Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for September 2018

Brain mets

Has anyone been on the drug Temodar for brain mets ? If so, what is your experience with it ? On my recent MRI of brain I have increased number and size of...

Has anyone been on the drug Temodar for brain mets ? If so, what is your experi...

Burgerde

•6 years ago

1 Reply

Scan results

Had my PET scan on Tuesday and the results came back NED, still have that pesky tumor..Will see the doctor in October and talk about the next step. The tumor...

Had my PET scan on Tuesday and the results came back NED, still have that pesky ...

Gmaoftriplets

•6 years ago

16 Replies

Not sure of anything

Hi everyone. Just got back from my results appointment with my oncologist. Turns out the ibrance and letrozole have stopped working. I only used them for...

Hi everyone. Just got back from my results appointment with my oncologist. Turn...

Staceyness

•6 years ago

40 Replies

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Sleeping problems

Hi Ladies...I am on Ibrance, 125mg (starting third month) and letrozole. Anyone else have trouble sleeping? By 8pm, I can hardly stay awake. Stay up till at...

Hi Ladies...I am on Ibrance, 125mg (starting third month) and letrozole. Anyone...

Bishtown

•6 years ago

36 Replies

My TV interview

I was interviewed on Los Angeles ABC local TV for their health segment a week ago. This was in advance of my local affiliate’s Susan G Komen Race for the Cure....

I was interviewed on Los Angeles ABC local TV for their health segment a week ag...

1998withStage4

•6 years ago

13 Replies

Turmeric

Hi ladies I’ve been sharing about turmeric with Er+ mbc as there appears to be some advice out there to avoid it if taking Ibrance and letrazole Well I’ve...

Hi ladies I’ve been sharing about turmeric with Er+ mbc as there appears to be s...

Barbteeth

•6 years ago

10 Replies

Me again

I had to reset this and now seem to be barbteeth instead of crazydentist..not very techy I’m afraid Barb xx

I had to reset this and now seem to be barbteeth instead of crazydentist..not ve...

Barbteeth

•6 years ago

6 Replies

Low haemaglobin again

Hi ladies Had bloods taken yesterday and my haemaglobin has dropped again and I feel tired..I know it’s the Ibrance but I’m trying to eat more greens and some...

Hi ladies Had bloods taken yesterday and my haemaglobin has dropped again and I ...

Barbteeth

•6 years ago

6 Replies

MBC, joint pain on meds

I've been on letrozole and ibrance for about a week and a half. I felt find on ibrance until the last few days. My knees and hips are really achy. I'm...

I've been on letrozole and ibrance for about a week and a half. I felt find on ...

shannamilton

•6 years ago

29 Replies

Immune system

Hi , what do you drink or eat to boost your immune system please ?

Euebdbdbddh

•6 years ago

20 Replies

Herbal Supplements helpful ?

I am currently switching from Ibrance/letrozole to Afinitor/Exemastane. But i was introduced to some herbal supplements. I want to entertain trying it all...

I am currently switching from Ibrance/letrozole to Afinitor/Exemastane. But i wa...

JP1857

•6 years ago

14 Replies

New to Health Unlocked

In April 2000 I was diagnosed with breast cancer. I had a mastectomy, chemo, and five years each of Tamoxifen and Femara. Everything was fine until February...

In April 2000 I was diagnosed with breast cancer. I had a mastectomy, chemo, and...

Formersnowbird

•6 years ago

8 Replies

Shortness of breath

I have MBC to the left lung. Was diagnosed in June. Am on letrezole and Ibrance and feel much better but am still quite SOB on exertion, Does anyone have the...

I have MBC to the left lung. Was diagnosed in June. Am on letrezole and Ibrance ...

Alnmouth

•6 years ago

24 Replies

Lobular Mets to GI tract?

Hi I’m getting so anxious and was wondering if anyone else has had really bad Gerd and vomiting which turned out to be Mets to the GI tract. My oncologist is...

Hi I’m getting so anxious and was wondering if anyone else has had really bad Ge...

Debdavenpo

•6 years ago

4 Replies

No communications

For the past three days I have not been getting the daily report. Why?

Formersnowbird

•6 years ago

2 Replies

I'm new here Diagnosed 11 Months Ago

I am on my 2nd opinion. First was 11 months of Ibrance and Letrozole. That Duo did not seem to last as long as my Oncologist Thought, however I liked it...

I am on my 2nd opinion. First was 11 months of Ibrance and Letrozole. That Duo d...

JP1857

•6 years ago

4 Replies

CA 27 29 fluctuating

Hi all. Fairly new here. Bone mets found in April. CA 27 29 began to increase last August so CT scans were done every 3 months until spine lesion showed up....

Hi all. Fairly new here. Bone mets found in April. CA 27 29 began to increase l...

dodasso

•6 years ago

14 Replies

Ibrance break once NED for surgery ?

Has anyone had a short break from ibrance once NED to have any surgery ? I’m thinking of having a Breast reduction on my non affected side to rebalance smaller...

Has anyone had a short break from ibrance once NED to have any surgery ? I’m thi...

Teddielottie

•6 years ago

18 Replies

Regarding immunotherapy

Any body have tried immunotherapy treatment for metastatic breast cancer...plz share results if anyone have.....

Any body have tried immunotherapy treatment for metastatic breast cancer...plz s...

amitgarg27

•6 years ago

3 Replies

Make sure your pharmacy is shipping your Ibrance safely!

My Ibrance arrived early yesterday evening by UPS ground in a box with no cooler. The temperature here was in the upper nineties and the heat index was over...

My Ibrance arrived early yesterday evening by UPS ground in a box with no cooler...

hdhonda

•6 years ago

11 Replies

Snapping at everything!

Well I guess I’m totally losing it. I told my husband I hate him and that’s that. I guess because he dropped full coverage on my Jeep without telling me. I...

Well I guess I’m totally losing it. I told my husband I hate him and that’s that...

Clair19

•6 years ago

49 Replies

Hello Ladies,I’m looking for people who can share their experience with Ixempra . I’m about to start receiving it next week and would re

Experience with Ixempra

meshare

•6 years ago

2 Replies

Hoping the third time is the charm

So Ibrance did not work. My oncologist switched me to gemcitabine and carboplatin which also has not worked. Cancer markers have not increased but my lymph...

So Ibrance did not work. My oncologist switched me to gemcitabine and carboplat...

Hbryan

•6 years ago

9 Replies

Just received Scam from SuSu4455

Just received a weird request for money.Hard to figure exactly ,but included a private email address. How do I report it? SuSu4455 is post name ?????????

Just received a weird request for money.Hard to figure exactly ,but included a p...

mudakurag

•6 years ago

5 Replies

OCTOBER PINK

So October is coming soon and PINK will be everywhere. I personally have a thing against the PINK. I dont see what all the hoopla is about. My cancer was huge...

So October is coming soon and PINK will be everywhere. I personally have a thing...

Hidden

•6 years ago

37 Replies

Good scan results today ! 🙂

After 10 months on Ibrance / Letrozole I had my first scan results today and am very happy and wanted to share it with you lovely ladies ! I haven’t posted...

After 10 months on Ibrance / Letrozole I had my first scan results today and am...

Teddielottie

•6 years ago

23 Replies

CT SCAN vs oncologist

Hi , have you ever had that your oncologist would not recommend you to have full body scan after 1 year of Ibrace /letrozoe ? I trust my oncologist, my...

Hi , have you ever had that your oncologist would not recommend you to have full...

Euebdbdbddh

•6 years ago

19 Replies

Migraines

Does anybody get a lot of migraines with Ibrance and Letrozole ? I have been having a lot lately and my doctor says that is normal but I don’t see them as a...

Does anybody get a lot of migraines with Ibrance and Letrozole ? I have been ha...

Hidden

•6 years ago

13 Replies

Ibrance/Letrozole/blood thinners

Good results from my first scan since starting Ibrance two months ago. Nodules shrunk significantly and pleural effusion gone. I'm so grateful for that. Now my...

Good results from my first scan since starting Ibrance two months ago. Nodules s...

Hidden

•6 years ago

12 Replies

Medication for bone mets

Thankyou to all you kind people who offered advice on mouth ulcers....I am working on it. At the clinic yesterday I was told my cancer markers have gone...

Thankyou to all you kind people who offered advice on mouth ulcers....I am worki...

Rotagirl

•6 years ago

14 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2018

Brain mets

Scan results

Not sure of anything

Sleeping problems

My TV interview

Turmeric

Me again

Low haemaglobin again

MBC, joint pain on meds

Immune system

Herbal Supplements helpful ?

New to Health Unlocked

Shortness of breath

Lobular Mets to GI tract?

No communications

I'm new here Diagnosed 11 Months Ago

CA 27 29 fluctuating

Ibrance break once NED for surgery ?

Regarding immunotherapy

Make sure your pharmacy is shipping your Ibrance safely!

Snapping at everything!

Hello Ladies,I’m looking for people who can share their experience with Ixempra . I’m about to start receiving it next week and would re

Hoping the third time is the charm

Just received Scam from SuSu4455

OCTOBER PINK

Good scan results today ! 🙂

CT SCAN vs oncologist

Migraines

Ibrance/Letrozole/blood thinners

Medication for bone mets

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