Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,450 members • 15,125 posts

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

And another - Introduction Recent studies characterized a clinically more severe and painful (compared to painless) form of restless legs syndrome (RLS)....

And another - Introduction Recent studies characterized a clinically more sev...

RLSLearner

•2 days ago

42 Replies

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•15 days ago

79 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•17 days ago

83 Replies

RLS & Pramipexole

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I...

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Pre...

Maymount

•3 days ago

30 Replies

TGIF! And thank God for Tramadol?

My answer is yes. Always do your own research. Tramadol is a combination opiate and the properties of an SNRI (antidepressant) and is very successfully used to...

My answer is yes. Always do your own research. Tramadol is a combination opiate ...

DesertOasis

•10 hours ago

10 Replies

Hello and thanks for having me in this group

My name is Jane and I've suffered from acute RLS for about 4 years now. I was prescribed an evening dose of 2.5 mg Ropinerole by a neurologist here in the UK,...

My name is Jane and I've suffered from acute RLS for about 4 years now. I was p...

Chocolate123Lab

•3 days ago

24 Replies

absolutely disgusted.

I received a telephone call from my GP this morning regarding a request made by my specialist to prescribe Buprenorphine. My GP had to refer to the senior...

I received a telephone call from my GP this morning regarding a request made by ...

HipHop1972

•1 month ago

77 Replies

Stabilising buprenorphine dose

After months escaping from DA augmentation and with the help & support of many in this community I reached a period in late 2023 when I started on...

After months escaping from DA augmentation and with the help & support of many ...

davchar23

•28 days ago

68 Replies

Nausea & Buprenorphine

As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and...

As some of you will have seen from my earlier posts I had succeeded in blocking ...

davchar23

•1 month ago

71 Replies

SUPPLEMENTS FOR RLS?

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN...

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEM...

piggytails

•8 days ago

33 Replies

Iron Supplement

Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the...

Hello, I recently started taking iron supplements as my level was 90 and it's ad...

Thebarber

•4 days ago

23 Replies

And again!

Hi all. I need a bit more advice please! Today I received my prescription for Buprenorphine tablet's and they are 400 microgram Sublingual tablet's, sugar...

Hi all. I need a bit more advice please! Today I received my prescription for B...

Danni54

•2 days ago

17 Replies

Trazodone

Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every...

Hi , after trying very hard to navigate depression without drugs I have now just...

Rubynessie

•9 days ago

32 Replies

Methadone for refractory RLS

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesting case of a female patient whose RLS was controlled with methadone. Clearly...

https://academic.oup.com/sleep/article/47/Supplement_1/A516/7655037 An interesti...

Joolsg

•3 days ago

19 Replies

Pramipexole

Hi, I am actually in tears as I write this, I am trying to get off pramipexole, I was taking 4x 0.088 at night. After the worst two months I got it down to...

Hi, I am actually in tears as I write this, I am trying to get off pramipexole, ...

Thebarber

•2 days ago

15 Replies

new here please help

Hi Im51, I had double hip labral repair and FAI surgery in January and February this year (2 weeks apart) a week after the second surgery I started...

Hi Im51, I had double hip labral repair and FAI surgery in January and Februar...

Zenawarrior73

•2 days ago

14 Replies

My niece

I feel so bad as my niece has rls. She is like me in many ways and now has inherited it probably from me. Luckily she hasn't seen any doctors yet. I've warned...

I feel so bad as my niece has rls. She is like me in many ways and now has inher...

Coeso

•2 days ago

15 Replies

RLS and surgery

As I have previously indicated, I take Belbuca buccal patch for my RLS. I am scheduled for hip replacement surgery in the near future. Recently I have seen...

As I have previously indicated, I take Belbuca buccal patch for my RLS. I am s...

dancer2

•1 day ago

11 Replies

Head felt enormous pain as if it were going to explode. Particularly at the back base of the skull

I’ve suffered from RLS for years and finally after trying home remedies my doctor did prescribe that medication. I was afraid to take it a second time after...

I’ve suffered from RLS for years and finally after trying home remedies my docto...

Lorkadm

•2 days ago

12 Replies

Buprenorphine, Nausea & Zofran (Ondansetron)

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to...

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side ef...

davchar23

•9 days ago

27 Replies

New Member looking for advice

I am 55 years old and I've suffered intermittently from RLS for many years but over the last couple of months it has been almost every night. It has really...

I am 55 years old and I've suffered intermittently from RLS for many years but o...

ChilliChocolateLover

•2 days ago

11 Replies

learning to help others

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I am trying to gain insights and understanding from those with lived experience...

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I ...

Betrue2u

•5 days ago

19 Replies

left methadone at home, urgent advise needed

I'm away from home tonight and for the first time forgot my methadone. I take 5mg every night. What might happen to me if I miss 1 dose of 5mg Tonight?!?! If...

I'm away from home tonight and for the first time forgot my methadone. I take 5m...

Rayme

•5 hours ago

4 Replies

buprenorphine is not that harmless: sum

hi. maybe it is time to remind some sufferers. my last post was 7 months ago:...

snoemata

•11 days ago

27 Replies

Escape from Augmentation part 2

I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask...

I have been excellently helped by several forum participants in my "escape from ...

davchar23

•1 month ago

47 Replies

I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion

Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve...

Hello RLS people I’ve been here for a while reading & learning, getting the i...

Barnclown

•30 days ago

43 Replies

Worse since Wife had hip replacement

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS has got far worse had to increase dose to 1mg per day which is still not really...

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS ha...

Leg7

•18 days ago

33 Replies

RLS: nutrition matters, n = 1

Hi, just want to give an update on an experiment I've alluded to in posts on a few others' threads. I recently was able to wean completely off my pramipexole...

Hi, just want to give an update on an experiment I've alluded to in posts on a f...

HawkintheHills

•2 days ago

10 Replies

Buprenorphine...help with prescription please!!

Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the...

Since my neurologist retired and I found a new one, my pharmacy is not accepting...

LanaCSR

•29 days ago

41 Replies

ferritin level and symptom question

I first posted a few months ago and based upon replies there were mixed feelings on whether my symptoms were truly RLS. Main complaints were a...

I first posted a few months ago and based upon replies there were mixed feeling...

Corolla1

•1 day ago

9 Replies

See all posts

Write a post or ask a question

Pinned Posts

See all

Security/Privacy information for RLS-UK/EARLS community memb...

Opioids for RLS- some useful information

ADDENDUM TO MEMBERS PLEASE NOTE

Yellow Card Scheme Reporting

RLS UK CAMPAIGN FOR EDUCATION OF GPS IN THE UK

Latest poll

See all polls

Which country do you live in?

Vote

About us

Welcome to the European Alliance for Restless Legs Syndrome (EARLS) and RLS-UK forum. Learn more about us at w...

Support us!

We are 100% dependent on voluntary donations & fundraising, this means your generous contributions will help us continue to provide information & support to people living with RLS

Donate now