Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for August 2019

Holiday / Travel insurance with extensive MBC

Hi guys. Looking for some holiday insurance for my Mum. Diagnosed 18 months ago with extensive bone mets and few little other areas. She had broken neck which...

Hi guys. Looking for some holiday insurance for my Mum. Diagnosed 18 months ago ...

Bobbie86

•5 years ago

6 Replies

Days like this....

....are what it's all about. After a good few weeks of feeling really rubbish and down, I'm starting to feel loads better and today I actually feel 'normal' -...

....are what it's all about. After a good few weeks of feeling really rubbish an...

Mindysooty

•5 years ago

48 Replies

Afinitor broke me

Hi, I was on 5 mg Afinitor, we tried 5 mg - 10 mg every other day but I couldn't handle it. She ordered 5 mg 7.5 mg every other day, but my blood-work came...

Hi, I was on 5 mg Afinitor, we tried 5 mg - 10 mg every other day but I couldn't...

LisaT23

•5 years ago

22 Replies

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Bucket list....something I didn't know to add!

Yesterday we had a totally new, to us, experience. A real estate auction, of property with so much unpaid tax that the court terminated the owners' rights to...

Yesterday we had a totally new, to us, experience. A real estate auction, of pr...

PJBinMI

•5 years ago

9 Replies

Tumor markers

Hi ladies, My tumor markers have gone from 32 to 68 since May. My question is what are your actual marker numbers and are they significant? I know it’s not...

Hi ladies, My tumor markers have gone from 32 to 68 since May. My question is wh...

Stage4Gir

•5 years ago

14 Replies

Anyone on Xeloda?

I think this may be my next step in this plan to interrupt my life so wondering if anyone here on it and side effects? Thanks in advance.

I think this may be my next step in this plan to interrupt my life so wondering ...

Stage4Gir

•5 years ago

10 Replies

Cholesterols

Hi. Has anyone notice there cholesterols numbers have jumped since taking ibrance and fulventral shots? My numbers went up Lot and just wondering if anyone...

Hi. Has anyone notice there cholesterols numbers have jumped since taking ibranc...

marianne88

•5 years ago

3 Replies

Pre-scan jitters

Pre-scan jitters. Once again the pre-scan jitters begin. Today is Friday my scan is Tuesday. I’m convinced that I’m doing better because I feel good. Terrified...

Pre-scan jitters. Once again the pre-scan jitters begin. Today is Friday my scan...

Gwennie123

•5 years ago

23 Replies

Checkup w/low WBC & Bladder infection

My Oncologists's Assistant saw me today due to a family emergency with my doctor. The Assistant was very nice this time, thank goodness! She was concerned...

My Oncologists's Assistant saw me today due to a family emergency with my doctor...

Survivornow

•5 years ago

7 Replies

Nab Taxol

Anyone on this ?

BangorBelle56

•5 years ago

3 Replies

Reply to nstonerocks-nurse $ esophageal issues; but I put units own

To try to add to the humor (hope it’s not offensive); but I’m asking this at risk of dating myself (well, I’m a 54 yo ina “feels like 80 yo body”)... But back...

To try to add to the humor (hope it’s not offensive); but I’m asking this at ris...

Bailey3266

•5 years ago

4 Replies

Fluid on both lungs

Hi Everyone So today I am going to have an operation to remove the fluid from my lungs. My surgeon has said that it is unusual to have fluid on both so he will...

Hi Everyone So today I am going to have an operation to remove the fluid from my...

Sarahdellar45

•5 years ago

15 Replies

A little help F.Y.I.

A couple of complimentary house cleanings may be available in your area. This is in the U.S. and Canada, for anyone undergoing cancer treatment. I ran across...

A couple of complimentary house cleanings may be available in your area. This i...

iamdonell

•5 years ago

7 Replies

My Reflux and other things that are TMI

So since I couldn’t hold down food or water since Monday afternoon, and since it hurt like hell and yesterday I knew something had to give and I needed fluids,...

So since I couldn’t hold down food or water since Monday afternoon, and since it...

nstonerocks

•5 years ago

44 Replies

New picture of my kitties

Hi everyone, I haven’t really been writing on here and I’m mad at myself for that. I do read everyone’s posts though and hope everyone is doing well at this...

Hi everyone, I haven’t really been writing on here and I’m mad at myself for tha...

Lisa11171

•5 years ago

35 Replies

Fatigue

I was wondering if anyone has figured out which med, Ibrance or Letrozole, causes the fatigue? I'm on 75mg Ibrance for the second month since lowering from...

I was wondering if anyone has figured out which med, Ibrance or Letrozole, cause...

Hidden

•5 years ago

76 Replies

Piqray

Good morning All Happy Thursday. So I met with my oncologist yesterday and according to him Piqray is a sort of a chemo drug It is a immunotherapy drug similar...

Good morning All Happy Thursday. So I met with my oncologist yesterday and accor...

Lilian848

•5 years ago

8 Replies

IBRANCE/LETROZOLE CELL COUNTS

I have been on Ibrance 125mg with Letrozole for over 4 years. My cell counts have been chronically low, but never low enough that my ONC was concerned enough...

I have been on Ibrance 125mg with Letrozole for over 4 years. My cell counts hav...

Sister3nkc

•5 years ago

46 Replies

need advice on testing for bone cancer

NEED HELP/ADVICE as to what tests can identify a bone cancerous spot. I had a CT scan this past week, and one 3 months earlier: in both a few bone mets remain...

NEED HELP/ADVICE as to what tests can identify a bone cancerous spot. I had a CT...

Arkait

•5 years ago

21 Replies

Taxol

Dear all sisters, my mom has just started her weekly paclitaxel today. Would appreciate if you can share some experience on the side effects n how to deal with...

Dear all sisters, my mom has just started her weekly paclitaxel today. Would app...

Nelsonyong

•5 years ago

13 Replies

Event at Royal Marsden

Hello Having my four weekly half day of fun at the Marsden today and picked up something I thought might be worth sharing in case anyone is local. See pictures...

Hello Having my four weekly half day of fun at the Marsden today and picked up s...

Marieleb

•5 years ago

4 Replies

Update on stomach mets

Hi Ladies, went to see my oncologist last Wednesday, she put me straight into hospital. Lost nearly 2st. Cannot eat at all, put on a saline drip and high...

Hi Ladies, went to see my oncologist last Wednesday, she put me straight into ho...

LIMEHOUSE3

•5 years ago

10 Replies

Unhappy with last appointment

I have not seen my oncologist in a year. At the last 3 appointments I’ve been seen by the nurse practitioner, I have no problem with a nurse practitioner. It...

I have not seen my oncologist in a year. At the last 3 appointments I’ve been se...

Boogitymom

•5 years ago

21 Replies

Liquid biopsy approved

Making progress. The biopsy for Pic mutation has been approved. The test will check for 100 mutations and what treatments are specific to each mutation....

Making progress. The biopsy for Pic mutation has been approved. The test will ch...

Francesca10

•5 years ago

13 Replies

Can someone answer this question

I was dx in 2017 bone mets only, last scan showed bc in my axillary lymph node. Does that mean im still bone mets only? I've changed treatment and Im going to...

I was dx in 2017 bone mets only, last scan showed bc in my axillary lymph node. ...

kduck

•5 years ago

13 Replies

Legs Aching Every Night

On Ibrance 100mg every other day. Suddenly developed legs aching so badly all night that it's difficult to sleep. This has gone on for 3 nights. Joint pain is...

On Ibrance 100mg every other day. Suddenly developed legs aching so badly all ni...

Survivornow

•5 years ago

19 Replies

Good Scan Results

Went for bone, Mammo, and chest abdomen and pelvic ct last week. Was so lit up with all the contrast and isotopes. Tough long day that I basically read and...

Went for bone, Mammo, and chest abdomen and pelvic ct last week. Was so lit up w...

nstonerocks

•5 years ago

83 Replies

New Chemo Pill Piqray

Good evening all I hope this posts find everyone doing as well as expected. I found out today that my oncologist is taking me off Ibrance and changing me to a...

Good evening all I hope this posts find everyone doing as well as expected. I fo...

Lilian848

•5 years ago

28 Replies

Ibrance and low WBC

Anyone that has had to postpone their ibrance cycle due to low WBC , how long has it taken until your counts were high enough ?

Anyone that has had to postpone their ibrance cycle due to low WBC , how long h...

Thatflowerlady

•5 years ago

38 Replies

Teddie ‘Rocketman’

Russian sage ‘Rocketman” in memory of Teddie 🐶

Teddielottie

•5 years ago

24 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for August 2019

Holiday / Travel insurance with extensive MBC

Days like this....

Afinitor broke me

Bucket list....something I didn't know to add!

Tumor markers

Anyone on Xeloda?

Cholesterols

Pre-scan jitters

Checkup w/low WBC & Bladder infection

Nab Taxol

Reply to nstonerocks-nurse $ esophageal issues; but I put units own

Fluid on both lungs

A little help F.Y.I.

My Reflux and other things that are TMI

New picture of my kitties

Fatigue

Piqray

IBRANCE/LETROZOLE CELL COUNTS

need advice on testing for bone cancer

Taxol

Event at Royal Marsden

Update on stomach mets

Unhappy with last appointment

Liquid biopsy approved

Can someone answer this question

Legs Aching Every Night

Good Scan Results

New Chemo Pill Piqray

Ibrance and low WBC

Teddie ‘Rocketman’

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