Long Covid: I have had RLS for decades... - Restless Legs Syn...

Restless Legs Syndrome

21,483 members15,160 posts

Long Covid

wairoa36 profile image
4 Replies

I have had RLS for decades and have had more help on this site from wonderful people than from any medical person. Currently I take Methadone 15 mg daily which gives me about 5 hours of broken sleep per night. I can live with it as its the best I have had for decades.

I wonder if some Marijuana would help and if its worth trying to get it?

Lately I have had a disturbing amount of RLS symptoms in the afternoon . For this I take some old leftover sinemet which helps.-- perhaps twice a week.

I also seem to have pretty severe Long Covid. I have most of the signs and symptoms of Long Covid, except depression , which I have never had, but do have a ridiculous amount of anxiety.

I am nearly 87.

Hoping for some help

Written by
wairoa36 profile image
wairoa36
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Madlegs1 profile image
Madlegs1

I would be looking to increase the methadone by a small amount.

And check for triggers - food ,drink and medications.

You have done great to cope with so much. Hopefully it will get better.

SueJohnson profile image
SueJohnson

I agree with Madlegs1. Increase the methodone. But yes Marijuana would help but try increasing the methadone first. For anxiety ask your doctor for a prescription for buspar (buspirone.

Birdland profile image
Birdland

My experience with marijuana for RLS has been mixed. It helps sometimes, usually when RLS is relatively mild. I’d say it would probably be worth the effort. Ask for indica, not sativa. Indica is more sedating.

wairoa36 profile image
wairoa36

Thanks to you all for practical advice. I see my sleep specialist at the end of August so will have to hold on till then and hope for cooperation — never a given as you know.

You may also like...

I am suffering with long COVID for the last 6 months.

I have a tight chest and my throat feels raw. Glands feel like my throat is closing. I might be...

Covid

Just had COVID and weirdly no RLS for the whole time. Ok I'm taking 0.09mg mirapex every evening....

Good covid, bad downside.

I have refractory RLS and have been taking 20 mg of hydrocodone right before bed. The symptoms...

Infusion how long to \"kick in\"? Hehe.

then I had iron infusions for low hemoglobin (not RLS) and was so sick I didn't notice how long...

RLS and vaccination for Covid 19

Hello, I wonder if anyone have information or experience about vaccination for Covid 19. I have...