Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for May 2024

What IV chemos have worked for you?

Hi all, I’ve failed on both Enhertu (which shrunk my cancer but cause pneumonitis) and now Trodelvy (did not work at all - had major progression in first 3...

Hi all, I’ve failed on both Enhertu (which shrunk my cancer but cause pneumonit...

•1 day ago

Moving on from Xeloda

sadly my markers have been rising and I have been having belly pain plus my neck node doubled in size since before my 2 months in New Zealand… weirdly but...

sadly my markers have been rising and I have been having belly pain plus my neck...

•2 days ago

Interesting new targeted therapy trial

I like this company’s mission. They have a Phase 1/2 trial underway at Mass General in Boston with a new miRNA-10b treatment....

I like this company’s mission. They have a Phase 1/2 trial underway at Mass Gen...

•3 days ago

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Capivasertib, fulvestrant

Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, lumber shows progression of Lumbar L1 ,and lesions right pelvic bone. Nov 2023....

Ibrance 100 mg. Letrozole seemed to decrease 7 areas of Mets. MRI to pelvic, l...

•3 days ago

Trodelvy after one year update

Hello and please excuse the lengthy post as I have a lot bouncing around in my head. I want to review my treatment path so far: I was diagnosed denovo in...

Hello and please excuse the lengthy post as I have a lot bouncing around in my h...

Iwasborntodothis

•4 days ago

fasoldex

been on this for 9 months now doing well 🙏anyone else good reports 👍

been on this for 9 months now doing well 🙏anyone else good reports 👍

•5 days ago

fatigue

I have been on Ibrance plus Faslodex since 2018. I have been able to meet 2 more grandchildren and see them grow. I am extremely grateful for this. However the...

I have been on Ibrance plus Faslodex since 2018. I have been able to meet 2 more...

•6 days ago

WHAT SHOULD I AVOID TAKING WITH IBRANCE

I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast cancer on September 2023 then I redid my biopsy for a second opinion and it was...

I am a Nigerian ,a single lady of 32years ,I was diagnosed of metastatic breast ...

•7 days ago

Skull mets

Skull met - does anyone have pain or tenderness with skull mets? If so how long does it last or how frequently?

Skull met - does anyone have pain or tenderness with skull mets? If so how long...

•8 days ago

Metastasis breast cancer

I jave neen daignosed with Metastasis breast cancer stage 4. I am on capecitabine 500 mg 2 tabs and capecitabine 150 mg tablet 2 tabs . Two weeks tablets and...

I jave neen daignosed with Metastasis breast cancer stage 4. I am on capecitabin...

•8 days ago

Dana Farber 2nd opinion?

I just got back my PET/CT results from yesterday. Bad! I have never had so much progression. Little spots, some new, some growing from last time, mostly in...

I just got back my PET/CT results from yesterday. Bad! I have never had so much ...

•10 days ago

Orserdo

I am going to start Orserdo soon because my V erzenio quit working, How are you feeling while taking Orserdo. Thank You Helena

I am going to start Orserdo soon because my V erzenio quit working, How are you ...

Iwouldlike2knowmore

•11 days ago

liver lesions

I got the CT results today and I have multiple lesions showing in different liver lobes. I am currently on Flosodex and Piqray. Wondering about MRI or Biopsy?...

I got the CT results today and I have multiple lesions showing in different liv...

•12 days ago

ibrance

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after 19 years from original diagnosis stage 2. Prognosis was very good. Surprised...

thanks for all the responses. I’ve been fighting metastatic bc since 2011 after ...

•13 days ago

Ibrance followup for 73 months

I had been looking for this article since a friend was denied Ibrance after being successfully treated on it for 6 years. Finally found it. You may find it...

I had been looking for this article since a friend was denied Ibrance after bein...

•13 days ago

Ribocyclib dose

Hi there everyone, Thanks for the support, warmth and information of this platform. It is a really special community. My mother is managing metastatic...

Hi there everyone, Thanks for the support, warmth and information of this plat...

•13 days ago

Am I crazy

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression...

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver les...

Onedayatatime60

•14 days ago

ibrance

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to...

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance ...

•14 days ago

NED/NEAD and 5-13 markers

For those of you who are NED or NEAD, what are your 5-13 tumor marker numbers? Are your numbers in the "normal" range? Have any of you been 0 (zero)?

For those of you who are NED or NEAD, what are your 5-13 tumor marker numbers? ...

•15 days ago

where to donate unused meds

hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new...

hi everyone - I recently transitioned from ibrance and exemastane to Faslodex an...

•15 days ago

pertinieum meds

hi. I am so nervous. They found Mets in my lining and it is causing ascites. Does anyone have any of these issues. I’m really trying to connect with someone...

hi. I am so nervous. They found Mets in my lining and it is causing ascites. Doe...

•17 days ago

Does anyone have muscle and bone pain with falodex and has it helped with cancer markers??

I have been on exemethzine for 4 years and now my CA 15 is rising and was switched to falodex. I have terrible muscle weakness and bone pain. Has anyone...

I have been on exemethzine for 4 years and now my CA 15 is rising and was switch...

•17 days ago