Posts - PSP Association | HealthUnlocked

PSP Association

9,312 members • 11,374 posts

All posts for February 2016

Facebook

Thank you for your replies to my post on Facebook. I wrote something similar on the PSP site, so if anyone wants to "Like" it, you can do so there....

Thank you for your replies to my post on Facebook. I wrote something similar on ...

•8 years ago

Fund Raising for a Cure

I have written this and posted it on Facebook. I have also sent it to others in my address book and to a mens group that my husband has belonged to for many...

I have written this and posted it on Facebook. I have also sent it to others in ...

•8 years ago

Hey I didn't get one either, Mr. PeterJones :(

So to the both of us I write: HAPPY BIRTHDAY! When was your B'day sir? Mine was the 19th. Isn't it nice to be finally 21 or 40 hahaha. actually I am 55 and...

So to the both of us I write: HAPPY BIRTHDAY! When was your B'day sir? Mine was...

•8 years ago

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Of all the posts to be missing...

....It's the Birthday Card I sent you , Jillann! and on it I had hoped that you had had a wonderful day. I also told you how much "wonderful" I get from...

....It's the Birthday Card I sent you , Jillann! and on it I had hoped that you ...

•8 years ago

New careers act

Went to a careers meeting yesterday, and we were informed that a new careers act came in last April, where careers can be assessed, and there is a new benefit,...

Went to a careers meeting yesterday, and we were informed that a new careers act...

Yvonneandgeorge

•8 years ago

HAPPY BIRTHDAY

HAPPY BIRTHDAY JILL ENJOY YOUR DAY Georgepa

HAPPY BIRTHDAY JILL ENJOY YOUR DAY Georgepa

•8 years ago

Out of town on business and upon my return VOILA dinner was served!

So my husband has had PSP since November 2015 but symptoms since 2012 and each day brings a new problem or change. I have been fortunate that my work hasn't...

So my husband has had PSP since November 2015 but symptoms since 2012 and each d...

•8 years ago

council tax

morning! very bad start today prior to rog going to hospice, also have a poorly grandson who will get better but having to deal emotionally on your own i find...

morning! very bad start today prior to rog going to hospice, also have a poorly ...

•8 years ago

gaining weight as a carer

hey guys! this is bit of a selfish post, more about me than my dad, but is it possible to lose weight whilst being a carer? i know everything is possible,...

hey guys! this is bit of a selfish post, more about me than my dad, but is it ...

•8 years ago

Days drawing out

Our winter worn hedgerows are now showing very positive signs of spring life . Not the early uncharacteristic daffodils which seemed to have no proper...

Our winter worn hedgerows are now showing very positive signs of spring life ...

•8 years ago

Help?

Had a meeting re: J's PSP with our Parkinson's Nurse and someone from the Neurology support team. Lovely people, who understood our problems and said I could...

Had a meeting re: J's PSP with our Parkinson's Nurse and someone from the Neurol...

•8 years ago

Just retired and husband diagnosed with PSP. I would love to hear from others who have partners with this dreadful illness.

I would love to hear from anyone whose partner has this dreadful disease. I have some support and some good friends but it would be great to hear from anyone...

I would love to hear from anyone whose partner has this dreadful disease. I hav...

•8 years ago

Hand Rail Mustafa

Hi Mustafa, sorry this is public, I couldn't find how to send a photo privately. If anyone knows, please tell me. This is the rail which we put up about 3...

Hi Mustafa, sorry this is public, I couldn't find how to send a photo privately....

•8 years ago

medication and herbal remedies?

Hey guys, sorry for this post, its most likely been done before loads of times just wanted to check if my dad is on the right meds, or if there is anything he...

Hey guys, sorry for this post, its most likely been done before loads of times ...

•8 years ago

I AM 70 ON THURS 25 FEB

OUT 4 LUNCH WITH MY PARTNER THEN A FEW NEIGHBOURS ROUND 4A DRINK INN THE EVENING 2 CELEBRATE FOOTYMATCH IN EVENING WHICH P CANT MISS LOLHJILL ZXXX

OUT 4 LUNCH WITH MY PARTNER THEN A FEW NEIGHBOURS ROUND 4A DRINK INN THE EVE...

•8 years ago

Post-chest infection

Hi My dad contracted a chest infection and was on Meropenem anti-biotic (1gm via IV, 3 times a day) for 7 days - during that time he had a bout of bad...

Hi My dad contracted a chest infection and was on Meropenem anti-biotic (1gm vi...

•8 years ago

Newly diagnosed - is this normal??

Hi all. My dad was diagnosed with PSP 6 months ago. It was all a bit of a shock as we were expecting a Parkinson's diagnosis. Since Christmas though he's...

Hi all. My dad was diagnosed with PSP 6 months ago. It was all a bit of a shoc...

•8 years ago

Live in carers

Hi, I would like to ask an advice and to share yr experience with live in carers in UK. Where do you get good live in carers? How much do you pay them? I...

Hi, I would like to ask an advice and to share yr experience with live in carers...

•8 years ago

Yes I can!

After an , "I can't do this anymore" start to the day, I went to a friend's house to unwind with coffee and a chat. At lunchtime she gave me a lift to a local...

After an , "I can't do this anymore" start to the day, I went to a friend's hous...

•8 years ago

Physician's Guide to PSP

https://www.youtube.com/watch?v=IXMv919LOWE This video may also offer some answers to the newly diagnosed. Christine47

https://www.youtube.com/watch?v=IXMv919LOWE This video may also offer some answ...

•8 years ago

I am back

Feb. 10th marked the 4 th month since my Joe began this horrible scenario of not knowing I am his wife. I joined the group but lost touch for a few months but...

Feb. 10th marked the 4 th month since my Joe began this horrible scenario of not...

•8 years ago

Hand rail walk way thing

Hi guys My dad is still able to take a few steps if we keep telling him to take big steps, or say LEFT RIGHT, but we need to hold him whilst he walks. I'm...

Hi guys My dad is still able to take a few steps if we keep telling him to take...

•8 years ago

He said, "I'm dying today."

Last week my husband who has PSP woke up at the normal a.m. time but stayed in bed and said he was not going to need a ride to the office. He seemed distant...

Last week my husband who has PSP woke up at the normal a.m. time but stayed in b...

•8 years ago

PSP Conference

2016 Family Conferences CurePSP <programs@curepsp.org> Feb 5 at 11:51 AM To Opolka Message body CurePSP 2016 West Coast Family Conference will be held at...

2016 Family Conferences CurePSP <programs@curepsp.org> Feb 5 at 11:51 AM To Op...

•8 years ago

Info on Education Event UCSF

People Kryste Torres <krystetorres@yahoo.com> Feb 2 at 10:06 PM To jelise@optionline.net Message body ----- Forwarded Message ----- From: UCSF Memory and...

People Kryste Torres <krystetorres@yahoo.com> Feb 2 at 10:06 PM To jelise@opti...

•8 years ago

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Second day home!

Hi, thank for all your replies! S is a lot better now. I think I have understood him, that the home was fine and he would be happy going back, next time! I...

Hi, thank for all your replies! S is a lot better now. I think I have understo...

•8 years ago

Found something that stops my shaking, for short spurts at least.

I was diagnosed with Parkinson in 2013. My main symptoms are shaking and my balance is terrible at times. I walk like I am drunk a lot of the time. I am having...

I was diagnosed with Parkinson in 2013. My main symptoms are shaking and my bala...

•8 years ago

stem cells

can anyone advise on stem cells, looking after my sister who has psp, some members of the family have advised her (a clinic abroad also) on great results with...

can anyone advise on stem cells, looking after my sister who has psp, some membe...

•8 years ago

Well, I'm back!

Hi, thank you all for your good wishes and support for me, during my week off. For me it went really well. Spent the first couple of days at home, on my own....

Hi, thank you all for your good wishes and support for me, during my week off. ...

•8 years ago

sweating profusely

Hello! from two or three weeks, my mum (psp affected since six years) with no apparently reason, during the day, suddenly began to fidget on her chair , her...

Hello! from two or three weeks, my mum (psp affected since six years) with no a...

•8 years ago

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