Ferritin: what should my ferritin... - Restless Legs Syn...

Restless Legs Syndrome

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Ferritin

Pockets33 profile image
5 Replies

what should my ferritin levels be,thanks.

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Pockets33
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5 Replies
Madlegs1 profile image
Madlegs1

At least 100, and higher is ok. Even up to 1000.

Be aware that higher ferritin works for only about 50% of sufferers.

ChrisColumbus profile image
ChrisColumbus

Welcome to the forum. It could be useful to know where you are and a little about your experience with RLS, either in your profile as requested or just in your posthealthunlocked.com/rlsuk/po...

ChrisColumbus profile image
ChrisColumbus

Secondly, as far as ferritin levels go read through all the Replies to this recent post:

healthunlocked.com/rlsuk/po...

And note that you should have (had) a fasting full panel iron test to include serum ferritin and transferrin saturation. This should be taken in the morning, after fasting overnight, no heavy meal the night before, no iron supplements or multivitamins containing iron for at least 48 hours prior.

And make sure that you get the actual numbers, not just a 'normal' comment: most doctors know little about RLS and don't know that we typically need higher levels

SueJohnson profile image
SueJohnson

Improving your ferritin to 100 or more helps 60% of people with RLS and in some cases completely eliminates their symptoms. If you didn't stop taking any iron supplements including multivitamins that have iron in them 48 hours before the test, didn't eat a heavy meat meal the night before, fast after midnight and have your test in the morning before 9 am if possible. then your results will be higher than is what is true. You want your transferrin saturation (TSAT) to be over 20% but less than 45% and your ferritin to be at least 100. If they are not, post them here and we can give you some advice.

SueJohnson profile image
SueJohnson

Is your RLS under control ? If not and you tell us what medicines you take for it and what your experience is, we can give you some advice.

And definitely indicate on your profile at least what country you live in and your gender as this affects the advice we give.

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