Its me again. I have a pet scan done this Tuesday at 4, treatment done next day. My back has bothered me for a while since it is messed up some, but is bothering me more recently. I have goals for myself, want to work on them but find myself getting easily distracted. Have been on some kind of treatment since 2017 with brief breaks, feeling a little discouraged. For those who pray please pray for me. Take care all, hope you have a nice Martin Lurther King holiday.
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SusieIM
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Hi Susie, I know the pain and anxiety you feel and though it is wonderful to live with Mets it is not easy. I like that we are all in this together and can understand what each of us is going through better than anyone. I hope your PET scan doesn’t have any surprises.
Dear Susie: Praying that you get relief from the pain and the scans this week bring answers & remedies that improve your quality of life. When I live with long-term pain, I get discouraged. It is difficult. Sending you hugs & prayers of comfort.
Try not to be discouraged. I’ve been on treatment since 2015 and dread going to one more appointment. At the same time it seems like 7 years have passed in the blink of an eye. I’m grateful for every day. Lately I feel like this group are the only people who can begin to understand what it’s like. I look so normal from the outside and am a churning mess on the inside wondering how long the treatment will last, will it get even more painful and will it bankrupt us. Don’t be too hard on yourself, take time to do whatever you need. A good cry or whatever helps you feel better! I’m having a good cry right now and I know tomorrow I’ll be happy to do my chores. Good luck to you!
That is so true. Everyone says “ you look great “ but little do they know. It is a tough journey and I so appreciate this group because everyone knows what it is like💕. Theresa
Crying was my thing for the past month or more. So many of my family and friends have passed or are in a bad place, health wise, none from covid. Last Sunday, I suddenly turned off the boring Zoom church service, caught up with my unvaccinated part-time boyfriend who had wanted me to join him to travel from NJ to Connecticut to visit some family including two granddaughters who he had not seen for two years. There were mitigating circumstances. Five days had passed since he had been out of his house. and he is in good health I had done the Christmas shopping for his grandchildren and had baked Christmas cookies for them with gingerbread men that can be hung on the tree. The four year old was going to open up a package holding a circus tent from Ikea ,complete with a flag on top. There was a complete set of books, "The Little Home on the Prairie" for the nine year old to read to the four year old, etc. Tom picked up sandwiches which we were not allowed to eat in the house because we were to keep our masks on, which we did. There were so happy to be with their grandfather and he was so happy to see that part of his family. I was just happy! My crying jag is over.
Hi Suzie. I only had my mbc diagnosed 18 months ago but it feels like forever - measuring time through cycles of treatment, scans, waiting for scan results, disappointment or elation with those results... and the whole thing starts again. I'm lucky in that I feel and look well but I know that this, and my prognosis, could change at any time. It's mentally exhausting and no-one understands unless they are going through the same. But...I try to see positivity in everything and to appreciate the smallest things - a beautiful sunset, a nice glass of wine, time spent with family and friends. I wish you all the best with your results.
Dear SusieIM---------What I read is that you need some hugs and love. I am doing my best to send some waves of love and encouragement. We are all stronger and more appreciative of life. Our encompassing disease has given us wonderful insight. Knowledge is power.XXX OOO
Hi Susie I will for sure send prayers your way. Keep your chin up. Pain is the worst its so draining!!! But if we let it control us it wins. Tell your doctors how you are feeling they may be able to help you through this! A Big virtual HUG Debbie
Hi suzie. I'm still on ibrance and anastrozole. It's been nearly 4 years. I know I'm lucky to still be one my 1st line of treatment. But my pain (extensive mets to bones, ribs, hips and skull ) get very painful too. I'm not under any illusion that one day this is not all going to go pear shaped. I get scared too. So I'm with you sister.
Good luck with your scans. Thinking of you.... from down under in Australia.
Prayers and hugs for you. Cancer sucks and can get us all down. I prayed for you and hope tomorrow is full of sunshine and good scan results. 🙏 Blessings, Hannah
Hi, I feel like that too sometime, but you have reached 5 years and everyday brings new hope. So hang in and continue the fight you seem to have the visualization so step into it. You are bigger than your illness and your life is worth it.
Hi SusieWishing you good results and a reprieve fro the pain. It can be so exhausting fighting pain, and a constant reminder of what we have. We are with you
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