Hello Everyone: Hi, Its me again. I... - SHARE Metastatic ...

SHARE Metastatic Breast Cancer

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Hello Everyone

SusieIM profile image
24 Replies

Hi,

Its me again. I have a pet scan done this Tuesday at 4, treatment done next day. My back has bothered me for a while since it is messed up some, but is bothering me more recently. I have goals for myself, want to work on them but find myself getting easily distracted. Have been on some kind of treatment since 2017 with brief breaks, feeling a little discouraged. For those who pray please pray for me. Take care all, hope you have a nice Martin Lurther King holiday.

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SusieIM profile image
SusieIM
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24 Replies
Sejj profile image
Sejj

Hi Susie, I know the pain and anxiety you feel and though it is wonderful to live with Mets it is not easy. I like that we are all in this together and can understand what each of us is going through better than anyone. I hope your PET scan doesn’t have any surprises.

Dear Susie: Praying that you get relief from the pain and the scans this week bring answers & remedies that improve your quality of life. When I live with long-term pain, I get discouraged. It is difficult. Sending you hugs & prayers of comfort.

❤️🙏❤️

Nocillo profile image
Nocillo

Try not to be discouraged. I’ve been on treatment since 2015 and dread going to one more appointment. At the same time it seems like 7 years have passed in the blink of an eye. I’m grateful for every day. Lately I feel like this group are the only people who can begin to understand what it’s like. I look so normal from the outside and am a churning mess on the inside wondering how long the treatment will last, will it get even more painful and will it bankrupt us. Don’t be too hard on yourself, take time to do whatever you need. A good cry or whatever helps you feel better! I’m having a good cry right now and I know tomorrow I’ll be happy to do my chores. Good luck to you!

mariootsi profile image
mariootsi in reply to Nocillo

Perfectly said!

Totheriver profile image
Totheriver in reply to Nocillo

That is so true. Everyone says “ you look great “ but little do they know. It is a tough journey and I so appreciate this group because everyone knows what it is like💕. Theresa

jersey-jazz profile image
jersey-jazz in reply to Nocillo

Crying was my thing for the past month or more. So many of my family and friends have passed or are in a bad place, health wise, none from covid. Last Sunday, I suddenly turned off the boring Zoom church service, caught up with my unvaccinated part-time boyfriend who had wanted me to join him to travel from NJ to Connecticut to visit some family including two granddaughters who he had not seen for two years. There were mitigating circumstances. Five days had passed since he had been out of his house. and he is in good health I had done the Christmas shopping for his grandchildren and had baked Christmas cookies for them with gingerbread men that can be hung on the tree. The four year old was going to open up a package holding a circus tent from Ikea ,complete with a flag on top. There was a complete set of books, "The Little Home on the Prairie" for the nine year old to read to the four year old, etc. Tom picked up sandwiches which we were not allowed to eat in the house because we were to keep our masks on, which we did. There were so happy to be with their grandfather and he was so happy to see that part of his family. I was just happy! My crying jag is over.

MyMiracle13 profile image
MyMiracle13

Will surely pray for you Susie🙏

Rubyjude profile image
Rubyjude

Hi Suzie. I only had my mbc diagnosed 18 months ago but it feels like forever - measuring time through cycles of treatment, scans, waiting for scan results, disappointment or elation with those results... and the whole thing starts again. I'm lucky in that I feel and look well but I know that this, and my prognosis, could change at any time. It's mentally exhausting and no-one understands unless they are going through the same. But...I try to see positivity in everything and to appreciate the smallest things - a beautiful sunset, a nice glass of wine, time spent with family and friends. I wish you all the best with your results.

mariootsi profile image
mariootsi in reply to Rubyjude

Amen

jersey-jazz profile image
jersey-jazz

Dear SusieIM---------What I read is that you need some hugs and love. I am doing my best to send some waves of love and encouragement. We are all stronger and more appreciative of life. Our encompassing disease has given us wonderful insight. Knowledge is power.XXX OOO

mariootsi profile image
mariootsi

I'm sending many prayers and hugs to you!!!

Justme153 profile image
Justme153

Hi Susie I will for sure send prayers your way. Keep your chin up. Pain is the worst its so draining!!! But if we let it control us it wins. Tell your doctors how you are feeling they may be able to help you through this! A Big virtual HUG Debbie

SusieIM profile image
SusieIM in reply to Justme153

Thank you Justme153. I recently told my doctors. I asked if I can have a mild anti-depression med., they had me fill out a form, will get back to me.

Timtam56 profile image
Timtam56

Hi suzie. I'm still on ibrance and anastrozole. It's been nearly 4 years. I know I'm lucky to still be one my 1st line of treatment. But my pain (extensive mets to bones, ribs, hips and skull ) get very painful too. I'm not under any illusion that one day this is not all going to go pear shaped. I get scared too. So I'm with you sister.

Good luck with your scans. Thinking of you.... from down under in Australia.

love2golfwell profile image
love2golfwell

Dear Susie, wishing you stable scans and relief from your pain. Stay strong, keep fighting and know that we support you. Sending hugs and prayers.

hdhonda profile image
hdhonda

Susie,

Prayers and hugs for you. Cancer sucks and can get us all down. I prayed for you and hope tomorrow is full of sunshine and good scan results. 🙏 Blessings, Hannah

ChrisVict profile image
ChrisVict

Hi, I feel like that too sometime, but you have reached 5 years and everyday brings new hope. So hang in and continue the fight you seem to have the visualization so step into it. You are bigger than your illness and your life is worth it.

Dflur profile image
Dflur

Susie sending you love and prayers as you keep moving forward.

NPmary profile image
NPmary

I was diagnosed with MBC in 2017, one month before you.Praying God's best for you. ♥️🌺❤

SusieIM profile image
SusieIM in reply to NPmary

Thank you NPmary! I am close to your age, July I turn 68. I'll pray for you also.

NPmary profile image
NPmary in reply to SusieIM

Thank you.

Hi SusieWishing you good results and a reprieve fro the pain. It can be so exhausting fighting pain, and a constant reminder of what we have. We are with you

Clare x

Missmaddie615 profile image
Missmaddie615

Prayers have been said for you, my dear. May you feel His loving arms around you today during your scan and always.🙏❤️

jersey-jazz profile image
jersey-jazz

Dear SusieIM----It's Wednesday, now. Good luck today! I hope it goes well and that you can relax a little after the ordeal.

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