Doctors awareness: Good news, I think... - Restless Legs Syn...

Restless Legs Syndrome

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Doctors awareness

Simkin profile image
17 Replies

Good news, I think. My GP (doctor) had to give a talk on a subject of his choice to all the other doctors in his Practice.He told me that he decided to give a talk on restless legs! He, of course, had learnt a lot from me & all my ups & downs & he also had to do a lot of extra research.

Well, I am sure you will all agree this is great news to think the word is being spread amongst the medical profession. Hurrah!

As you know I am having great success thus far with buprenorphine and I still take 900mg gabapentin (down from 2,100).

He wants me to also take an iron tablet at night.

Sue, did you say iron tablets don't work if taken in the evenings with gabapentin??

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Simkin profile image
Simkin
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17 Replies
LotteM profile image
LotteM

Good news.

Simkin profile image
Simkin in reply to LotteM

Indeed

Jumpey profile image
Jumpey

Well done you for being a great teacher to your doctor.Now many others can be helped.

Simkin profile image
Simkin in reply to Jumpey

I hope so!

Mulberry100 profile image
Mulberry100

WOW! That is great.

I am lucky to have, at least, a caring GPs who accepts I know more than they do about RLS. Your success makes me feel it’s worth my continuing to try to educate them, when I sometimes feel uncomfortable doing so. I haven’t managed to be prescribed Buprenorphine as in my Trust GPs cannot prescribe for RLS. I have had to be referred back to Neurology (who MAY be able to as it’s with a different Trust) my appointment is for July 2024!

I doubt my sanity at times with this hideous condition, but your news does give me hope!

Simkin profile image
Simkin in reply to Mulberry100

July 2024. That is ridiculous!!!

Joolsg profile image
Joolsg

Fantastic news.

Simkin profile image
Simkin in reply to Joolsg

It is.

SueJohnson profile image
SueJohnson

That's great !

You can take gabapentin and iron at the same time and at night. I probably told you this but take your iron with 100 mg of vitamin C or some orange juice since that helps its absorption. Take it every other day, preferably at night or if every day at the same time so it is at least 24 hours apart since when you take it hepcidin is released which prevents iron from being absorbed for up to 24 hours. Take it at least 1 hour before a meal or coffee or tea and at least 2 hours after a meal or coffee or tea since iron is absorbed better on an empty stomach and the tannins in coffee and tea limit absorption. If you take magnesium, calcium or zinc, even in a multivitamin take them at least 2 hours apart since they interfere with the absorption of iron. Also antacids interfere with its absorption so should be taken at least 4 hours before the iron or at least 2 hours after. Don't take your iron tablets before or after exercise since inflammation peaks after a workout, don't take tumeric as it can interfere with the absorption of iron or at least take it in the morning if you take your iron at night. If you take thyroid medicine don't take it within 4 hours. It takes several months for the iron tablets to slowly raise your ferritin. Ask for a new blood test after 3 months.

Simkin profile image
Simkin in reply to SueJohnson

Thanks so much, Sue.Very helpful as always.

Drls profile image
Drls

hello, simkin, I’m just wondering what dose buprenorohine you are on? I’m currently trying to combine a level of pregabalin and buprenorphine ( sublingual tabs) and am trialing different combinations - now on 100 mg preg and 0.6-1 mg of bup - plus also taking iron every other day but doing it in the morning cos fitting it in in the evening with other medication and eating was difficult ! Pleased to hear that you are doing well

Simkin profile image
Simkin in reply to Drls

Did my reply come through to you. If not it was900mg gabapentin

Buprenorphine sublingual SF 200mcg

Merny5 profile image
Merny5

That is awesome!

Simkin profile image
Simkin in reply to Merny5

Yes things are looking up!

Simkin profile image
Simkin

No, my GP has put me on ferrous fumarate.Does it matter if I am on fumarate rather than on any other?

On the instructions it says take WITH your main meal but I think I will follow Sue's advice & take it one hour before evening meal rather than with.

DesertOasis profile image
DesertOasis in reply to Simkin

See the third reply in this post. It lists some of the people who get immediate relief with iron, either alone or in combination. I am as adamant about people trying this simple measure, one time, as Jools is about doctors not prescribing DAs. healthunlocked.com/rlsuk/po...

Weezie99 profile image
Weezie99

Awesome news! BTW, iron pills can turn your poop dark green, or almost black. Just so you're not surprised! 😆

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