WBRT?

[Winner123]

Hi all. My wife has TNBC, recently they found brain mets, about 5, one 5cm. They first of all said wait to see if Capecitabine worked then came back to say she should have WBRT. I've read Anne's book about the different treatments but I'm curious to see if anyone here has personal experience? Was it bad? Did you loose any memory?

Susie has no real symptoms yet (bit of a blind spot in an eye, she can live with that) so just trying to weigh up the good and bad. It's all very scary.

Thank you in advance for any replies.

Leo and Susie Payne xxx

[Contrarielle]

Hi, sorry to hear about you and your wife's though time. A friend of mine had WBRT a few years ago, she does get tired ( but is still super active). I hope your wife gets a great result and minimal side fx

[sparks4me in reply to Contrarielle]

Hi. I'm so glad your wife has you to go through this with. I'm curious why she had WBRT and not Radiosurgery? What was the reason?

[Winner123 in reply to sparks4me]

She hadn't had anything yet, we are still asking. I assume radio surgery is better? Have you had either?

[sparks4me in reply to Winner123]

I had radio surgery a year ago. From what I read and from what the radiology oncologist told me WBRT is what used to be done until the new technique of Radio Surgery. WBRT gives more issues with memory etc. My oncologist gave us great hope with RS. She says it is very effective. And the side effects not nearly as bad WBRT. Now, with that said, I don't know anything about your wife's diagnosis and they may have a good reason for treating with WBRT. It's a question I would ask BEFORE they do it. Although, if your oncologist is on top of things, she must have a reason. I hope this helps. If you don't mind sharing, what is your wife's name? It would be an honor to pray for her and your oncologist's decision. I don't need her name, it just makes praying more fun!!!

[MyMiracle13]

Hello. I had 10 sessions of WBRT August 2020. Reason was that I had multiple brain lesions mostly tiny but 3 relatively big ones. MRI said around 21 lesions. They say that if there are 10 or less lesions then SRS is recommended although someone here with 15 lesions had SBRT instead of WBRT. I had hippocampus sparing and was prescribed Memantine for 6 months. The side effects I experienced were extreme fatigue and loss of appetite. It took around 3 months for me to fully recover. It has been over a year and I haven’t lost my memory.