Bone Cancer

[Iwouldlike2knowmore]

What treatments are out there for bone cancer. Helena

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Hi Helena,

I get zometa infusions every 12 weeks to help strengthen my bones. I have two small spots on my spine. I also take Adcal D3 (calcium carbonate and vitamin D3) each day, which was prescribed by my oncologist. I also try to eat plenty of cruciferous vegetables (Brussels sprouts, broccoli, kale, cauliflower etc) every day to help build up my bones. I rotate what I eat, otherwise I will end up getting bored! Exercise can also help with bone strength. I would talk to your oncologist about that if you are considering taking on something new.

Sophie

[Iwouldlike2knowmore]

I do have MBC which was in my liver, but I'am afraid it might be in my bones because my oncologist wants me to have a full body scan. Helena

[Iwouldlike2knowmore]

Lately my right lower leg aches and i can't sleep

[Nmartinez15 in reply to Iwouldlike2knowmore]

Not always been cancer in your bones. Letrozole cause bone pain. Its horrible! I do have cancer in my spine and it reduced after conventional meds, radiation and natural supplements. But the doctor said letrozole and zometa cause bone pain. I hate zometa bc I was sick for a week and then I was constipated for a month. They are going to change to another one the next month. You should start take vit K2 which take the vitamins or nutrients in your bloodstream and take to the right place in your body where you needed. Basically K2 does what the zometa injection does but without side effects.

[Rhwright12 in reply to Nmartinez15]

I need to investigate this K2 thing...I take Zometa but after 3 1/2 years my Creatinine and EGfr are on the bubble...one is high and the other is low...maybe a couple months break on a vitamin versus the Zometa would give my poor kidneys a break as I’m on 5 meds...3 IV, 1 shot and 1 pill...😀

[Nmartinez15 in reply to Rhwright12]

I know! My last bloodwork was all good but I start my 3 med (zometa) last month so I dont know what will do to my kidneys. It did get me very sick for a week and my doctor said that he will give me something else that wont give me constipation and better for my kidney. He admit zometa is really bad for my kidneys so I am glad he suggest something else.

[Iwouldlike2knowmore]

Okay, Well Thank You for you're answers. Bye

[PJBinMI]

Low potassium can cause muscle cramps if that is what the pain in your leg feels like. Do talk with your onc about what supplements you should be taking. One of the hardest things about living with this lousy mbc is that it is so easy to think every ache, pain and bodily change is cancer progressing! But alot of us really do well for long periods of time. If you have had a good initial response to treatment, meaning that the liver mets slow, stop or reverse their growth, that bodes well for you! The liver is a remarkable organ, the only one in the body that can actually replace itself! I've been living with mbc for over 15 years now, and have known more than one woman who has been in the hospital from liver failure from liver mets, and expected to die, when a new treatment (new to them) has worked well, their liver has started functioning again and they've gone on to live more years. It's okay to ask your onc a whole bunch of questions. When I was first diagnosed, I would go into appts with a long list of questions for my onc! lol She was great about taking alot of time to explain things to me. That was just the kind of doctor she was, and it did mean that some times she got behind and I'd have to wait awhile to see her but I knew it was because she was taking all the time she needed with another patient and that she would do the same with me when I neede d it, so I just took books to read in the waiting room...... onc nurses are often good sources of info, too. That first onc of mine retired about a year ago and while I like the onc I am seeing now, another woman, she orders alot more scans than the other one did and I've just needed to adjust my thinking about that. Oncs do differ in how they schedule things.

About the comments here about Zometa -- I was on Zometa for several years and noticed that my first several infusions made me alot more tired than later ones did. Initially I needed a nap the day of those treatments and often the next day, too, but within a few m= months, that stopped. Drink plenty of water the day before, day of, and day after. Taking a benedryl before can help too. If it really knocks you for a loop, ask about a longer infusion time and extra fluids. When I switched to Xgeva, I really missed having time with other cancer patients in the infusion room--how crazy is that!