Posts - PSP Association | HealthUnlocked

PSP Association

9,342 members • 11,393 posts

All posts for September 2016

Hospice again! Hooray.

Hi, just had brilliant news, S has been accepted back for another session at our local hospice day centre. They are saying it's going to be a six week course,...

Hi, just had brilliant news, S has been accepted back for another session at our...

•8 years ago

Seen red today!

This morning I had to ask one of the carers to leave... Was rather short with her but she basically does bugger all when here anywa and alwsys turns up late to...

This morning I had to ask one of the carers to leave... Was rather short with he...

•8 years ago

Respite

Yesterday I visited Buckingham palace to see state rooms and all the queen's beautiful gowns and day dresses. My friend's husband sat with my hubby, they've...

Yesterday I visited Buckingham palace to see state rooms and all the queen's bea...

•8 years ago

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Sad time

I am feeling very sad after reading Satt post, brought back so many memories, good and bad, loss of empathy is one of the horrible things with PSP, I just want...

I am feeling very sad after reading Satt post, brought back so many memories, go...

Yvonneandgeorge

•8 years ago

Can't Stop Crying

Charles is rapidly declining and I'm just not ready to say goodbye! Job is being changed and precarious, new workplace, etc. Seems very dark right now and I...

Charles is rapidly declining and I'm just not ready to say goodbye! Job is being...

•8 years ago

sis & Psp

My Sister has PSP, was misdiagnosed as Parkinson's for many years. I fear she is near the end. Yesterday she was unresponsive & taken to the hospital. They did...

My Sister has PSP, was misdiagnosed as Parkinson's for many years. I fear she is...

•8 years ago

Saliva

V suffers hugely from saliva excess and also clear mucous in her nose especially in the evening - can't stop the flow . We have tried Hyoscine but...

V suffers hugely from saliva excess and also clear mucous in her nose esp...

•8 years ago

Discounted council tax

Just read on Martin's money tips that anyone living with a severe mental imparement which effects their social functioning and intelligence and Parkinsons was...

Just read on Martin's money tips that anyone living with a severe mental imparem...

•8 years ago

scratching

morning to my other family! has anyone experienced the psp person(!) scratching at night? rog has woken two mornings now his upper back looking like he has had...

morning to my other family! has anyone experienced the psp person(!) scratching ...

•8 years ago

Feeling guilty????

WHY? Why is it, we are all doing, what is publicly acclaimed, a fantastic job, caring for our loved ones. Most of us are on our knees, several of us, very...

WHY? Why is it, we are all doing, what is publicly acclaimed, a fantastic job, ...

•8 years ago

Wonderful, happy news!

For those of you who were kind enough to take an interest and to sign petitions and such, please know that we heard this morning that my beloved sister-in-law,...

For those of you who were kind enough to take an interest and to sign petitions ...

•8 years ago

Weekend from hell and a meltdown

Charles ended up in ER again, didn't help much but now we are in "stage two" and I'm falling apart. Much better today but just railed at PSP and him and the...

Charles ended up in ER again, didn't help much but now we are in "stage two" and...

•8 years ago

They have gone .

The swallows have gone leaving only a few house martins behind urging their young to leave their mud clad homes and head south to warmer climes . Our...

The swallows have gone leaving only a few house martins behind urging their ...

•8 years ago

Recantly diagnosed

Feeling really scared my husband was diagnosed with psp but what does that mean for the future help im scared x xxx

Feeling really scared my husband was diagnosed with psp but what does that mean ...

allotmentartist

•8 years ago

General comments about PSP

What is the life span of folks with this disease? I have had it for about three years and was diagnosed in summer of last year. Before that I had strange...

What is the life span of folks with this disease? I have had it for about three ...

•8 years ago

The hardest decision of my life😔

This weekend I have to decide whether Keith needs to go into permanent care, all the tools have been put in place (very quickly!) by CHC and the district...

This weekend I have to decide whether Keith needs to go into permanent care, all...

•8 years ago

Any ideas about fluids ?

Hii..We still facing the problem of spattering fluids and drinks all over the room when my dad drink them.. from your previous posts i read " heavy or...

Hii..We still facing the problem of spattering fluids and drinks all over the ro...

•8 years ago

A couple of updates

Hi everybody! Good Morning here, if you are in the States. I just wanted to let y'all know about a couple of updates with my sister. One, I posted before...

Hi everybody! Good Morning here, if you are in the States. I just wanted to let...

•8 years ago

Feeling lost

My mum was diagnosed with psp a year ago but in the last 2 months I have lost more of her each day her memory and movement is almost non existant and gets...

My mum was diagnosed with psp a year ago but in the last 2 months I have lost mo...

•8 years ago

Mummy has gone

On Monday night my brave beautiful stoic mother gave up the battle with this horrendous disease. She had her first fall 12 years ago and we have fought...

On Monday night my brave beautiful stoic mother gave up the battle with this hor...

•8 years ago

interactive metronome

Has any one tried the interactive metronome on line? i saw a post linking to their site . I was not aware that this worked for Parkinsons patients. Have any of...

Has any one tried the interactive metronome on line? i saw a post linking to the...

•8 years ago

Gone to heaven.

Hello everyone, I know i never posted much at all, i always observed and pulled from all your strength always been kind of a quiet and to myself person. My...

Hello everyone, I know i never posted much at all, i always observed and pulled ...

•8 years ago

A new woman?

This morning I felt like I couldn't cope with this horrible disease any more, but after five whole hours of time to myself I feel like a new woman! Keith...

This morning I felt like I couldn't cope with this horrible disease any more, bu...

•8 years ago

Where to begin.....

My father was diagnosed with PSP in February and knowing what we now know, he has probably had it two years prior to diagnosis. His movements, speech, sleep...

My father was diagnosed with PSP in February and knowing what we now know, he ha...

•8 years ago

CHC

We are being reassessed for CHC really worried because from my understanding we could loose it? Because George is not going to die soon, I don't know how I...

We are being reassessed for CHC really worried because from my understanding we ...

Yvonneandgeorge

•8 years ago

Great sadness

It is with a heavy heart that i have to say that Brian died as he lived quitly and without fuss.

It is with a heavy heart that i have to say that Brian died as he lived quitly a...

•8 years ago

Day Care

I my wife went to a day care centre yesterday for the first, went to pick her up it was nice too see her with a happy look on her face. Also it was a great...

I my wife went to a day care centre yesterday for the first, went to pick her up...

•8 years ago

Best Medicine

Hi, S is on respite again this week. Was booked in case the Paignton home didn't come off, but they didn't want to cancel it, as they knew I needed the extra...

Hi, S is on respite again this week. Was booked in case the Paignton home didn't...

•8 years ago

My Mum ( Mary) x

Thank you all for your wonderful replies today .. I honestly feel less on my own now! You asked about my mum .. Well she is one of a kind really ... Always...

Thank you all for your wonderful replies today .. I honestly feel less on my own...

•8 years ago

Jude

Hi there I haven't written before here as I've found it too difficult but my beautiful and kind amazing mum was diagnosed in March with PSP . I have felt...

Hi there I haven't written before here as I've found it too difficult but my bea...

•8 years ago

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