Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

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PLMD medication

Hello I just joined because i was recently diagnosed with PLMD. The doctors don't really seem very informed about this condition. My ferritin level was...

Hello I just joined because i was recently diagnosed with PLMD. The doctors do...

drover123

•6 hours ago

4 Replies

Interesting update for those in the UK whose GP practice has Buprenorphine red listed

Finally, after months of hitting my head against a brick wall with my GP practice, where Buprenorphine is firmly red-listed (and the partners flatly refuse to...

Finally, after months of hitting my head against a brick wall with my GP practic...

Claire_lc

•1 day ago

33 Replies

Itchy/burning soles + 53% TSAT

First post here but been reading and learning for the last 6 months or so. I currently have 2 issues which I’d like some advice / comment on. The 2...

First post here but been reading and learning for the last 6 months or so. ...

MaxxRLS

•2 days ago

14 Replies

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Addicted or not addicted

Last night I e xperceived very painful calf muscles and restless leg syndrome . I thought I hade taken my normal prescription of 3 x 50mg of Tramadol! & you...

Last night I e xperceived very painful calf muscles and restless leg syndrome . ...

m1946

•2 days ago

3 Replies

Consultant at Spire Liverpool for RLS

Hi There was a recommendation several months ago for a sympathetic Consultant at Liverpool Spire for RLS. Can anyone recollect who the person was? Many...

Hi There was a recommendation several months ago for a sympathetic Consultant a...

Premepoxol69

•2 days ago

3 Replies

Sleep Clinic

Hi, finally got an appointment for NHS Sleep Clinic (August), only been waiting 9 months. Has anybody had any experience of the one at Southmead Hospital,...

Hi, finally got an appointment for NHS Sleep Clinic (August), only been waiting ...

Ephemera

•2 days ago

3 Replies

Vimpat is working for severe RLS and PLMD

I’ve had almost complete resolution of my RLS on Vimpat (lacosamide) now at 150 mg at 10 am and 10 pm. This is a remarkable turnaround in my symptoms. I...

I’ve had almost complete resolution of my RLS on Vimpat (lacosamide) now at 150 ...

SleeplessinNC

•2 days ago

16 Replies

Gabapentin and liver resection

The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now...

The help I have been given from this forum has been invaluable, I don't know whe...

Ozzey

•2 days ago

7 Replies

What time does your RLS began?

My symtoms usually began evenings around six P.M. or slightly later. I take my pramipexole at five and if I happen to forget to take it and the rls starts, it...

My symtoms usually began evenings around six P.M. or slightly later. I take my ...

bluechipx

•2 days ago

7 Replies

Iron deficiency

I was on iron tablets after blood tests the doctor said stop taking the pain tablets as they may be causing the problem but it wasn't it was my small intestine...

I was on iron tablets after blood tests the doctor said stop taking the pain tab...

Bantamdyno

•2 days ago

1 Reply

Restless Legs and treatment with only morfin ?

I have gained a lot of knowledge and experience here - now I am here again. After many years of treatment with pramipexole, had augmentation and is now using...

I have gained a lot of knowledge and experience here - now I am here again. Aft...

Gibbel

•3 days ago

14 Replies

Iron Levels

this group is so helpful. Thank you to everyone, especially those experts. I’m currently weaning off pram with higher doses of gab. My PA in neurology is...

this group is so helpful. Thank you to everyone, especially those experts. I’m...

CarolynE13

•3 days ago

8 Replies

Help with reinstating profile

This is a technical question as opposed to a health-related question. Has anyone been successful in reinstating their profile on this forum? The other day, I...

This is a technical question as opposed to a health-related question. Has anyon...

amrob123

•3 days ago

3 Replies

Gabapentin side effects after months of use

I’ve been on Gabapentin for about 6 months now. I am currently on 1400mg. I had some initial side effects when I first started but they went away. Last night...

I’ve been on Gabapentin for about 6 months now. I am currently on 1400mg. I had ...

Tbone87

•3 days ago

2 Replies

Thank you

Hello all you good people out there. I want to say a big thank you to everyone who replied to my recent post. I have found the advice you have given me very...

Hello all you good people out there. I want to say a big thank you to everyone ...

bedith6

•3 days ago

1 Reply

Gabapentin side effects

I have been taking medication for my RLS for 11 years now. Initially pramipexol for 8 years then Ropinirole for two years and I’ve just started Gabapentin on...

I have been taking medication for my RLS for 11 years now. Initially pramipexol ...

Louless9

•3 days ago

5 Replies

Daridorexant

Had rls since childhood but not labelled then. I have been on alternative roprinole and neupro for many years, also gabapentin up to 1200mg. Over last three...

Had rls since childhood but not labelled then. I have been on alternative roprin...

Caravan24

•3 days ago

6 Replies

Gabapentin Hell!

Hi all, thought I would share my recent experience with Gabapentin. I have had RLS since I was 18 and am now 74. I started on Pramipexole about 15 years ago...

Hi all, thought I would share my recent experience with Gabapentin. I have had ...

jeanjack

•4 days ago

30 Replies

Retiring Abroad with RLS

I'd be curious to hear from those who have moved to other countries when they retired either for a change of scenery or to get more out of a fixed income. Have...

I'd be curious to hear from those who have moved to other countries when they re...

ziggypiggy

•4 days ago

14 Replies

Intermittent RLS: why carbidopa/levodopa????

Can anyone enlighten me as to why the Mayo Clinic suggests carbidopa/levodopa (sinemet) as prn therapy as opposed to ropinorole/pramipexole? I used to have...

Can anyone enlighten me as to why the Mayo Clinic suggests carbidopa/levodopa (s...

Petru

•4 days ago

10 Replies

Desperate for help

Hello everyone. It is a long time since l have posted although l have always kept my interest going in this knowledgeable and helpful site. I am so depressed...

Hello everyone. It is a long time since l have posted although l have always ke...

bedith6

•4 days ago

11 Replies

New treatments?

Has anyone tried a stellate ganglion block for RLS or TOMAC and has it helped?

Has anyone tried a stellate ganglion block for RLS or TOMAC and has it helped? ...

Oldgraymare

•4 days ago

8 Replies

Pregabalin-magnesium

Sue, Did I read correctly in your gabapentin template that you can take magnesium at the same time as pregabalin?

Sue, Did I read correctly in your gabapentin template that you can take magnesi...

wantokporo

•5 days ago

4 Replies

Temgesic Supply Problems

I have had an outstanding prescription for some 200ugm Temgesic tablets since the start of April. So I phoned them yesterday and it seems that they just cannot...

I have had an outstanding prescription for some 200ugm Temgesic tablets since th...

RLSofManyYears

•5 days ago

12 Replies

Magnesium, how much and tablet/spray

My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other...

My RLS has become significantly worse over the last 6 months and I am reluctant ...

ChilliChocolateLover

•5 days ago

29 Replies

RLS Requip (the devil med) and then Gabapentin(my savior)

I was on Requip for years always inching up in the dose as I went. It really didn’t stop the pain or movements. Then I had a blast of some kind of mental...

I was on Requip for years always inching up in the dose as I went. It really did...

Maystamper1

•5 days ago

6 Replies

Going from no meds to pramipexole

Hi all I’ve had a bad RLS flare up due to over tiredness as we have a newborn. No chance of my sleep debt being reduced anytime soon, and I’m desperately...

Hi all I’ve had a bad RLS flare up due to over tiredness as we have a newborn....

BOWENATOR

•5 days ago

20 Replies

Neutropenia /pregabalin

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of...

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is ...

Baz33

•5 days ago

23 Replies

Gabapentin/pregabalin

Thank you Sue. I will write to him and diplomatically tell him about the equivalent again, if he doesn't agree (I think he will} I will go down to 900...

Thank you Sue. I will write to him and diplomatically tell him about the equival...

riverislow

•5 days ago

2 Replies

Buprenorphine tablet's and Oramorph.

Hi all. Does anybody know whether it's safe for me to take 2 ml Oramorph at 1.30 p.m. ? I am trying to take ½ Buprenorphine at 3 p.m. when my RLS starts, then...

Hi all. Does anybody know whether it's safe for me to take 2 ml Oramorph at 1.30...

Danni54

•6 days ago

11 Replies

Write a post or ask a question

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

PLMD medication

Interesting update for those in the UK whose GP practice has Buprenorphine red listed

Itchy/burning soles + 53% TSAT

Addicted or not addicted

Consultant at Spire Liverpool for RLS

Sleep Clinic

Vimpat is working for severe RLS and PLMD

Gabapentin and liver resection

What time does your RLS began?

Iron deficiency

Restless Legs and treatment with only morfin ?

Iron Levels

Help with reinstating profile

Gabapentin side effects after months of use

Thank you

Gabapentin side effects

Daridorexant

Gabapentin Hell!

Retiring Abroad with RLS

Intermittent RLS: why carbidopa/levodopa????

Desperate for help

New treatments?

Pregabalin-magnesium

Temgesic Supply Problems

Magnesium, how much and tablet/spray

RLS Requip (the devil med) and then Gabapentin(my savior)

Going from no meds to pramipexole

Neutropenia /pregabalin

Gabapentin/pregabalin

Buprenorphine tablet's and Oramorph.

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