8 years ago

Be the first to reply

I'm disappointed with my illness with NHS doctors and nurses !

Hi all my friends I'm having difficulty on my Madical condition with scleroderma with raynouds with kidney lots and others more problems with oesophagus which...

Hi all my friends I'm having difficulty on my Madical condition with scleroderma...

Nurmohammed

•8 years ago

11 Replies

Anyone have symptoms like these?

I've had Raynauds for 14 years now....but I've developed a new set of symptoms, and I'm not sure if they are related. I've had some permanent numbness to some...

I've had Raynauds for 14 years now....but I've developed a new set of symptoms, ...

emmielu

•8 years ago

12 Replies

Grateful thanks

Fairy 56, Thank you to everybody that took the time to reply to my posting. I am sorry I am not replying to you separately, but I am truly thankful. I am...

Fairy 56, Thank you to everybody that took the time to reply to my posting. I a...

fairy56

•8 years ago

11 Replies

Treatments for a narrowing throat.

Has anyone on here had a successful intervention to arrest the narrowing of the esophagus? Its getting that I feel safer with a liquid diet since anything and...

Has anyone on here had a successful intervention to arrest the narrowing of the ...

Madge51

•8 years ago

4 Replies

What sun cream to use?

Hi everyone, I hope today was one of your better days. Anyway I am going to Tenerife in August with my daughter, son in law and 2 grand daughters, any...

Hi everyone, I hope today was one of your better days. Anyway I am going to Ten...

fairy56

•8 years ago

8 Replies

Scleroderma & Raynaud's UK posting guidelines

Scleroderma & Raynaud's UK (SRUK) is a registered charity whose work includes supporting people with Scleroderma and/or Raynaud's and those whose conditions...

Scleroderma & Raynaud's UK (SRUK) is a registered charity whose work includes s...

SRUKadmin

Partner•8 years ago

Be the first to reply

Beurgers Syndrome db122510@gmail.com

Just completed Lung and finger x-rays-No diseases in lungs but infection of 2-left digits are to the bone. Now it is found that I have Beurgers syndrome. New...

Just completed Lung and finger x-rays-No diseases in lungs but infection of 2-le...

Discontent

•8 years ago

2 Replies

Raynaud's in thumbs?

Hi I started getting white fingers last year and went to the gp who diagnosed Raynaud's. Was only in there two mins and no further tests offered. When my hands...

Hi I started getting white fingers last year and went to the gp who diagnosed Ra...

sarahlou1977

•8 years ago

8 Replies

Diagnosed with Raynaud's but no blood test

I visited the nurse at local GP surgery for an annual health check and was recalled for a second blood test. They said they were testing for a B12 deficiency...

I visited the nurse at local GP surgery for an annual health check and was recal...

BrackWill

•8 years ago

10 Replies

Anyone struggling with the mental aspects of Scleroderma?

Hello guys, I was diagnosed last year with Systemic Sclerosis, Raynauds and and still undergoing tests for possibly RA and various other things. This all seems...

Hello guys, I was diagnosed last year with Systemic Sclerosis, Raynauds and and ...

redfairy118

•8 years ago

27 Replies

Anaemia

Hi, haven't posted in a really long time, but I have a question. I keep suffering from severe anaemia and they have run tests and nothing comes back. It...

Hi, haven't posted in a really long time, but I have a question. I keep sufferin...

uknlv

•8 years ago

6 Replies

Try going dairy free!

In Canada, Cyrex Labs and Rocky Mountain Analytical lab, both do antibody testing to check for food sensitivities. I had Raynaud's but my body temperature,...

In Canada, Cyrex Labs and Rocky Mountain Analytical lab, both do antibody test...

BalancedConcepts

•8 years ago

5 Replies

Scleroderma and Non-Hodgkins Lymphoma

My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of...

My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very...

TraceyK55

•8 years ago

4 Replies

Jia and scleroderma

Hi, I am new to this site so bear with me. My soon to be 5 year old has juvenile arthritis and has been diagnosed with localised scleroderma just last month. I...

Hi, I am new to this site so bear with me. My soon to be 5 year old has juvenile...

1aoife22

•8 years ago

4 Replies

Another update

Saw my rheumatologist today, confirmed I have CREST, got to have barium swallow to see what damage has been done to my oesophagus & may need referral for...

Saw my rheumatologist today, confirmed I have CREST, got to have barium swallow ...

Anne1966

•8 years ago

7 Replies

Pre Scleroderma Confusion

After alot of back and forth I have recently been told I am "pre-scleroderma" whatever that means. The rheumatologist wasn't exactly clear about any of it and...

After alot of back and forth I have recently been told I am "pre-scleroderma" wh...

Hidden

•8 years ago

25 Replies

Centromere

I've been given a diagnosis that tells me I have a centromere ANA 1:1280, can anyone tell me what this means please, also ct scan shows a little mosaicism & a...

I've been given a diagnosis that tells me I have a centromere ANA 1:1280, can an...

Anne1966

•8 years ago

1 Reply

Raynaud's Summer Running Gloves help

hello I am a runner. My raynaud's goes to both the white/yellow/purple cold extreme to the red swollen extreme often. The red/swollen part happens every...

hello I am a runner. My raynaud's goes to both the white/yellow/purple cold ex...

ebielli

•8 years ago

9 Replies

Is Raynaud and Scleroderma one in the same?

Having same issues with 2-digits being ulcerated, now am having skin discoloration in hands, itching reaction which has caused bruising, weight loss, numbness...

Having same issues with 2-digits being ulcerated, now am having skin discolorati...

Discontent

•8 years ago

8 Replies

Sclero & hashimotos

Hello all, I've been diagnosed with systemic scleroderma and hashimotos for getting on 15 years now. I'm 59. Although I am fairly well on meds for both...

Hello all, I've been diagnosed with systemic scleroderma and hashimotos for get...

judith3

•8 years ago

1 Reply

Is it safe to drink aloe vera gel and can it help with the symptoms of scleroderma?

Professor Chris Denton answered this question in our latest 'Doc Spot' feature in our magazine. He said: "This is a very topical question since there has been...

Professor Chris Denton answered this question in our latest 'Doc Spot' feature i...

SRUKadmin

Partner•8 years ago

2 Replies

Finally going to get some sense

After a really bad flare up I saw my GP who sent Urgent referrals to the Rheumy and Podiatry 5 weeks later I have my Podiatry appointment through for next...

After a really bad flare up I saw my GP who sent Urgent referrals to the Rheumy ...

TJme

•8 years ago

4 Replies

Am I considered sick?

I was diagnosed with Lupus Anticoagulant after suffering a still birth. This forced me to retire after 8 years As a Police Officer. Am I really sick? Am I...

I was diagnosed with Lupus Anticoagulant after suffering a still birth. This for...

Tria

•8 years ago

11 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2016

Homeopathic treatment

Raynauds/Wax Bath

Travel Insurance

Help with raynauds

I'm disappointed with my illness with NHS doctors and nurses !

Anyone have symptoms like these?

Grateful thanks

Treatments for a narrowing throat.

What sun cream to use?

Scleroderma & Raynaud's UK posting guidelines

Beurgers Syndrome db122510@gmail.com

Raynaud's in thumbs?

Diagnosed with Raynaud's but no blood test

Anyone struggling with the mental aspects of Scleroderma?

Anaemia

Try going dairy free!

Scleroderma and Non-Hodgkins Lymphoma

Jia and scleroderma

Another update

Pre Scleroderma Confusion

Centromere

Raynaud's Summer Running Gloves help

Is Raynaud and Scleroderma one in the same?

Sclero & hashimotos

Is it safe to drink aloe vera gel and can it help with the symptoms of scleroderma?

Finally going to get some sense

Am I considered sick?

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