Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,635 members • 8,175 posts

All posts for July 2018

New MBC med

Hi Everyone, New med approved by FDA. The only thing that is curious is that it has average of 27.5 months for those NOT previously treated with endocrine...

Hi Everyone, New med approved by FDA. The only thing that is curious is that it...

Snowcone16

•6 years ago

9 Replies

Good appointment!

I had my CMP done and ALT was only thing that was higher at 49. My Ca 2729 was down only 7 but I’m only taking Faslodex. I got my Faslodex injections and...

I had my CMP done and ALT was only thing that was higher at 49. My Ca 2729 was d...

Clair19

•6 years ago

10 Replies

Week off

Hi. Does anyone have awful fatigue the week off of ibrance and more joint pain. Thanks. Marianne

Hi. Does anyone have awful fatigue the week off of ibrance and more joint pain. ...

marianne88

•6 years ago

38 Replies

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Hair and Ibrance

Has anyone colored their while on Ibrance

BeckyinMaine

•6 years ago

29 Replies

Abraxane

Is anyboday currently taking or has taken Abraxane? If so what kind of side effects did you have and what is the recovery time from one dose to the next?

Is anyboday currently taking or has taken Abraxane? If so what kind of side effe...

My3girls

•6 years ago

5 Replies

Scans Today, Please send good vibes!

I was diagnosed in 2014 and pretty stable on letrozole and Ibrance. CT and bone scans today. Been at hospital since 730am. Hope to get out by 1p. Prayers and...

I was diagnosed in 2014 and pretty stable on letrozole and Ibrance. CT and bone ...

nstonerocks

•6 years ago

22 Replies

MBC to Petitoneum

Hi, I have been reading many of the posts and can glan information from each of them. My story is so similar Dx in 2000, stage IIIa, Lobular BC bilateral...

Hi, I have been reading many of the posts and can glan information from each of ...

Kimlane

•6 years ago

1 Reply

Mammograms

Good morning everyone. I was wondering how many of you have continued to get mammograms since your MBC diagnosis’s. I was diagnosed in March 2017 and have not...

Good morning everyone. I was wondering how many of you have continued to get mam...

gerisplace

•6 years ago

6 Replies

Alcohol

Ok ladies, how many if you gave up drinking any form of alcohol or cut down drastically? If still having an occasional glass of wine or drink what do you...

Ok ladies, how many if you gave up drinking any form of alcohol or cut down dras...

blms

•6 years ago

59 Replies

Hospitized for UTI infection - Palbociclib

Has anyone had issues with UTI infections that resulted in hospitalization while taking Palbociclib in the first 6 months? I was in the hospital room for 5...

Has anyone had issues with UTI infections that resulted in hospitalization while...

Hihif

•6 years ago

13 Replies

Ibrance scans

Hello everyone! Had my 90 day Ibrance follow up. Scheduled CT scan and bone scan for October. It’s almost 6 months then. When did you do scans? My last...

Hello everyone! Had my 90 day Ibrance follow up. Scheduled CT scan and bone sc...

Snowcone16

•6 years ago

35 Replies

To My HER2 positive friends

Hi! I haven’t posted in awhile...I showed some progression in January had right mastectomy and started back on Perjeta...my question is how long has anyone...

Hi! I haven’t posted in awhile...I showed some progression in January had right ...

Rhwright12

•6 years ago

2 Replies

Misleading information

Ibrance is a very recent cancer medication. Has not been around for 6 years. Do not mistake cycles or round per years. In UK was approved in 2017 and US if I'm...

Ibrance is a very recent cancer medication. Has not been around for 6 years. Do ...

Vimacolola

•6 years ago

22 Replies

Routine bloodwork

How often do they run blood work to check CEA and CA-15-3? I don’t have medical background (accountant) but like to compare my numbers from month to month.

How often do they run blood work to check CEA and CA-15-3? I don’t have medical...

Tam-56

•6 years ago

40 Replies

Ibrance question

Hello, So I made a mistake a took my Ibrance early, only after a 6 day break. Is anyone familiar with this and what I should do? I was going to continue to...

Hello, So I made a mistake a took my Ibrance early, only after a 6 day break. Is...

lynzer

•6 years ago

4 Replies

Lymph nodes in Ibrance

Has anyone had the size of their lymph nodes increase on Ibrance? I am just finishing up my second round and my lymph nodes are really swollen. Thanks

Has anyone had the size of their lymph nodes increase on Ibrance? I am just fin...

Hbryan

•6 years ago

2 Replies

Worried!

In August 2015 I was hospitalized what is a tumor and a hairline fracture to my right femur. Learned that I had 4th stage Breast Cancer that had metastasized...

In August 2015 I was hospitalized what is a tumor and a hairline fracture to my ...

Villazon

•6 years ago

2 Replies

Has anyone with MBC BEEN DIAGNOSED WITH MULTIPLE MYELOMA?

I have been diagnosed with MBC for 19 years. On May 29th after noting my declining hemoglobin I was told after a bone marrow biopsy that I had Multiple...

I have been diagnosed with MBC for 19 years. On May 29th after noting my declin...

Kathleen1999

•6 years ago

6 Replies

Anyone on Ibrance 75mg for long term ?

I have been on Ibrance with no progression for 28 rounds. First round they had to drop me to 100 mg due to extremely low WBC and I have been on that ever...

I have been on Ibrance with no progression for 28 rounds. First round they had...

caw517

•6 years ago

7 Replies

Hope

Hi, my name is Linda I’m 58 yrs old and have MBC. Dx Feb 2018. With bone Mets.. I have been visiting this site for awhile, but couln’t Find the strength to...

Hi, my name is Linda I’m 58 yrs old and have MBC. Dx Feb 2018. With bone Mets.. ...

jtgmom

•6 years ago

37 Replies

Evolution of mets.. pain

My mets were dx last summer by my physiatrist bc I had plantar fasciitis I also had pain in my r hip at night that had been dismissed by the oncologist and...

My mets were dx last summer by my physiatrist bc I had plantar fasciitis I also...

equavel

•6 years ago

8 Replies

Epsom Salt baths

I was just wondering if anyone knows if it is safe to do epsom salt baths while on Ibrance?

I was just wondering if anyone knows if it is safe to do epsom salt baths while ...

Hbryan

•6 years ago

3 Replies

Thanks Delta!

Delta airlines gave us vouchers for missing our flight! Now that I’m feeling better I’m hoping we can go by October. I know some of you suggested I call them....

Delta airlines gave us vouchers for missing our flight! Now that I’m feeling bet...

Clair19

•6 years ago

9 Replies

Need prayers Faslodex only!

Hey ladies, just wanted you to know that I just came from the oncologist. Blood work excellent, weight good. However I can’t take Verzenino due to my body...

Hey ladies, just wanted you to know that I just came from the oncologist. Blood ...

Clair19

•6 years ago

18 Replies

Ibrance with lung mets and shortness of breath?

Hi. I'm looking for someone to speak with a newly diagnosed woman living with mets to the lung who is taking Ibrance. She is having shortness or breath or...

Hi. I'm looking for someone to speak with a newly diagnosed woman living with m...

TNBC16

•6 years ago

9 Replies

Smoothies

Hi i have metastatic breast cancer. I have just started treatment. I am on letrozole & Ibrance together with danosumab injections. Can you give me some ideas...

Hi i have metastatic breast cancer. I have just started treatment. I am on letro...

Jodiec40

•6 years ago

12 Replies

MBCproject.org

Hi everyone, I just sent in my saliva sample and the org also requested tissue sample from tumor. This org is doing research on MBC. They are looking at what...

Hi everyone, I just sent in my saliva sample and the org also requested tissue s...

Snowcone16

•6 years ago

7 Replies

Bad petscan results

Petscan shows cancer has spread significantly, but is still just in bones. I have been on generic xeloda for 3 months apparently its not working for me. I was...

Petscan shows cancer has spread significantly, but is still just in bones. I hav...

My3girls

•6 years ago

36 Replies

PET Results

Thanking God for my first follow-up PET results and also thanking everyone here for the encouragement and knowledge you've shared. I just started Cycle 10 of...

Thanking God for my first follow-up PET results and also thanking everyone here ...

Garnet131

•6 years ago

29 Replies

Soy Products

I am wondering if everyone avoids soy products when they have breast cancer. Having a cancer that is estrogen fed (not sure if that is the right terminology)...

I am wondering if everyone avoids soy products when they have breast cancer. Ha...

Hidden

•6 years ago

12 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for July 2018

New MBC med

Good appointment!

Week off

Hair and Ibrance

Abraxane

Scans Today, Please send good vibes!

MBC to Petitoneum

Mammograms

Alcohol

Hospitized for UTI infection - Palbociclib

Ibrance scans

To My HER2 positive friends

Misleading information

Routine bloodwork

Ibrance question

Lymph nodes in Ibrance

Worried!

Has anyone with MBC BEEN DIAGNOSED WITH MULTIPLE MYELOMA?

Anyone on Ibrance 75mg for long term ?

Hope

Evolution of mets.. pain

Epsom Salt baths

Thanks Delta!

Need prayers Faslodex only!

Ibrance with lung mets and shortness of breath?

Smoothies

MBCproject.org

Bad petscan results

PET Results

Soy Products

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