A change of direction... PLCIS

[Moomin8]

Hi Peeps 👋🏻

I hope this finds you as well as you can be today 😊

Well, I have had a bit of a journey recently.

As I posted a couple of months back - I can't believe it was that long ago - I had to stop all my Rheumatoid Arthritis meds to have a wire-guided lumpectomy for intermediate DCIS (ductal carcinoma in situ). I am 3 weeks on from that now and recovering really well. I'm back to driving, long walks and getting my 60 basketball shots in each day. My wound has dissolvable stitches and glue. That's all still in place. I am returning to work (primary school) Monday.

I had my call from my surgeon regarding my surgery outcome. It is now a different diagnosis. It is PLCIS (Pleomorphic lobular carcinoma in suti) which is treated in a similar way to a higher grade DCIS. They thought they were existing 10mm, but it turned out to be 35mm - that was a shock too!

cancer.gov/publications/dic...

cancerresearchuk.org/about-...

I wish it wasn't rare, and I wish it was all over. I have to see oncology next to arrange radiation. I have a rheumatology appointment booked for next week - booked in preparation to restart my RA meds; I'm a positive thinker 😉Unfortunately, I'm thinking that I might have to hold off until after my radiation. Has anyone experienced radiation while on RA meds? My normal concoction is: Tocilizumab, Methotrexate and Sulfasalazine.

My bloods have recovered well after coming off my RA meds - wbc normal, Neutrophils normal and ALT the best it's ever been for a long time at 24! I'm thinking that to recover well from radiation I might need to keep my bloods at a decent level. My joints are beginning to rebel a little, but not ridiculously yet.

Also, it's my left breast. I hear radiation on that side isn't the best. Do you have experience of that?

Any thoughts?

[ba5083]

Sorry to here about your pathology report. The most predicable thing about cancer is that it is unpredictable. As far as radiation use your cream often. I used mine as often as possible and had very little burns (radiation on both sides but primarily on the left). I did have a setback as the radiation reopened my scare that cut my 30 sessions to 28.

Good luck and God Bless!

[Moomin8 in reply to ba5083]

Hi, thanks for your reply. What cream did you use please?

[ba5083 in reply to Moomin8]

Let me see if I can find the name and brand in my old paperwork. It was on some literature that I was given by my radiologist. A co-workers mom went through radiation and finished about 4 weeks before I started. She gave me about 4 bottles of it so I did not have to buy any.

[Moomin8]

😁