Posts - SHARE Ovarian Cancer Support | HealthUnlocked

SHARE Ovarian Cancer Support

2,763 members • 983 posts

All posts for January 2019

For the PARP inhibitor gals

What are your undocumented side effects? I'm on Zejula and have experienced weight loss and very thin, fragile finger nails. Anyone else relate? My first 2...

What are your undocumented side effects? I'm on Zejula and have experienced weig...

•5 years ago

Recurrence

Hello and hugs to ALL, I was diagnosed with OC (Fallopian tube) March 2018, found during routine hysterectomy ..... 6 chemo treatments of carbo/taxol. ......

Hello and hugs to ALL, I was diagnosed with OC (Fallopian tube) March 2018, foun...

•5 years ago

New Member looking for help. We have been on several different chemo drugs and currently on Rubraca.

Good Morning. My wife and I have been battling Ovarian cancer for three long years. I was excited to learn of this site for support. She was diagnosed with...

Good Morning. My wife and I have been battling Ovarian cancer for three long ye...

•5 years ago

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A bit of a mystery....

Stage 3 Fallopian tube cancer diagnosed August 2018. Debulking, chemo, and on 100 milligrams per day Zejula for 9 months. CA 125 began to climb two months...

Stage 3 Fallopian tube cancer diagnosed August 2018. Debulking, chemo, and on 1...

•5 years ago

Clear Cell 1c. Grade 3

Anyone out there with this diagnosis? Daughter still NED after one year but I could sure use some positive outcomes as Clear Cell is rare.

Anyone out there with this diagnosis? Daughter still NED after one year but I c...

•5 years ago

NHS Waiting Times (Wales)

I posted last week regarding my worries about showing OC symptoms and although my GP didn't explicitly say that my radiology referral was classed as 'urgent',...

I posted last week regarding my worries about showing OC symptoms and although m...

•5 years ago

I lost my best friend and sister to this horrible silent killer!

My sister Martha and I founded Doc It Foundation in 2006 when she was diagnosed with stage IV ovarian cancer. Little did we know she only had 2 years to live....

My sister Martha and I founded Doc It Foundation in 2006 when she was diagnosed ...

•5 years ago

OvarIan 3C Avastin & Doxil

My wife was diagnosed ovarian 3C in June 2017. Has been getting Avastin since march 2018. Started every 3 weeks for a few months. Ca125 kept rising. Then...

My wife was diagnosed ovarian 3C in June 2017. Has been getting Avastin since m...

•5 years ago

B P ROY

My Aunts had ovarian cancer 4th stage, CA level was 220,.After 3 chemos CA level reduced to14.what will be her health condition and treatment needed.

My Aunts had ovarian cancer 4th stage, CA level was 220,.After 3 chemos CA level...

•5 years ago

New

My name is Emma .I finished my chemoterapy 1.5 year ago .

My name is Emma .I finished my chemoterapy 1.5 year ago .

•5 years ago

New

Hi .I am new here .

Hi .I am new here .

•5 years ago

So glad

I'm so glad I got my avastin yesterday.they introduced tamoxifen but I had side affects. Waiting to see what we learned try now.I met wonderful,positive...

I'm so glad I got my avastin yesterday.they introduced tamoxifen but I had sid...

•5 years ago

I know everyone is not Licensed but I just need help reading my test results I never had before and I was just told yesterday I have a cyst

I know it’s not anybody that’s licensed but maybe it’s somebody with experience I just feel like they’re not telling me everything I constantly get UTIs I know...

I know it’s not anybody that’s licensed but maybe it’s somebody with experience ...

•5 years ago

Please help went to Er Today was tired of pain for Cronic pain and uti they said I have a cystalso can someone please make sense

Please if anyone one could tell my a What these tests say

Please if anyone one could tell my a What these tests say

•5 years ago

Survival fallopian tube carcinoma, serous high grade, BRACA 1, versus negative BRACA, vs. ovarian carcinoma?

PET CT in 5.12.2017, fallopian tube carcinoma, histerectomy, anexectomy, 2 nodules peritoine, stade 3B, serous high grade carcinoma end BRACA 1.

PET CT in 5.12.2017, fallopian tube carcinoma, histerectomy, anexectomy, 2 nodul...

•5 years ago

genomic testing

When is a full testing of tumor done Stage 2 b non BRCA

When is a full testing of tumor done Stage 2 b non BRCA

•5 years ago

"Ask A GYN-ONC Anything" with Dr. Melissa Frey

Ask an ovarian expert anything. Join the conversation by replying to this post. Our Ask Me Anything (AMA) with Dr. Melissa Frey is starting now. We recommend...

Ask an ovarian expert anything. Join the conversation by replying to this post. ...

Partner•5 years ago

Don't Forget to Participate in our Health Unlocked Program with Dr. Melissa Frey

Hi everyone, To participate in our ASK A GYN-ONC Anything today at 3:00pm ET click on the HealthUnlocked pinned post "ASK A GYN-ONC Anything" with Dr. Frey.

Hi everyone, To participate in our ASK A GYN-ONC Anything today at 3:00pm ET cli...

Partner•5 years ago

So glad

I'm so glad for today.I be said that for about the last 2/12 years.I read all your posts and most things I glance at I've not heard of.that's probably...

I'm so glad for today.I be said that for about the last 2/12 years.I read al...

•5 years ago

Fallopian tube carcinoma

Fallopian tube carcinoma, 3B, high grade, serous, surgery 18 dec. 2017, 9 carboplatin, taxol.

Fallopian tube carcinoma, 3B, high grade, serous, surgery 18 dec. 2017, 9 carbop...

•5 years ago

What questions do you have for GYN-ONC Dr. Melissa Frey?

On Jan 9th at 3:00 pm ET, Dr.Melissa Frey Assistant Professor of Obstetrics and Gynecology in the division of gynecologic oncology at Weill Cornell Medicine...

On Jan 9th at 3:00 pm ET, Dr.Melissa Frey Assistant Professor of Obstetrics and ...

Partner•5 years ago

Just saying hello

Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incurable platinum refractory club - a really rubbish subdivision of a club that in...

Hi everyone, just saying a warm hello to the community. I'm in the Stage 4C incu...

•5 years ago