Which country do you live in? - Restless Legs Syn...
Which country do you live in?
Please select all that apply:
Canada
so why isn't Canada listed????
South Africa
New Zealand
Canada
what are you doing with the RLS country poll? Just curious.
As this forum is now a page for all of Europe, we want to see if we are in fact attracting people from across Europe. We included the USA and Australia because we are aware of the number of users of this forum who come from there. We were not aware that we had so many users in Canada so this exercise has proven very useful for us!
We believe that this forum may soon become one of the most popular RLS forums in the world!
Im in Las Vegas Nv I have leg Pains when i get done working,,Its so hard to fall asleep at nite,,im currently not taking anything.. I was tinking abt support hose.. Does any one know if that works.
what about canada?
We were not aware that we had so many users in Canada so this exercise has proven very useful for us!
Im from Las Vegas Nv
Uk
USA
Cumbria uk
Scotland
I live in Las Vegas Nv
I live in New Zealand
UK
stan38angler south wales uk
ex-pat living in Norway for the past nearly 50 years
New Zealand
Canada
From USA, but have lived in Norway for the past 4-5 years
This is interesting. I live in the US but have ancestors (Dares) who came from England and I have a lot of the Dare features (plus a lovely cherry chest brought over). If rls is caused by a genetic issue, this survey might support that, seeing how the US probably had the greatest amount of English settlers and comes in second to UK.
I recall reading how prevalent a Type A strep was in England and admired how this was acknowledged and followed. I had Scarlet Fever (a type A strep) when I was young and then always got every viral illness plus strep. I read all I could find on Scarlet Fever and that pathogen is incredibly contagious plus stays in one's body for good. Some get sick right away. Others don't but still carry and pass it on and later, wherever the bug had settled in, they may suddenly have a diseased gallbladder or whatever and never connect it to a stealth infection.
The US medical system purposely has hidden the fact that such stealth infection is in play or that it can cause myriad problems. For example: if it's dormant and a healthy immune system is keeping it in check, this can suddenly change due to illness or stress or surgery, etc and you start to feel issues wherever the buggers are located and now causing inflammation. I've had this in my joints and probably on the vagus nerve and definitely in my brain causing behavior and mood changes.
I read that in the netherlands, they try antibiotics for mystery back pain and it often works. But in the US, no AMA doctors would ever consider this. They weren't taught about stealth infections because keeping people mysteriously sick makes huge money. And since doctors stopped thoroughly treating infections decades ago when the sudden kabash on antibiotics came down, there have been more and more new illnesses and cancer, which is infection gone wild. Back before this, hospitals were going broke and there were too many nurses and doctors. But now we have huge hospital complexes etc and many commercials are of new pharmaceuticals with crazy names because making and keeping a portion of the population sick and diseased is a huge corporate business. It's all about money. Expensive tests are ordered for any reason, but if your problem isn't one they have a pricey protacol for, you're swept aside and said to have anxiety or should see a psychiatrist or will even blame it on being slightly overweight. Spending time (more than 15 minutes) to talk through symptoms and pondering possible causes is not covered by insurance and not profitable.
I know my infection and brain/nerve issues run in the family and could be a defective enzyme or B cell syndrome etc. So why don't doctors order genetic tests for clues. I can get a 23andme kit via Amazon for $199. Illnesses could be solved especially by patient databases with all symptoms and ancestor countries and all past test results and a computer could offer likely causes. Doctors don't want to hear about your past medical history, which is crucial to finding the root cause of illness. But the medical system does not want to cure anything. Expensive tests, patented drugs and only treating symptoms is most of what is done. I can't believe how well this sham has evolved and everyone accepts it like The Emperor's New Clothes.
My bloodwork always shows infection markers and mri's show cysts in brain and damage to white matter (not normal for my age) and other issues--but it's ignored, despite so many neurological issues, including rls.
I'll order a genetic kit--but I bet you anything that any good clues from it shown to a doctor will result in them discrediting the process or investigating results.
Wisconsin doctors are ranked near lowest in quality and I can vouch for that countrywide poll. They're protected from any wrongdoing via a collective malpractice insurance so they don't have to worry about misdiagnosis or even killing someone. Very few lawyers will even take a malpractice case because there's also a cap on settlement amounts so it isn't worth their time.
I feel like this is the dark ages, especially as they continually try to keep patients from cheaper and effective narcotic pain meds so that expensive drugs must be prescribed, loaded with side effects and also don't resolve many kinds of horrible pain.
There's no financial windfall in RLS, and learning the real cause could also cure many other syndromes and too much revenue would be lost.
I read recently how people got perfect relief from restless legs or cramping by inexpensive otc quinine pills--so of course the fda took them away. No huge profits for pharma and whoever else. They still allow the amount that's in tonic water because this mixer is a big part of alcoholic drinks that do far more harm but that's okay because it's another part of our economy, and it also causes lots of illness and death, which is even more money.
I suppose I've established myself as a ranting nutcase now, but I guess I'd rather be like the kid who points out that the emperor is actually naked, no new clothes to be seen.
I still hope for a cure and that we find relief from these sadistic little devils perpetually tickling and biting from inside our poor legs, feet and more.
Interesting. I'd have to view this with some skepticism.
England 
The Netherlands
Wales UK but originally from Kent 😊
Hi all. I'm LBF2016 from the USA. Somehow I stopped getting all of the Health Unlocked posts shared between the UK and the USA. I know I didn't unsubscribe for God's sake, but suddenly poof, everything was gone. Does anybody know how to get back on to that site? I really miss all of the very informative and up-to-date posts both local and across the Pond (I hope that is the right term...my sincerest apologies if it is not), and as of today, Jan. 11, 2018, (Happy New Year all), my RLS is the worst it has ever been since it started over 18 years ago and would love and appreciate any advice or recommendations you are willing to share. Thanks all for listening
I'm 77 yr old male w/ chronic severe refractory RLS/PLMD. I've tried most all RLS USDA Rx and off-label meds: Klonopin, Sinemet, Mirapex, Requip, Neupro, Neurontin, Lyrica, Tramadol, Clonidine, Wellbutrin, and Medical Marijuana... all w/out L/T success including augmentation.
I've not tried Opiates / Methadone due to side-effects, potential addiction/dependency issues and detox following discontinuance.
Currently on Baclofen, a muscle relaxant, too soon to determine L/T Rx Tx efficacy.
Live in Los Angeles, CA - USA, Member of RLS Foundation and So CA RLS Support Group.
Greatly appreciate reading RLS-UK posts by fellow sufferers. Keep up your efforts, Thanks.
Mexico
I am from South Africa and see we are not on the list
Hi I’m new to the group. I live in the USA. I too have descendants originating in England. I have severe RLS since I was at least 14. I’m sure I suffered younger than that too but it was all explained away. I have been on Mirapex mostly but never helped. I take enough medicine at night to knock a grown man out for a week but I still don’t sleep. While seeing a neurologist for a sleep study, (second one, of course had a once in a lifetime peaceful night on the first one years ago) he did some labs and of course my iron wasn’t within normal range. For GP’s it seems my iron had always been in normal range for their acceptance. But for whatever reason they didn’t always/ever draw labs for Ferritin, TIBC, Folate, or B12. The neurologist I saw said for RLS it needs to be at least 40. He put me on a Neupro 3 mg/24 patch and like magic I was having at least more good nights than bad. I’m now taking Mirapex again, with the patch, gabapentin, and Trazadone just to hope to have a good night. Ambien and Lunesta are a no go.. crazy nights. I’m 45, RLS has been miserable. I recently, through other tests/DR visits, found out that I have Pernicious Anemia, and have been doing Iron Transfusions to get my iron/Ferritin/B12 levels up. They only came up minimally so Continued Iron Transfusions and B12 shots. Through 2 different EGD’s and Gastric Mapping because of Intestinal Metaplasia I have learned that I have Autoimmune Metablastc Gastritis and I’m unable to absorb iron or B12. So if Anemia is a Brain Iron deficiency, is it still what they’re saying? shouldn’t my RLS symptoms get better with Iron Transfusions, B12 injections and switching to sublingual B12 daily and the kids vitamins he switched me too, because they are absorbed differently? I’m praying this is an answer. RLS is a terrible thing to have. Complete misery and existence to be so tired because you literally can’t lie down to sleep.
So glad I found you!
From Glasgow Scotland
New Zealand
Austria
I live in South Wales which is different from living in England [or UK], as is pointed out on a regular basis
Canada
Canada
netherlands
Canada should be listed!
Netherlands
Portugal
Uk
Netherlands
Uk
Canada
West Wales, UK
Portugal
Norway
Finland
Israel
Netherlands
Japan
Portugal
Greece
Canada🙂
New Zealand
Canada
Australia
Denmark
sweden
USA
USA
Canada
Россия
DeepL Translate - Russia
Australian Expat now living in Midwest USA looking for a Specialist in Neuro only, no Sleep Med.
Canada.
The Netherlands
New Zealand
I live in Belgium. Does anyone know of a specialist in this country?
Greece
denmark
Canada
