Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for September 2020

Komen MBC Conference Oct. 3 - 4, 2020

A heads-up that Komen Greater NYC is hosting a virtual MBC Conference on Oct. 3 and 4 that’s open to all whose lives have been affected by MBC. The...

A heads-up that Komen Greater NYC is hosting a virtual MBC Conference on Oct. 3 ...

Bestbird

•4 years ago

5 Replies

Convinced I have massive spread of cancer

I am on zeloda they said I have pneumonia, but I am convinced cancer has spread all over my body, feel dizzy in the morning but that's after epileptic meds

I am on zeloda they said I have pneumonia, but I am convinced cancer has spread ...

Kiera49

•4 years ago

16 Replies

New genetic map of cancer cells

I found this article fascinating. You can purchase a copy of the full article published in Nature; I tried to read it online, but because it's scientific...

I found this article fascinating. You can purchase a copy of the full article pu...

WordNerdSharron

•4 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Start Xeloda today. Close on this house next week. I've lost my freakin mind!

First, thank you for all the sweet messages yesterday. You may have seen my post that my primary liver lesion doubled in size on everolimus/letrozole. I will...

First, thank you for all the sweet messages yesterday. You may have seen my post...

Arisgram

•4 years ago

77 Replies

Looking for encouragement

It’s been a tough month. Toward the end of the Oregon fires and smoke I started having digestive issues, bloating, then within days I looked 5 months...

It’s been a tough month. Toward the end of the Oregon fires and smoke I started...

MacroMom

•4 years ago

25 Replies

Please leave a note for Sandra

We are all thinking of you today, Sandra and sending you collective good vibes and a whole lot of love. No need to respond. We understand where your focus is....

We are all thinking of you today, Sandra and sending you collective good vibes a...

Arisgram

•4 years ago

68 Replies

Waiting for my scan this morning. Why am I such a pessimist?

90 days on everolimus and letrozole. Some side effects. Not terrible. But, the constant ache under my ribcage and heartburn/gastric issues have me very worried...

90 days on everolimus and letrozole. Some side effects. Not terrible. But, the c...

Arisgram

•4 years ago

44 Replies

Alpelesib and Faslodex

Hi All It's been sometime since I posted. Post xeloda my mum today started on faslodex and alpelesib..Alpelesib seems to be promising as far as I heard....

Hi All It's been sometime since I posted. Post xeloda my mum today started on f...

Innira

•4 years ago

2 Replies

Toe issues

Does anyone else have issues with their toe nails? I’ve had two fall off and several are discolored like they are bruised. I will eventually lose them as...

Does anyone else have issues with their toe nails? I’ve had two fall off and se...

SunshineBoss

•4 years ago

17 Replies

Update

Well breasties, my oncologist wants to go with a more intensive treatment right away as 4 lesions are growing at a very rapid rate. No fluvestrant. So this...

Well breasties, my oncologist wants to go with a more intensive treatment right...

Annadm

•4 years ago

20 Replies

Cardiac on top of MBC

Has anyone here had "open heart" surgery? I ask because besides the MILBC I've been living with for over 16 years, I've developed a couple of cardiac issues, a...

Has anyone here had "open heart" surgery? I ask because besides the MILBC I've b...

PJBinMI

•4 years ago

17 Replies

тнιѕ ιѕ му ѕтσяу ѕσ fαя...... нє ωαяиє∂; ιтє ℓσиg..... тнαик уσυ ιf уσυ мαкє ιт тσ тнє єи∂!

hí. mч nαmє íѕ єrícα αnd í ѕtαrtєd thíѕ rσllєrcσαѕtєr rídє ín junє 2018 whєn í wαѕ fírѕt díαgnσѕєd wíth tnвc. вєtwєєn julч 2018 αnd mαч 2019, í hαd 16 rσundѕ...

hí. mч nαmє íѕ єrícα αnd í ѕtαrtєd thíѕ rσllєrcσαѕtєr rídє ín junє 2018 whєn í w...

4DSmommy

•4 years ago

29 Replies

Letrozole and palbociclib Plus Cannabis (CBD)

I'm from Brazil and would like to know if someone use this combination to MBC. Now: letrozole 2.5mg palbociclib 100mg CBD: 50mg/day Thank you CBD: anxiety...

I'm from Brazil and would like to know if someone use this combination to MBC....

DOGHANNA

•4 years ago

14 Replies

PET scan results

Had my PET scan yesterday and my oncologist was very happy with it . It showed no active disease anywhere, but my tumor FDG avidity had increased from 2.3 to...

Had my PET scan yesterday and my oncologist was very happy with it . It showed n...

Gmaoftriplets

•4 years ago

21 Replies

Verzenio/low ANC/side effects

Hi everyone Just wanted to share some info. with you. I've been on verzenio(50 mg twice and day) and Letazole (once and day) for 8 months. My CA- 27-29 numbers...

Hi everyone Just wanted to share some info. with you. I've been on verzenio(50 m...

Candu5

•4 years ago

19 Replies

Update

I haven’t been on here for a month or two...it seems like forever. My Ibrance stopped working so I went on the mental roller coaster that happens when you...

I haven’t been on here for a month or two...it seems like forever. My Ibrance s...

Red71

•4 years ago

46 Replies

New here and Zometa ?

Hi! I'm 48 and was recently diagnosed with Stage IV MBC in March (amidst all this lovely Covid craziness). I'm currently on 100mg of Ibrance and 2.5 mg of...

Hi! I'm 48 and was recently diagnosed with Stage IV MBC in March (amidst all thi...

kbrad

•4 years ago

40 Replies

I am back !!!!

Hi All, Got back from my mountain trip with the girls Tuesday. Wednesday one of them was taken unconscious to the hospital. Turns out she was bleeding out in...

Hi All, Got back from my mountain trip with the girls Tuesday. Wednesday one of ...

hdhonda

•4 years ago

22 Replies

CT scan results - clinical study

I’ve just seen my Oncologist and my recent scan after being on elacestrant for eight weeks is stable! I’m so pleased and I hope this gives everyone hope...

I’ve just seen my Oncologist and my recent scan after being on elacestrant for e...

Sunnydrinking

•4 years ago

18 Replies

Pet VS CT

Hello pretty ladies 🌺 I hope you are well. Thank God I have felt fine, only with some momentary pains in different parts of the body but not limiting. In...

Hello pretty ladies 🌺 I hope you are well. Thank God I have felt fine, only wit...

Maludagui

•4 years ago

18 Replies

Xeloda

Trying to find post on experiences with xeloda forget how to do that can anyone help me out? Wishing everyone a Great day today 🥰

Trying to find post on experiences with xeloda forget how to do that can anyone ...

Barb5

•4 years ago

42 Replies

SRS - update

Interesting experience. Feeling very positive that this treatment is helping. Halfway through them now and balance Issues and headache pressure not as...

Interesting experience. Feeling very positive that this treatment is helping. Ha...

4thTimesTheCharm

•4 years ago

3 Replies

Hope!

How many has been living for more than 5 years? Please I need hope!

lucca7

•4 years ago

26 Replies

In hospital

Called 111 as had a fever, coughing, fast heartbeat and low oxygen sats nurse practitioner said it sounded like I had covid, said you will have to get a test...

Called 111 as had a fever, coughing, fast heartbeat and low oxygen sats nurse pr...

Kiera49

•4 years ago

62 Replies

What to do? What to do?

Hello breasties, Hope you’re all well. So Ibrance with Letrozole didn’t work for me. Now He wants to put me on Faslodex with chemo by IV. Or maybe one of the...

Hello breasties, Hope you’re all well. So Ibrance with Letrozole didn’t work fo...

Annadm

•4 years ago

22 Replies

Xeloda increase in cancer markers

Would it be normal to have increase in cancer markers when you first start xeloda? Just finished second cycle and markers have increased by 10 each time....

Would it be normal to have increase in cancer markers when you first start xelod...

highhopes1

•4 years ago

11 Replies

Looking for a study

Hello! A doctor told me that an argument against aggressive early treatment is a study with patients who had metastatic breast cancer who got early chemo. Does...

Hello! A doctor told me that an argument against aggressive early treatment is a...

TheTopBanana

•4 years ago

2 Replies

Bilirubin rises

Plz suggest anyone on capcitabin.....and liver enzymes rises.....bilirubin rises....any treatment to lower liver enzymes....

Plz suggest anyone on capcitabin.....and liver enzymes rises.....bilirubin rises...

amitgarg27

•4 years ago

4 Replies

Piqray or Xeloda? What were your experience?

Hi everyone. Unfortunately my scans show progression w/ new bone lesions. Good news is my mets are still all in bones. I now have to choose my next...

Hi everyone. Unfortunately my scans show progression w/ new bone lesions. Good ...

Jonesburger

•4 years ago

17 Replies

Surgery while taking Ibrance.

I am in a great deal of pain needing a knee replacement. As I understand, it is not recommended that stage 4 patients have major surgery whil on Ibrance and...

I am in a great deal of pain needing a knee replacement. As I understand, it is...

Lilykristymichael

•4 years ago

26 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2020

Komen MBC Conference Oct. 3 - 4, 2020

Convinced I have massive spread of cancer

New genetic map of cancer cells

Start Xeloda today. Close on this house next week. I've lost my freakin mind!

Looking for encouragement

Please leave a note for Sandra

Waiting for my scan this morning. Why am I such a pessimist?

Alpelesib and Faslodex

Toe issues

Update

Cardiac on top of MBC

тнιѕ ιѕ му ѕтσяу ѕσ fαя...... нє ωαяиє∂; ιтє ℓσиg..... тнαик уσυ ιf уσυ мαкє ιт тσ тнє єи∂!

Letrozole and palbociclib Plus Cannabis (CBD)

PET scan results

Verzenio/low ANC/side effects

Update

New here and Zometa ?

I am back !!!!

CT scan results - clinical study

Pet VS CT

Xeloda

SRS - update

Hope!

In hospital

What to do? What to do?

Xeloda increase in cancer markers

Looking for a study

Bilirubin rises

Piqray or Xeloda? What were your experience?

Surgery while taking Ibrance.

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