Posts - PSP Association | HealthUnlocked

PSP Association

9,342 members • 11,393 posts

All posts for February 2016

Yorkshireman!?

I woke up this morning to see Bill with his eyes open and (almost) a smile on his face! He had a small drink and then had an Ensure milkshake. He never fails...

I woke up this morning to see Bill with his eyes open and (almost) a smile on hi...

•8 years ago

Medication for PEG-less advanced patients

Hi My dad has a PEG tube which got inserted for some reasons (it's a long story, I wrote about it earlier) - he can eat and drink moderate amounts so we use...

Hi My dad has a PEG tube which got inserted for some reasons (it's a long story...

•8 years ago

Eating

Mum has psp and has refused a tube to help with feeding. Which I totally respect her for. She obviously has puréed food but every mouth full now makes her...

Mum has psp and has refused a tube to help with feeding. Which I totally respect...

•8 years ago

Want to take advantage of all our features? Just log in!

or

End game?

Bill has taken a turn for the worse. Yesterday he was "asleep" (unconscious?) all day. He will not eat or drink and the health professionals thought he would...

Bill has taken a turn for the worse. Yesterday he was "asleep" (unconscious?) al...

•8 years ago

carbidopa-levodopa

I would like to know how your relatives/patient has done when taken off the carbidopa-levodopa. Two different neurologists have suggested that I take my...

I would like to know how your relatives/patient has done when taken off the carb...

•8 years ago

Where to start??!!

Hi, been reading the posts on here for a while now, thought it was about time I posted. My dad got told 18 months ago he had Parkinson's plus, later changed to...

Hi, been reading the posts on here for a while now, thought it was about time I ...

•8 years ago

On the upside

Physio finally came on Friday!! On the downside they didn't give him any physio, when I'd just about got him to agree to a wheelchair they said we should go...

Physio finally came on Friday!! On the downside they didn't give him any physio,...

•8 years ago

Clinical trials for PSP

Hello everyone, my mom was diagnosed with Psp in 2014 and we are deperatley trying to get her to participate in a clinical trual. There is a clinical trial...

Hello everyone, my mom was diagnosed with Psp in 2014 and we are deperatley tryi...

•8 years ago

Bed sore!!

Hi My dad was in the hospital (I posted earlier about that) and the nursing staff discovered a bed sore - I was horrified, I thought I was taking good care -...

Hi My dad was in the hospital (I posted earlier about that) and the nursing sta...

•8 years ago

Chest infection and treatment

Hi A quick update from my side - my dad has been bed-bound since July 2015 - he aspirated and had a PEG tube, and his carbidopa-levodopa was also stopped due...

Hi A quick update from my side - my dad has been bed-bound since July 2015 - he...

•8 years ago

Sudocream to prevent rashes?

Hi Is it recommended to use sudocream to prevent rashes if a patient is using adult diapers? I use them after every change but I remember reading somewhere...

Hi Is it recommended to use sudocream to prevent rashes if a patient is using a...

•8 years ago

Unsure diagnosis

Well our trip to the specialist at UAB yesterday was interesting. The doctor said my husband might have MSA. He is sending him to an MSA specialist. I have to...

Well our trip to the specialist at UAB yesterday was interesting. The doctor sai...

•8 years ago

Neck support

Just been to visit my mum and her head is so bent over she couldn't even look at me. She can't hold her head up and her neck is aching. Has anybody used any...

Just been to visit my mum and her head is so bent over she couldn't even look at...

•8 years ago

The mighty Exe in spate

Went down to the Quay in Exeter this afternoon and couldn't resist this picture of the Exe in full flow over the weir . It is a huge volume of water...

Went down to the Quay in Exeter this afternoon and couldn't resist this pict...

•8 years ago

Hello I would like to introduce myself.

My name is Mary Myrtle and I was diagnosed with CBD in January 2013 but had symptoms well before that. I am new to this forum and would like to share...

My name is Mary Myrtle and I was diagnosed with CBD in January 2013 but had symp...

•8 years ago

Back after a break

Hi Everyone I can't believe it is nearly 2 years since I have posted anything or visited this forum. The last year in particular has been very hard and at the...

Hi Everyone I can't believe it is nearly 2 years since I have posted anything or...

•8 years ago

CBD getting worse

Mum has carers come 4 times a day, however, once she has her bed call she is on her own (lives in sheltered housing). Mum needs to go the toilet twice a night...

Mum has carers come 4 times a day, however, once she has her bed call she is on ...

•8 years ago

Wind and more wind

Our village is situated on the western flank of the Exe Valley , consequently as the wind comes up the valley it curls itself up over the side of...

Our village is situated on the western flank of the Exe Valley , consequentl...

•8 years ago

Update!

Well, I went to see S this afternoon. Wanted to wait until tomorrow, but had a hair appointment booked, close to where he is, so it seemed silly not to pop...

Well, I went to see S this afternoon. Wanted to wait until tomorrow, but had a ...

•8 years ago

First time

Mike is dx. With parkinson's plus cbgd. We are 4yrs. Into the dx. Our neuro. Is recommending a trip to p.d. in statute, to see if he can get slightly more...

Mike is dx. With parkinson's plus cbgd. We are 4yrs. Into the dx. Our neuro. Is...

•8 years ago

First night!

Hi everyone! Guess what? I actually slept last night! Only took one small sleeping pill, worked a treat! (Normally doesn't touch the sides). Woke up late,...

Hi everyone! Guess what? I actually slept last night! Only took one small slee...

•8 years ago

newly diagnosed

hi, fairly new, was disgnosed last july

hi, fairly new, was disgnosed last july

•8 years ago

Just joined the site

Hi guys, sad to see so many people on this forum, meaning so many more people out there who are suffering from PSP, but at the same time comforting to know we...

Hi guys, sad to see so many people on this forum, meaning so many more people ou...

•8 years ago

Thanks

Hi Everyone, many thanks for the encouraging words. Since going to a meeting and joining this forum I am at last not feeling so isolated. I think the way...

Hi Everyone, many thanks for the encouraging words. Since going to a meeting and...

•8 years ago

Accessible to our loved ones when they need us.

I know that I have posted this before. All of our love ones want us to stay close and be able to call us when they have a need. I have found the most unusual...

I know that I have posted this before. All of our love ones want us to stay clo...

•8 years ago

Utube

I have just been watching some fascinating talks about PSP on Utube. They would have been very useful to me in the early days after my husband was eventually...

I have just been watching some fascinating talks about PSP on Utube. They would ...

•8 years ago

Heartbroken

My beautiful mum is now at peace and free from struggle. She passed away peacefully this evening. I haven't posted much on here but do read and have found...

My beautiful mum is now at peace and free from struggle. She passed away peacef...

•8 years ago

Hello All of you

Hi, until now the only thing I have posted has had stamps. Birds tweet and I have never photographed my dinner . So, this is a first, as is PSP. My wife, Bugs,...

Hi, until now the only thing I have posted has had stamps. Birds tweet and I hav...

•8 years ago

Time for a laugh,

Yesterday while we were having lunch I saw my Horace laugh out loud for the first time for ages, he still try's to manage to feed himself with a spoon, and I...

Yesterday while we were having lunch I saw my Horace laugh out loud for the firs...

•8 years ago

Joan v Hi

Hi everyone,my husband is suffering from psp, he was diagnosed last year,but i think he has been suffering for the past four years, he can hardly walk or talk,...

Hi everyone,my husband is suffering from psp, he was diagnosed last year,but i t...

•8 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(135)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec